Hey, new to the forum, but have read much before. It's great to hear about everyone going through the same thing as me!!! Ok... wells here's the short low down on me..
Grew up in New Jersey, around 15yrs old, got mono, got hypothyroidism, and never recovered. Tested positive for Lyme, given 2 weeks oral antibiotics, re-tested and supposively fine. Never got energy back, glands swelled, always felt like junk! Docs put me on Adderall (don't ever go on it if docs try.. please) and dismissed it as CFS. Moved out to az in 2002, and still felt horrible, and still on Adderall to stay awake. (I'm 23 now) Finally last Oct, went to see an arthritis doc because I hurt all the time, and told them to retest me for Lyme, and sure enough, it turned up again years later.
Found Long Life Medical in Mesa, Az, the doctor Dr. Korn from Envita in Scottsdale. I've gone through the 9 week protocol of EDTA, Zithromax, and mineral IVs and Collodial Siver. I also take Dribose, Coq and numerous other homeopahtic stuff to try to stay feeling better. The treatments were long, and herxed after them, and felt pretty bad. My treatments ended in April of this year.
So now.... I've kept up with eating well, trying to work out a bit more, taking lots of vitamins, and 2 months of oral zithromax/edta compound. I am still on the stupid Adderall because it's almost imposible to get off of it, and I am trying to slowly ween myself off of it. I have felt a little bit better, haven't gotten sick, glands don't swell, and an ongoing skin infection has finally stopped rearing it's ugly head after 2 years. (doc said it was from the lyme bacterial dying and releasing through my skin)
So I have some good days now, but just in the last 3 weeks, my joints in my hand and feet are killing me again. It's not the same almost electric shocks I was getting during Lyme, but a annoying dull ache. I don't know if I just have fibro or something now, or if the lyme is coming back.
SO that's my story! Thought I would share! There obviously is a lot more to it, so if anyone has questions about there treatment or anything, please ask! And any feed back from anyone who had the same treament would be awesome!