I just want to take a moment...

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Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/29/2009 8:44 PM (GMT -7)   
And say thank you to everyone here. The support is incredible. I know we all have our ups and downs, but I take comfort in the fact that if I am ever afraid, there are people who will listen. Loneliness is terrifying, and because of this place, I hope no one has to feel it any longer.
 
I used to come here only for information, but suddenly I feel as if I'm among friends. I'm doing my best to answer posts and try to give back some of the kindness I've been given by all of you.
 
That's all :)

XoXo,

Jen


Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/29/2009 8:49 PM (GMT -7)   
Jendays -- you are so sweet, thoughtful and generous in this post. I'm afraid I am still in the mostly seeking info phase, but the help and support here are indeed amazing. I also thank everyone!
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/29/2009 8:52 PM (GMT -7)   
LK,

Yes I had a WB. I had 39 IND 41 +++ and 58 + on IGG. On IGM I had 30+, 39 IND, and 41 IND.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/29/2009 8:55 PM (GMT -7)   
man, this is the best place for advice and for companionship. i won't leave here until i'm dead.. i know alot of people get better and live normal lives again and don't get a chance to come back.. which is understandable..

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/29/2009 9:16 PM (GMT -7)   
LK, by the 'looking for info phase', I was just responding to Jendays who said above that she used to only come here for information, but it has grown into so much more.

yes, I believe that I have lyme because of my positive 39 ( IgG) band from the crappy Quest test. I don't know and can't find any other reason for having a positive 39.

Still, even tho I have so many symptoms, added to my recall of the months following my problem bite, I am still looking for answers. I still wonder if it is possible that having +39 can mean anything else, for example that I was infected at one time, thus the antibodies, but that I am no longer actively infected. It seems a dumb question, because if this were true, I would not have any symptoms, would I?

Still, just as most everyone does, I experience my own 'denials'. I know that I am not well, and I remember too well what happened to me after that bite. But I am near as ill as most people on here, so of course, I will still question this in me. Does that make sense?

I am hoping and praying that I can learn something more certain from my LLMD appt tomorrow.
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/29/2009 10:18 PM (GMT -7)   
thats not ture lk as i was last bit by a tick more then 3 yrs ago and it showed up in my blood 3 months ago. and then again nothing makes since with lyme. it doest have a handbook out yet..lol

jen i to am thankfull to everyone who have been there for me and others in our time of need. in many ways i have made some very close friends here. at least its how my heart feels.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/29/2009 11:13 PM (GMT -7)   
You are giving back tooo, thank you your a cool chick.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/30/2009 10:09 AM (GMT -7)   
I agree. I'm so glad I found this forum. I have learned so much in the past months than I've learned in the 2 years I have researched. The support here is unbelievable! I have never been to a place that cares so much.

Thank you all for listening to all of my complaints and just being there for me. I don't even have words to explain how that makes me feel inside.

I love ya'll!!!
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

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