White Matter Lesions

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Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/30/2009 7:26 PM (GMT -7)   
Am I the only one with lesions in this particular area of the brain?
 
Typical of MS, btw. :(
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/30/2009 8:22 PM (GMT -7)   
I have had three MRIs over the course of three years and they never changed. I haven't had one in a year and a half though.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/30/2009 8:24 PM (GMT -7)   
RD has lessions too. I think I may have another MRI done to see if anything has changed.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 6/30/2009 8:41 PM (GMT -7)   
I had multiple lesions 2 in my brain and 7 or 8 in my spine. Diagnosed with MS. After 90 days Rocephin my MRI was almost clear you could barely see a couple on my spine. My MS specialist was amazed still won"t talk about Lyme but told me to keep doing what I was doing because it was working.
 
I stayed on low dose Amoxy for a couple years decided to stop i felt great. Now I have a bunch of new lesions. They are tying hard to push Copaxone, I am almost considering it. But I am going back to Conneticut to see Dr.K and hopefully get more IV antibiotics. In my opinion the only way to really touch nuero Lyme.
 
MS and Lyme topic together sucks, in my opinion.
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/30/2009 9:28 PM (GMT -7)   
It DOES suck...I wish we knew that all MS was Lyme, so we could tackle it. I'm terrified I'm a 'just MS' case. It is scary to know that you can't reverse the damage. I hope that once I'm on the IV Rocephin I will see good changes and that I can get better. If I knew my condition would never get better and that my life now is how it would always be...well, I'm not sure how I'd deal with that or if I'd ever be able to accept it.

I just have always had a feeling I have MS...but then before all of this, when I didn't know what was going on, everything that I came across, I convinced myself I had it for sure. Now it's different because it's been so long and I still have no definitive answer.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 6/30/2009 9:32 PM (GMT -7)   
Jen,
 
Do you want to chat?  I am in the lyme room.  I will wait for a few minutes.  You decide.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/30/2009 9:33 PM (GMT -7)   
Thanks Gretchen...I'm going to go to bed, I think. My balance is just terrible today, even just sitting up.

Catch you another time?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 6/30/2009 9:35 PM (GMT -7)   
Sure.  I just wanted to offer some support.  No worries.  I think you are doing everything you can.  Go with the Lyme first.  You have time on the MS.  It is quite slow moving for most of us. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/30/2009 9:59 PM (GMT -7)   
jen, i had a MRI 3 months ago. it showed i had 10 to 15 lesions in my white/gray matter in my fontal loub. ID send me to a nuero to rule out MS first. did that i was told i do not have MS. i also saw a neuro surgern and he wasnt consern at all. the neuro did do a EMG test on me and found out i have sciatica in my right leg and neuropathy in both legs.

my MRI report stated due to 6 different things as possable causes. 3 were cancer related 1 was lyme 1 was migrains and 1 was virus. but nothing stated anything to do with MS

ohh and they said they was 5mm and smaller in size. no wonder my head hurts..lol
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)

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