Yesterday, I found out the SPECT scan I had last week showed significant improvement since the one I had back in 2005 when I first went out on disability. I know I should be thrilled but the problem is that I feel so much worse since 2005 and I'm having a very hard time understanding how this can be. I just finished three months of IV Rocephin and realize that it will take much longer than three months considering how long I've been sick but again I just can't understand why I'm not feeling any cognitive improvement when the scan indicates significant improvement. Could this possibly be because there's permanent damage?
I experience constant dizziness and lightheadedness and the brain fog is the worst it's ever been. I have difficulty speaking and sometimes even a simple conversation is a real struggle for me. When I push myself to try or am forced to, I become extremely stressed and frustrated by my inability which just increases the depression. I can be in the middle of a sentence, or listening to someone speak, and my brain just shuts down completely and I'm unable to respond. Of course, friends and family have absolutely no understanding because I only pick up the phone or see them when I'm feeling capable.
I manage to muddle through posts and e-mails because I can take as long as I need to finish a thought or a sentence but very often I can't even do that.
I feel like a lonely, frustrated zombie.