crying in my lyme

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/1/2009 9:58 PM (GMT -7)   
new sogn in town, you may have hread the sogn theres a tear in my beer. well i'm crying in my lyme tonight.
 
i am so down and out due to my neighbor. i wish there was something i could do to help her. she is such a sweet  young lady to have to battle this like she is. i can not even thing what is going thro her mind.
 
and then i look at me. what i am going thro. i have no Dr. support at all really. and if i cant get treatment i can be like her sooner then i should be. and i some this up to Dr.s and the flipping CDC.
 
i go back to the ID in the morning and i am praying he will start the IV treatment. then azthomyacin 500mg he put me on didnt do anything for me at all. if anything i am getting worse. the neuro issues are now bothering me. i didnt have this 3 months ago.
 
3 months ago all i had was extrem pain for over 2 yrs. blow out my right knee almost 2 yrs ago. and was then placed on meds for the pain, 1 yr on celebrex now.
 
if it had not been for the lesion in my left eye. i wouldnt of had the MRI done. and i wouldnt of known about the brain lesion , witch led me to find out i have lyme. woohoo!! an answer that explanes everything i have suffered thro for so many yrs.
 
well i rejoyed a lil too soon. as the Dr. here do not belive in lyme. my PCP who ran the test only after i asked him to. told me he doesnt know or understand lyme. sent me to a ID. the ID told me to my face why holding my POSITIVE TEST!! there is no lyme in this part of Tx.
 
yes i am haven a pitty partty tonight so sorry if your still reading my post. i cant help it.
only you who have to live with lyme can come close to understanding where i am coming from.
 
belive it or not i evey so many of you. your able to get treatment. but in the same breath i wish you all cured. could thro you battles it may help me to get treatment. i just pray my own body can hold the lyme at bay long enough. and in my prayes i also hope my friend hangs in there long enough too.
 
it is so sad that people die from this when  there is so much that can be done if the INS compy would stay out of it. that the fear away from Dr.s  so they can treat us.
 
again so sorry it was long, and also for my ranting. i just cant stop the depression tonight.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/2/2009 6:47 AM (GMT -7)   
RD, I am so sorry and wish you luck today at your appt. I can only imagine how you feel because I am fortunate enough to be getting treatment and am still so frustrated, angry and depressed myself. I'm hoping your doctor does start you on the IV Rocephin. Since the brain issues only started it might prevent it from getting worse which would be a huge step in the right direction.

I'm probably delusional (lol) but I have hope that the hearings on July 30th will make a big difference in all of our futures.

Hang in there and please let me know what happens today.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/2/2009 6:55 AM (GMT -7)   
thank you scorpio,

when i first whent to him he said he treats with 30 days IV rocephin. but was scared to give it to me due to my allrgy to penicillin. i hope he will test to see if i can use it this time. the azthiamycin 3 days out of 10 just isnt doing the trick.

anyways if i am lucky enough to get the 30 IVs it will tied me over pass the 30th and then i can pray for more..lol

i'm about to leave now for the Dr.s, but i will let you know how it goes. crossing everthing i have :)
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/2/2009 9:10 AM (GMT -7)   
I also am allergic to Penicillin and have had no problems with the Rocephin so don't let that deter you or your doc.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/2/2009 11:45 AM (GMT -7)   
Gracie's Mom, thank you for the thought, but if you see my other post you'll see it didnt go good at all. i'm at my wits end now
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)

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