any chronic lymers or lymers left with residue struggle with obvious confusion and inability to expr

I contracted lyme in at least 96 if not 90 and then remission but anyway I do the best I can.   I am easily confused it just happens out of the blue like someone says something to me and whoosh right over the head or i can not express intelligent thought comes out real crazy, this is intermittent but embarrasing as all get out as i have chosen to only share my health problems with this board (terribly eratic member) and my close family and only my closest (like 2 friends) because I want my privacy HOWEVEr they probably wonder why i do not work and am in the house so much but oh well.  what the problem is___-  I'd love opinions i have a 30th reunion coming up I don;t think i better go because i think there is a chance people will notice something is not right,  I can only fake it sometimes and then i quickly remove myself from the "confusing: situation.  Does anyone else have this problem?  My memory is real bad too and sometimes my mom will tell me things to well fill in the blanks. I really do not remember so much its bad enough a psychiatrist is going to try some type of alzheimerie drug on me.   I do not take antibiotics nor have I for maybe 2 or 3 years I just didn't feel like it was no longer helping.  here is an example i just asked my daughter if i could plkease have one of those yellow candy bars in cupboard turns out the name is butterfinger but i could not 'find" the name.    just wondered if anyone has this problem and is embarrased and avoids certain situations because they do not want people to know something is wrong.   thanks to the people who responded to mi cry  a few months back i don't remember what I wrote but i know I was down rather deep, but pulled back up.  thanks lisa

Yeah ... you're not alone in this.  I'm having a neuropsych exam in a few weeks to figure where/ how bad my deficits are.

But .... can I suggest a little different approach?  I'm sure sometimes people notice something is not quite right with me ... because something is NOT quite right with me.  My wife and I went to a small zoo today that's not too far away.  So I'm doing my usual walk for a while then sit in the shade for a while.  So ... I was sitting on this rock in the shade and one of the workers asked my to use a bench (they were in the sun).  I told him I just wanted the shade and would find a bench in the shade.  I walked off and I'm sure he noticed that everything was not "quite right".

So, anyways, it turns out that after i wandered off he asked my wife if I needed anything or if he could help in anyway.  Not everyone wants to judge us.  Some want to understand and help.

Just an observation, but trying to hide a condition like this is consuming a lot of your energy.  When you meet people people at the reunion, you can just tell them you're having a problem.  Laugh (it puts people at ease) and just tell them to please forgive any "senior moments" you may have and that's it's a problem left over from Lyme Disease.  Don't have to make a big deal of it - but you won't have to waste any more energy trying to hide it. 

RD's advice is very good.  Can you take someone with you?  I'd hate for you not to go to your 30'th.  And anyways, this is the over 45 crowd and a lot of people will have health issues of one kind or another.  Aches and pains and lotions and potions are always good conversation starters.

 

---

Rich

Lyme, anxitey, depression, chronic C. Pnuemoniae

"... expect the unexpected ..."  (O. Wilde)

"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)

Yeah I've been sick 9 years and I have these symptoms.... it can be so embarrassing. With MJ's passing I was trying to discuss "rap" music and "break dancing" with a friend and couldn't find those words.. I was saying remember when the kids would roll around on the ground..... and sing with rhyming words, etc. etc.

You're not alone on this one!

---

^{Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade}

^{06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +.} 

^{Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT}  

^{"Medicare/SSDI theme song" - http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related}

^{"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs}

RosesInJanuary,

I have been struggling with this for the past few years. It gets worse for me when I am on Antibiotics. Sometimes, I can talk pretty well. Other times, I am trying to "remember" a simple word I want to say. Its very frustrating to say the least.

A few times now, I have tried to say two words and they both came out as one word. I have no idea how that happens but it can be scary at times. I try joking about it and make light of the situation. It helps a little.

I agree that maybe you should go to the reunion and take someone with you. Im sure there are many people there that have problems. Just try your best and if you goof up, its okay. You have a disease. If someone has something to say, and Im sure they wont, then poop on them!

---

2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

yes

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^{Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade}

^{06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +.} 

^{Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT}  

^{"Medicare/SSDI theme song" - http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related}

^{"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs}