I'm about ready to give up on doctors in general!
I've already had a horribly depressing appointment with my GP. Not only does he not believe in Lyme, but he doesn't think I'm "sick enough" to get tested for anything else. In two years- he has tested my complete blood count once, and my vitamin levels once. He just prescribes arthritis medication, and forgets about me. I guess he thinks 20 year-olds taking Celebrex is normal?
So I started going to a drop-in clinic as well, to see if they would be better. I managed to get a referral to a sports medicine doctor through them (back when I was treating my symptoms individually). The referral was for shin splints, but when I mentioned all my other tendon problems, he tested me for autoimmune diseases as well. He was pretty good- but his specialty was with mechanical problems, so he couldn't help me too much.
I went back in to talk to them about my neuro issues- and if anything, they were worse than my GP! I just managed to get out that I had muscle twitches and tingling, and the guy interrupted to tell me it was stress! When I told him I was less stressed than I had been in years, he completely ignored me. Then- he went back over my files, and started critiquing my sports medicine doc's treatment of my shin splints. The drop-in clinic guy said that since my bone scan was normal, there was nothing wrong. It was like he was trying to prove I'd made [I]that[/I] up as well! He finally agreed to test my thyroid and blood glucose, but he told me he thought it was a waste of time.
The only doctor who actually took my seriously was the sports med doctor. But he's not qualified to deal with it, and he can't refer me to anyone. (There's some rule about specialists referring to other specialists). He said I would have to go through my family doctor.
Even if my GP weren't involved with my Lyme treatment, it would be nice to have him onboard for some of the more worrisome symptoms.
It would be nice to have other things ruled out...
I was praying for my test results to come back positive, so I could get a doctor to listen to me, but I'm starting to think it won't matter. When they look at me, they "see" a healthy young girl, and so they don't even bother listening to me! And, of course, if they don't listen, then they'll never think anything is wrong, and they'll never agree to treat me- no matter what the Igenex test results say!
In a horrible way, I almost wish I were more visibly sick...at least that way I could get help. Now, I just sit here, feeling myself getting worse, and knowing what's wrong with me, and having to just let it happen.
I just needed to vent. It's been a trying day. My test results are almost a week late, and my family went on vacation on Wednesday, so I've been having to act all happy, so that they don't feel guilty about leaving me behind.