Date Joined Jul 2009
Total Posts : 3
| Posted 7/6/2009 5:56 AM (GMT -7)
I need some help...I was diagnosed in April at Sierra Integrative Med Ctr in Reno, NV with Lyme. Came home, had a Lyme test done at my family Dr.'s office and it came back negative. I am supposed to go to Dr. Ryser in a few wks but now hearing negative things about
her. What do I do and where do I go?? Please help. .......I was also diagnosed with multiple sclerosis in 1991, forgot to mention that.
Post Edited (searching66) : 7/6/2009 8:31:09 AM (GMT-6)
Date Joined Feb 2003
Total Posts : 9208
| Posted 7/6/2009 1:34 PM (GMT -7)
Hi searching66, welcome to the board!
Which test did your family doctor run? There is no 100% reliable test for Lyme. From what I understand, the ELISA or titer is the least reliable test and the one most doctors run first.
Below is a Lyme symptom list. You can have any combination of symptoms.
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
You can email me at firstname.lastname@example.org for doctor recommendations.
Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel worse. It can be scary, but it is a good sign the antibiotics are working. During treatment it is a good idea to document your symptoms daily. One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He discusses antibiotics and doses starting on page 18. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.
Post Edited (ticker) : 7/6/2009 2:38:46 PM (GMT-6)