Going to LLMD on Thursday!!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/6/2009 3:44 PM (GMT -7)   
ok, just got a call from DR.C office in springfield Mo and they have a cancellation for this thursday.. I don't have my Igenex test yet.. but i thought i still should go right" i mean the next time i can get in would be october. Tomorrow i'll know if my dog has any co's, so that might help also.. i mean all my symptoms point to something lyme related, if nothing else, i'll bring a photo of the EM rash at least and all my other paperwork from the PCP i've gathered over the last month..


anybody have any good advice for questions i can ask him? This is my first time here, i don't want to leave any stone unturned...

Agmaar
Regular Member


Date Joined Jan 2009
Total Posts : 376
   Posted 7/6/2009 4:03 PM (GMT -7)   
I'd suggest you make some notes to take with you.  Don't depend on your memory at the time of the appt.  Also write down any questions you want to ask. 
 
Many of us have left a Dr's office and then said, "Oh yeah, what I really wanted to talk about was ......."  shocked
 
Maybe make up a time line of your symptoms.  You could ask him what a typical course of treatment would be, but we're all different in the way we respond/ tolerate meds.
 
I'd expect him to give you a Lyme and treatment overview.   Just ask questions as you go.  Take notes that you can refer to later.   
 
Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/6/2009 4:27 PM (GMT -7)   
I agree. Write down everything you want to ask or talk to your doctor about. Write down all of your symptoms and when it all started. Also write down if your symptoms changed or if you had new ones or more intense symptoms when you started your antibiotics. This will let your doctor know alot. Bring all of your medications so they know everything you are on including supplements. Maybe take notes yourself so that you can remember everything your doctor has said. Ask your doctor if they would suggest any other supplement you should be on. Ask why he thinks your WBC count is low. Bring all of your bloodwork or any other tests you had done.

If I think of anything else, I will let you know.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/7/2009 1:47 AM (GMT -7)   
if possible - take someone with you - it is hard to take everything in - two pairs of ears are better than one!!

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/7/2009 4:39 AM (GMT -7)   

Good luck James!  It is great you got an earlier appointment.

This doctor does not test for co-infections.  I always suggest having them done.  If you want to be tested for them, tell him you want to.

Write down a complete history of when you became sick, what your symptoms are etc.  Write down questions and I suggest writing down his answers as best you can.  It is hard to remember everything.  He will give you a lot of print-outs with information.

Let us know how it goes, okay?

 

CherylSue
Regular Member


Date Joined Jul 2007
Total Posts : 211
   Posted 7/7/2009 6:19 AM (GMT -7)   
Yes, this is my LLMD. Good suggestions above. Bring a pad and pen with you and take NOTES! He'll give you handouts, but it's always better to have notes to review.

He pretty much does monotherapy one at a time. If I had to do it over again, I would ask to take minute amounts of brand name Flagyl with a cell wall drug. (Can't take Flagyl with the doxy or any or the tetracyclines.) Doxycycline has been my favorite drug, but not one I would recommend in the summertime.

Also, ask for the brand name drugs, not generic. There will be a difference in how you tolerate them.

The Clindy/quinine protocol he uses for babs is outdated. Ask for malarone or mepron/zith if you can tolerate it.

He's pretty flexible. He'll do whatever you both agree.

Good luck.

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/7/2009 1:30 PM (GMT -7)   
Good luck at your appt James!! So glad u got in so quick. Could you bring someone with you? It's nice to have a second set of ears. After my first appt I left with my head spinning it was so much info. Nice to bounce your experience off with someone afterward. Hope you leave feeling better. I think you will.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 4:03 PM (GMT -7)   
since i don't have any Igenex stuff back yet, how can he diagnose me right? just by me explaining my symptoms and a possible overview of my body? i just curious, since all TBI are treated different. Doxy is the only choice of drugs for most PCPs, so will being on Doxy hurt me since we have no idea what TBI i have?

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/7/2009 4:45 PM (GMT -7)   
No it's not going to hurt. And remember he'll have your igenex results within a couple weeks so atleast you will be a patient of his and he can start treating according to your results. Much better plan than waiting until October. It will be good for you to explain all your stuff that's been going on. Even with no results. Don't worry things will work out.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 4:49 PM (GMT -7)   
my goal is just to get back to work and try to act normal again... its hard.. i mean i woke up one day and it felt like i had 3 months to live.. thats how bad its been...

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/7/2009 5:45 PM (GMT -7)   
James,

Definitely go to that appointment. You and your doctor will learn a whole lot about each other. He can give you a clinical diagnosis until your results come in and he may want to change the medication you are on depending on your symptoms and what you tell him.

I know what you mean about being fine one day and waking up sick. The exact same thing happened to me. We will make it though. I have so much hope now.

I am so, so proud of you for stepping up and getting things done. YOU ROCK!
2003:]2007: Diagnosed with Lyme. Didn't start treatment.
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements


**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 5:51 PM (GMT -7)   
^^its just crazy really, i'm sick, my dog is sick all at once.. what happened? its just really scary, because as everyone knows, you are in this almost alone.. no one around me has no idea what i'm dealing with.. just snap out of it, you need a shrink, you need this and that.. whatever, i need to have a clean bill of health.. thats what i need.. no question about it..

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/7/2009 7:22 PM (GMT -7)   
James, I'm so glad you're seeing the doctor so soon. He will make a clinical diagnosis and probably change up your meds according to your symptoms anyway, not your test results.

Not having anyone in my life understand what I'm going through on a daily basis or how sick I really am is sometimes harder on me than the illness itself. There are a few who try but I know they don't really get it.

Anyway, try not to spend too much energy (like I did-lol) on what others understand or don't understand about it all and know that we are here for you and we do understand.

Good luck and let us know how it goes.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/8/2009 12:24 AM (GMT -7)   
This board made me realize how much I was focussing ok people that didn't understand me or just didn't care. I realized that I had so many positive things in my life that I was overlooking....like the support and friendship I have found here. Now when I get upset, I remember all the positive things and it helps me so much. I have truly been feeling better mentally.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, November 22, 2017 2:29 AM (GMT -7)
There are a total of 2,896,652 posts in 317,924 threads.
View Active Threads


Who's Online
This forum has 157513 registered members. Please welcome our newest member, tilanegi.
221 Guest(s), 7 Registered Member(s) are currently online.  Details
Derwent, Dahlias, Dimitri71, tilanegi, PA_grandma, M1961, Steve n Dallas


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.