My 12 yr old has been getting sicker and sicker every year.
She started out with a UTI at 3 yrs old that was misdiagnosed as a flu and it went to her kidneys, for 10 days before they diagnosed her. (she had a red hot rash on her monz.) She was actually starting to go into shock by the time she got ABX. They only gave her 10 days of antibiotics and said she had an uncomplicated uti. It kept coming back after a month. She had recurring UTI's for years. (e coli and klebsiella). I feel they never did give her enough ABX to wipe it our for good.
a year later knee pain started, and a year after that hip pain. Then it started moving back and forth hip to hip, with a weird red ,hot rash where the pain was!!!! Eventaully the pain started moving to her low back. It now moves around, and can be on shoulder blades too, or neck. She now has pain in all these areas plus toes, tendonitis in wrist and fingers, calf and thigh muscle pain, fuzzy brain, insomnia, bad breath, acne, food allergies, ear pain with black wax, eye twitching, swollen lymph nodes on and off, propensity to migraines, sensitive to light and odors, and IBS. She is stiff upon rising. Now she is starting to get dizzy upon standing and is blacking out and fainting to the floor. (her pedi wants her to see a heart doctor). I had her pedi order IGENEX test and she showed ++ on 41, and ** IND** on 31 , 34 and 39 with a note of" clinical significance". Do you think she could be sick from lyme? or do you think the klebsiella could be in her tissues? Does any one have a lyme literate doc in the SF bay area they can refer me to? We need help - we need a doc who will give her ABX treatment... Please help!