Has anyone else lost weight?

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james from missouri
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Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 5:02 PM (GMT -7)   
man, i'm struggling here.. i'm already a skinny dude! i usually weigh around 180+ but now i'm sitting at 167.. i know the stress and anxiety and prolly doxy have played a roll in this.. but i really need to gain some weight back.. i've been trying to read up on what to eat and what not to.. but its hard to eat extremely healthy and gain no weight.. i'm just curious on what to do? any helpful links would be nice.. but i'm just trying to get at least 50grams of protein in me daily, but thats about it..

i use to eat junk food, and sonic every other night.. not anymore!

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/7/2009 5:35 PM (GMT -7)   
James,

My husband used to be really skinny when he was younger and started drinking this powdered protein shake. I will have to ask him what it was called but it really helped him gain weight and it was also healty. He got it at the Health Food Store. I will ask him what is was when he comes back.
2003:]2007: Diagnosed with Lyme. Didn't start treatment.
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements


**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 5:48 PM (GMT -7)   
ok, thanks... i really need some weight back.. i look deathly sick... like a cancer patient that has been through chemo

RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 8:42 PM (GMT -7)   
have you checked into mussle milk i belive is the name of it. my best friend have to drink this when she broke her neck. and its a lil on the pricey side from what she told me
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 8:47 PM (GMT -7)   
i'm looking for anything that will build me back up, and not affect the lyme from stirring up..

some stuff i used to eat, i tried to eat it now, and i have weird symptoms from it... basically anything fried or sweet doesn't do well for me...

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/7/2009 9:28 PM (GMT -7)   
James,
I lost a lot of weight too. I weighed about 125 before I got sick and now I am about 110. It is hard to gain weight when you're not hungry and stressed out. I try to eat carbs. I know the whole sugar thing is bad but I don't want to lose anymore. I did buy boost and ensure. The protein shakes are a great idea. Ask the doc on Thursday.

RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 9:37 PM (GMT -7)   
i know in the last 2 months everythime i eat. i have this awefull after-yast in my mouth. abd the only thing that has worked to remove it eating a few twizzlers. i'm not sure if anyone else goes thro this but its odd to me. and its not from a new med. this happened b4 i was placed on my new meds.

i have the opasite as i have gained weight. i dont eat much either. i cant eat a whole kids meal from mickyDs. so i blam it all on not being able to walk much at all. sometimes i am so bad off if i drop something blue has to pick it up for me. boy i'm so glad i trained him this..lol he is also my handrail if i am walking on steps that dont have rails.

i hope there are others here who can help you with this issues. if i could shave some of mine off and give it to you i would glady do it hehe
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/7/2009 9:57 PM (GMT -7)   
I started to gain weight as symptoms developed and progressed over the years. Everyone said some weight gain was normal with age but I never bought it. Thankfully, since starting treatment I am slowly losing without even trying. Unbelievable!

RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 10:04 PM (GMT -7)   
thats great news scorpio. lets just say blue out weighted me 3 yrs ago, i cant say that now tho..lol i so want to lose it but how when you cant walk. and like i said i dont eat much. i have been known to go 2 or 3 days without eating. i know thats bad for me but i cant help it.

again thats great news for you!!!
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 7/7/2009 10:20 PM (GMT -7)   
Losing weight too...big time. I'm drinking four 8oz bottles of ensure a day 250 calories each. It's about the only thing I can handle. Solid food fills me up after one or two bites. Nothing tempts me either, I just can't/don't want to eat.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 10:30 PM (GMT -7)   
mcjane, btw welcome to the board.

i hope this passes for you soon.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/7/2009 10:33 PM (GMT -7)   
Lymes certainly does strange things to us.

RD, I started to gain when I was still fairly active and then just attributed it to not burning any calories after I became sick enough to go on disability. I still spend all my time in bed or on the couch but somehow the weight is slowly coming off. Oh yeah, years back when I started to gain weight and not feel well I was diagnosed with an overactive thryoid, not underactive. When the doctor called to tell me I had a problem with my thyroid I automatically thought it was underactive. Go figure!

My llmd does not believe in treating thyroid based on numbers alone.

RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 10:45 PM (GMT -7)   
scorpio,

now that i think of it my neighbor tho i think has lyme but her Dr wont test her for it. she has been dealing with her thyroid for a few yrs now. she had always stayed at the same weight tho. but in the last yr she is gaining now. and she is always in her yard working. she usealy has a day or 2 a a week that she is laid up in bed tho. almost never fails for her to work in the yeard and then she is in bed.

i also worry about her cause she falls a lot, and 1 time it knoted her out for awhile. she has a oppiontment with my PCP today to get tested, i just now remebered it.lol
i will call her tomorrow to see if they ran the test.

i used to be the one in my family who remeber all dates, now i cant remeber anything from 1 day to the next without looking, it sucks
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/7/2009 11:07 PM (GMT -7)   
I can't believe I actually typed Lymes in the above post. I don't know much but I do know it's Lyme and not Lymes. LOL I guess it's time to go to bed. lol

RD, It sounds like a real possibility.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 11:25 PM (GMT -7)   
lol night night sleep well, and remeber you can always edit your post to change it so no one knows..lol

¤°´¯BIG.¤*¨*¤(¯`´¯)¤*¨*¤.Hugs¯`°¤.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/7/2009 11:38 PM (GMT -7)   
LOL Scorpio. I noticed it but I swear I won't say a word, haha!

James: My husband can't remember what the powdered shake was called since it was so long ago but I'm sure any health food store could help you. Ensure is another good option but I think it has sugar. I'm not sure though.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/8/2009 4:49 AM (GMT -7)   

Hi James.  Many people who have Lyme lose weight for some time.  It should get better with treatment.

Maybe you can check to see if your insurance would cover a visit with a nutritionist.  Then you could learn about healthy meals and snacks with higher calories that will be individualized for your needs.  You can also try Google for healthy meals to gain weight and see what you can find.


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/8/2009 4:51 AM (GMT -7)   

Hi mcjane, welcome to the board! 

How long have you been sick?  Are you currently being treated?  Do you have co-infections?  Babesiosis can cause the lack of appetite you describe.

 

zizziz
Regular Member


Date Joined Jun 2009
Total Posts : 41
   Posted 7/8/2009 8:39 AM (GMT -7)   
i've lost weight too, which is surprising to me since I haven't skated at all lately, or done much of anything else, and I have been eating like a pig. I really thought I was going to be up 5-20, turns out I am down about 5.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/8/2009 10:23 AM (GMT -7)   
James, Sorry you are feeling skinny! I wish I could feel skinny. Lyme and it's buddies have had the opposite effect on me. My LLMD said in addition to it destroying my thryroid, it causes a metabolic disorder. Some lose and some gain.

Last year after 4 months of IV I lost the 30 lbs I gained since beginning treatment 2 1/2 years ago. 6 months later it has come back while I am back on orals----I am absolutely certain this gain is NOT from food. I never lost my appetite even on my worse days but I don't eat like I used to portion wise. So it is either thyroid or lyme and co-infections. I have read in a few abstracts that Babesia causes weight gain for some people especially around the middle.

I am sure as you get treatment your body will get back to the size it is comfortable at.
Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 7/8/2009 11:27 AM (GMT -7)   
Cajun, Ensure has 23g of sugar in the 250 calorie bottle. Ensure Plus 350 calories 22g of sugar.

Ticker, I haven't said anything about my having Lyme because after reading the many difficult and long term suffering other members are going through I should not complain, but here's my story along with some lab tests that you may understand, I sure don't.

Started with chills, fever, fatigue and tremors. 5/29/09 kept getting worse and on 5/31 was getting out of bed to use the bathroom and couldn't stand, just kind of slid to the floor, couldn't move. My husband couldn't get me up so he called 911. Ambulance arrived and took me to the ER. Temp was 103.6 BP was 60/40, was xrayed and told I had pneumonia, CT scan said no. Was given IV antibiotics for four days and then released with a Rx for Cipro. June 11th it started again, temp was 102 so I kept taking Tylenol to keep it down, but overwhelming fatigue and tremors never left, kept me bedridden. On 6/14 my husband took me back to the ER. They called in an Infectious disease specialist she ordered several blood tests. I asked if she was testing for Lyme, she said no so I asked if she would and she agreed. I was admitted to the hospital again and this time put on IV Doxycycline (betting this was because I suggested Lyme) Four days later she came to my room and said I had Lyme Disease. Next day I was sent home on oral Doxy for 20 days and just got another Rx from my PCP for another 30 days (100mg BID)........ How long should I stay on Doxy ??? Would really appreciate experiences............
Since day one I have had extreme fatigue and tremors, sub normal temp, feel cold even when it's hot outside. Not once have I had any of the other symptoms, headache, joint pain, brain fog etc. I no doubt have first stage Lyme and consider myself lucky, but cannot understand why I don't seem to improve and wonder if I will have this fatique forever
Below is what my hospital lab report says, maybe you can tell me what it means: Would like to also add that in a few days I will be tested for co infections: Babesiosis, Bartonella, Ehrlichioiosos and will do the WB again. Any suggestions for other tests very welcome. I feel blessed to have found HW I have learned so much.

lyme disease AB (IGG) WB positive
18 KD (IGG) band reactive
23 KD (IGG) band reactive
28 KD (IGG) band reactive
30 KD (IGG) band reactive
39 KD (IGG) band reactive
41 KD (IGG) band reactive
45 KD (IGG) band reactive
58 KD (IGG) band reactive
66 KD (IGG) band non-reactive
93 KD (IGG) band non-reactive

Lyme Ab 5.64
Lyme Disease AB (IGM) WB positive
23 KD (IGM) band reactive
39 KD (IGM) reactive
41 KD (IGM) reactive

Ehrlichia IGG <1:64
Ehrlichia IGM <1:20

EBV Comp IGM 0.76
EBV Comp IGG >5.00
EBV Nuclear AG >5.00
Ehrlichia Interpretation Antibody Not Detected

MAJ04
Regular Member


Date Joined Aug 2005
Total Posts : 25
   Posted 7/8/2009 11:45 AM (GMT -7)   
I lost 5 lbs the first week that I became sick. I am very small as it is, barely over 100 lbs. Started noticing my cheeks were sinking in and everybody was commenting on me looking like I've lost weight, but I just didn't have a big appetite. The antibiotics were also making me sick so I had to take them with food. I remembered something someone once told me about gaining weight....bananas! I have been eating those a few times a week and I can see the difference. They are not too hard to eat even when I'm not hungry. I think I have gained the weight back. I am also starting to get my appetite back, so that is helping too. I don't have confirmed Lyme Disease, but maybe that could help you?

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/8/2009 1:51 PM (GMT -7)   
got alot of good tips from gracies mom today.. i just need like a protein shake that will work and won't stir any lyme up..

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/8/2009 7:14 PM (GMT -7)   
Mcjane,

Never feel like you can't post. We are all in different stages of Lyme. Please, always feel welcomed here:)

Thanks for posting about the Ensure.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 7/8/2009 8:19 PM (GMT -7)   
Thanks Cajun,
I guess everyone has a story to tell and all different some so heartbreaking it hurts to read them.
And then here I am so how can I complain that I'm tired, sometimes shake and feel cold, that's all nothing else not a single other symptom and if I had a bullseye rash I never saw it.

Many times when here I wanted to ask about 1st stage LD, what to do, how long does it last, when will I feel like myself again, am I taking enough Doxy 100mg twice a day, what else should I be doing/taking to get well, when will the fatigue and tremors go away and I've been sick going on 50 days and feeling a little better everyday, not much, but a little. Obviously I was diagnosed early and was tested at my request.
It pales in comparison to what I've read, made me feel foolish to even ask.

I had LD 10 years ago, was sick one day, felt great the next when a friend saw the bullseye rash on my back and I knew I was bitten, knew it was Lyme. Went to the doctor the next day started Doxy and was not sick a single day after that. Now I shudder to think what would have happened if my friend Margie hadn't of seen that rash. I would have never gone to the doctor and would be telling a different story today. I realize I was lucky then and since finding HW realize how lucky I am now.

I felt I had no room to complain, considering what others were going through in comparison.

I had no idea Lyme was such a vicious disease that can rob one of a normal life for years, maybe forever.

I will keep posting, I love this place.

Thanks again for making me feel welcome CajunGrl
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