fibromyalgia or lyme

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gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/8/2009 12:07 AM (GMT -7)   
hi - I am currently on abx. for 'suspected lyme' -
 
I just want to tell you all a bit about how this started - I live in U.K. - following a tick bite [ tick was attatched for about 36 hrs. - was very engorged [ like a balloon!] - and I removed it in 'completely the wrong way'.
 
never heard of lyme disease at the time.
 
maybe a month after the tick bite - got very stiff neck very bad shoulder - rib - pain - my diaphragm area was very tight - etc; - did not connect the 'tick bite with this - who would? - [never having heard of lyme]
 
long story short - someone mentioned 'fibromyalgia' [ I had never heard of this either] - whilst researching 'fibro' I came across lyme - the reason for this post is I guess to say that the symptoms of fibro. - with its 4 weekly flares, etc; leads me to believe that everyone with 'fibromyalgia' symptoms
should be treated with abx. - as we all know how unreliable lyme testing is - I don't see the harm in a trial of abx.
 
just curious to what others think?
 
 
 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/8/2009 12:14 AM (GMT -7)   
Gorbybelle,

This is a very delicate subject. Some believe that Lyme actually causes Fibro. Others don't. I respect everyones opinions. And we should all tread very delicately and respect what others believe.

I hope no one takes this personal. I just want everyone to think before responding:)

I just want to also ask YOU what you think you have? Are you on any treatment yet?
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/8/2009 1:17:01 AM (GMT-6)


twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 7/8/2009 3:07 AM (GMT -7)   
If these symptoms started after being bitten by a tick, I would say it's lyme. In my opinion, I don't think there would be any doubt here. You were bitten by a tick, ticks carry lyme, you have lyme symptoms.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/8/2009 3:21 AM (GMT -7)   
prolly from the tick, the tick can stir up stuff that has laid dormant. Plus this only happened after the bite... Think about each day, and if new symptoms come up.. This is what i did, everyday i had something new going on.. it was frustrating!! i had alot of tests run to figure it out.. But after seeing a Bullseye rash, i new i had lyme.. Now the road ahead is long, but i feel it can be better with the proper treatment and the right Doctors..

good luck to you. and keep on posting

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/8/2009 10:19 AM (GMT -7)   
I haven't done too much research on fibromyaliga, but when I started trying to look for what was wrong with me, my uncle (a doctor) told me that some doctors diagnose fibromyalgia when they probably shouldn't.

Apparently there is fairly strict criteria for a fibromyalgia diagnosis (a certain number of trigger points, etc.), but sometimes when a patient has inexplicable joint and/or muscle pain, and no other diagnosis can be made, doctors just call it fibromyalgia by default.

I don't know (or really have an opinion) on whether Lyme and true Fibromyalgia are the same thing, but I could certainly believe that if what my uncle said is true, than many Lyme patients would be diagnosed with fibromyalgia by default.

But I agree with gorbybelle in that I don't see the harm in trying abx. After all- doctors still don't know the root cause of Fibro, or CFS. So, while getting a diagnosis of one of those two just allows patients to get treatment for their symptoms, it doesn't help them at all in terms of finding and eliminating the root cause. So why not try abx, on the off chance that it is Lyme?

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/8/2009 10:25 AM (GMT -7)   
I feel absolutely certain that Lyme and or co-infections has cause my fibromyalgia.
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/9/2009 9:48 AM (GMT -7)   
I am being treated for lyme now - never had a positive serology test - I am being treated by LLMD.

I have always been 'over reactive' to insect bites in general I don't know if this fact is 'common' in lyme patients. - like a bee sting will cause me to swell-up.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/9/2009 11:38 AM (GMT -7)   
Gorbybelle,

Did you have any Lyme Specific bands on your WB?

I have all of the symptoms you have, plus more and I have Lyme.

What antibiotics are you taking and what dose?
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 7/10/2009 12:41 PM (GMT -7)   
Hi All,
I currently have not only LD, STARI,but have 18 trigger points out of 18 trigger points possible.
I also have Chronic/Acute EBV. The sx all over lap so badly that I'm never sure which one I'm dealing with at any given point.
As far as the abx question - if there was any tick, mosquito, or any other biting insects that may have bitten someone - bare minimum they need to start testing for LD immediately - IMHO.
I was infected with LD & RMSF at a very early age (5-7yrs old) & have now suffered for many, many years.
We all need to protect our children from this kind of tragedy - if there are clinical signs of LD or any other TBI - please get them tested!
We also need to get the word out - there are many, many people in the area I live, that have no idea (just as you didn't, Glorybell) even what LD is.
- Traveler
Now living without appendx & gall bladder

"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro infection from LD, FM, CFS, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis").

Various meds for LD & co's,
1200 mg neurontin, 100mg trazodone
2000 mg chlorzoxazone 50mg Hydoxyz Pam
160 mg dicyclomine 2000mcg B12
40 mg celexa b-complex
800 IU Vit. E 2000 mg fish oil
6mg melatonin 400mg Mg Ox
AND... a multi-enzyme probiotic formula.

Gee, a person would think I was ill or something!! =)


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/10/2009 11:45 PM (GMT -7)   
I am taking 2000mg. Amoxicillin - I have only had 'ELISA' test - I know it's basically useless -

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 11:52 PM (GMT -7)   
I'm on Amoxicillian too. Have you had any herxes yet? That would be a tale-tale sign that you do have Lyme.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/11/2009 12:05 AM (GMT -7)   
I believe fibro is a symptom not standing alone. I do not believe all fibro is caused by lyme but i believe all fibro is caused by something it is not a lone disease.. i believe all sickness has a cause to be found! I also believe a greater number of people have lyme than ever imagined and all diseases of unknown origin are warranted to rule out lyme.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 7/11/2009 5:36 AM (GMT -7)   
The symptoms of Fibromyalgia (often called Myalgic Encephylomyelitis, or ME, in Canada and Europe) can be attributed to a variety of underlying causes, including but not limited to, Lyme, EBV/CMV/other viral infections, Candida infection, nutritional deficiencies, hypothyroid, adrenal burnout, chemical exposures, etc. And sometimes more than one of these things can be combining to contribute to symptoms that would be diagnosed as Fibromyalgia by many MD's.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/11/2009 7:13 AM (GMT -7)   
I agree w/ Razzle. Rrom what I have read and understood (ha ha), Lyme can CAUSE fibro. Meaning, other things, like certain viruses, can also. In your case, it sounds like lyme could very well be the cause of either fibro symptoms, or the illness that is fibromyalgia itself.

Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day

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