Do I have Lyme, need dr - Madison WI
Date Joined Oct 2008
Total Posts : 9
| Posted 7/8/2009 1:55 PM (GMT -7)
think i have chronic LYme disease. Can't do naturals (irritates my interstitial cystitis), tried antibiotics (quit after 3 weeks, fungal issues. Diflucan and diet weren't enough). Looking for dr who does shots or iv antibiotics. So must be in madison WI area or close.
2006 IGenex results: (please if replying let me know if you think i have lyme)
Symtoms: increasing fatigue, muscle pain, cognitive issues, insomnia, etc
Even If I treat Lyme, can I really ever get rid fo it?
Date Joined Jun 2007
Total Posts : 849
| Posted 7/8/2009 2:32 PM (GMT -7)
You have certain Lyme specific bands showing either positive or IND.
Best bet would be to see a LLMD, and work with them on a protocol that your body would be able to handle.
Many people have to travel to see a LLMD as they are far and few between!
Co-Moderator Lyme Disease Forum
Date Joined Feb 2003
Total Posts : 9208
| Posted 7/8/2009 4:49 PM (GMT -7)
Hi Lisa, welcome to the board!
You may want to get restested since you were tested so long ago. Band 41 is often the first to show. Bands 24 and 39 are Lyme specific bands.
Below is a Lyme symptom list. You can have any combination of symptoms.
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
You can email me at me at firstname.lastname@example.org for a doctor recommendation.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He discusses antibiotics and doses starting on page 18. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.