Does Insurance Cover any Igenex stuff

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james from missouri
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Date Joined May 2009
Total Posts : 432
   Posted 7/10/2009 3:37 PM (GMT -7)   
i know you have to pay out of pocket, but after the fact, has anyone ever sent in their copies to their insurance and recieved any money back.. i just got a call from Igenex today that the bloodwork is done and was charged 1500..

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 3:54 PM (GMT -7)   
I paid $200.00 out of pocket for the Igenex test. I never sent it to my insurance company because I was too scared they would drop me or say something since my test was negative.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/10/2009 4:01 PM (GMT -7)   
James, My insurance told me over the phone that they wouldn't cover any of it. I mailed in a claim form with the receipt anyway and they ended up paying a large portion. I don't remember the exact amounts but I think the total cost was somewhere around $900 and they reimbursed me for close to $600.

CG, All of my labs showed up negative too (with many IND's).

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 4:07 PM (GMT -7)   
Scorpio,

I was just scared they wouldn't treat me. It's enough that we're not supposed to have Lyme Disease here add that with a negative test and I may not get treated. I really need those antibiotics right now:(
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/10/2009 4:38 PM (GMT -7)   
CG, I don't blame you. I forgot that you are in the South and all things considered $200 definitely wouldn't be worth jeopardizing coverage for the antibiotics. I was fortunate, or maybe unfortunate depending on how you look at it, to have a spect scan back up the diagnosis even though doctors for 4 years ignored it.

Every time I need a refill I stress that I might be told that they will no longer cover the meds. It's such a shame that we have to go through this on top of being so sick to begin with.

I know I keep repeating myself but I hope the 30th brings changes for all of us.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/10/2009 4:41 PM (GMT -7)   
well, i'll just mail in a copy of it then to the insurance.. i wouldn't think they would drop me.. its worth a shot.

1bitten2xshy
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Date Joined Jun 2007
Total Posts : 849
   Posted 7/10/2009 4:48 PM (GMT -7)   
I too did not submit mine, as I wanted to fly as low "under the radar" as I could.

I have been lucky so far that they have paid for every med, even Mepron and Valcyte without a word. But, they just denied my Nexium after 4 years....go figure!
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 5:05 PM (GMT -7)   
1Bitten2xShy,

How weird that they denied your Nexium. Can you get it over the counter yet? My insurance company did that to me with Axid because you could purchase it over the counter.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/10/2009 5:08 PM (GMT -7)   
1bitten2xshy, How long have you been on Mepron? I keep wondering how long they will cover me for it but am afraid to ask.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/10/2009 5:28 PM (GMT -7)   

1bitten2xshy, most drug manufacturers have patient assistance programs for people who are uninsured or whose insurance will not cover the meds.  Just do a search to find out who manufactures the meds you need and go to their website to see if they have a patient assistance program.  If they do not, research to see who the CEO is and write a letter.  Calmly state your case and end the letter with "Can you help?"  I would be surprised if you did not get a response.

Mepron has a program called "Bridges To Access. "  You may want to look into it if you have not already.

 

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 7/10/2009 5:32 PM (GMT -7)   
Ticker, thank you

No it is not OTC yet. And the OTC's out there do not work. I have paid this month for the Nexium, and my Dr. is fighting it out with the insurance co.

It is always something. Pay $ 360- a month for insurance and then someone who has no clue decides they are not going to cover it anymore, without a valid reason no less.

I was also on Sporanox for yeast for about 1 month and I just got a letter for that as well....that they will no longer cover it.

I was on Mepron for 2 months and every 3 weeks had to have it re-filled. It was like $ 900- every 3 weeks, but I only had to pay $ 25- thank goodness!
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/10/2009 8:48 PM (GMT -7)   
I was afraid to submit it because my test was negative. I didn't want to raise any red flags. So sad isn't it?

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/10/2009 8:58 PM (GMT -7)   
when it comes back neg? does this make you sad or happy? i'm not sure what i will do if it comes back neg.. i have to live my life and stop worrying you know. i will follow Dr. C still and take the meds.. if i feel good, i will stop.. i'm totally confused.. sounds bad, this is prolly the first and only time i hope some infectious disease comes back positive..

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 9:07 PM (GMT -7)   
I was very sad. I wanted to be sure. I wanted the papers to prove to everyone what I had been going through. Actually, I was devastated. But, I got over it and know in my heart that this is what I have. My husband helped me through it too.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/10/2009 9:33 PM (GMT -7)   
i mean yeah.. I had the EM rash.. isn't that enough proof.. just to bad you don't know what TBI you get with the EM rash or it would be super easy..

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/10/2009 9:47 PM (GMT -7)   
I was upset too. I wanted the igenex test done. My doc didn't seem like he needed to prove anything. He knew I had Lyme and was treating me regardless of the test result. I just wanted it for me. More bands came up positive on igenex but still negative. Took a little time 4 me to get over it but I am okay now. Like you I had the EM rash, etc. Just says negative on blood test. I really don't even think about it. The tests stinks.

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/11/2009 10:26 AM (GMT -7)   
I was shocked but too confused to feel sad or happy. lol When my doc explained that my immune system was too weakened to produce antibodies, it made sense and I understood. At least I think it did! I've been in a constant state of confusion for so long I'm not sure what it feels like to think clearly anymore. lol
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