I am so confused. Last April, 2008, I tested cdc positive for Lyme and Bart. Then we rested in June through Labcorp. CDC positive again. Then I went to IGenex. Pretty much off the charts positive. Band 31 with confirmation test that confirmed it was Lyme and not other viruses. Cost me a lot of money. I had a ton of bands....or at least a lot of bands according to me, considering I didn't expect to see that many when I got the results. My llmd at the time said I had the almost the most out of anyone I had ever seen.
So, then my NEW regular doctor performed a Western Blot but it looked more like an ELISA but maybe I am wrong. What's going on? It said there is no Lyme. I remember hearing a story that a lady from Connecticut who was one of the originals who was treated by Alan Sterre (sp) who told her that you never ever get rid of this bacteria. She tests positive for every follow up. She is older now of course but still comes up positive. The test results that I got back are confusing but he says I don't have it. I will include them because it doesn't make sense to me. My other WB always had bands listed either reactive or non-reactive. This seemed to just have titers or whatever.
I feel sicker than EVER. The doctor thinks because my hands are not crippled that I don't have Lyme and it's Post Lyme Syndrome. The only place I have arthritis is is my back. My knees are bad also. For a long time it was just my left knee....long before I was sick. Now it's my right knee.
I'm confused. Lyme or NOT? Why was my IGenex test so positive? I don't understand this.
I won't bother with all of my other symptoms because it's a laundry list and I don't want to bore. But I almost have ever sx under the sun.
Can someone tell me about this result??? I really need help because now it brings me back where I was 2 years ago. Doubting, wondering, feeling like I've been on the wrong track. I haven't been on ANY abx for 10 months, can't afford it.
Did they run an Elisa on me? My others showed bands either Abnormal or non reactive. This had no bands at all.
Can you fill me in?
Here's the results: The lab tests states: L Lyme AB/ Western Blot Reflex....is this the same as a Western Blot. My other papers say "Western Blot", not "Western Blot Reflex"
Lyme Anti body reflex: IgG/IgM AB greater than 0.91 and index range 0.00 -0.90 My doctor said that is negative but when I look at it, it looks like it's over the index range, am I wrong?
Then, the other part of it is "Lyme Disease Antibodies, Quant, IgM: greater than 0.91. Index range 0.00- 0.90.
This was an Elisa right? It says EIA. Does that mean Elisa? I'm so confused. Can anyone help me? My doctor says it's negative but I wanted a real WB with the bands! This doesn't seem to be it. As much help as as many replies are possible. I feel like my diagnosis has been taken away and now I feel back to square one. I also found out that I have Hashimoto's yesterday. HELP!