Mom making me go to doctor today...

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Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 7/14/2009 9:15 AM (GMT -7)   
I've been so sick to my stomach, and last night I was camped out on the bathroom floor...my mom said enough is enough please go to the doctor...so I said fine...

I'm going to go in and tell him I want to know that my suffering is worthwhile. I think I'll have him redo my lyme tests but other than that what should we test for?

It's quite an inconvenience to see my doctor - he's an hour away and usually I just go for med management. I also think I'm going to tell him I need a break from the abx. My stomach is a wreck. I feel it burning and churning right now. I hate that this is happening.

All suggestions welcome; I already look like a pin cushion so more blood work isn't an issue!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 7/14/2009 10:18 AM (GMT -7)   
Do pain meds help tolerate abx use or anti nausia meds. maybe if u find that you are on the right track and that something we do know is that you get worse first then you can get a suffering management medication list.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


1bitten2xshy
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Date Joined Jun 2007
Total Posts : 849
   Posted 7/14/2009 10:22 AM (GMT -7)   
Sometimes your body just needs a short abx break. Speak honestly with your Dr., and formulate a good plan with him.

Also, make sure it is not the flu or any other "normal" everyday stuff we sometimes forget we can get!


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/14/2009 10:26 AM (GMT -7)   
Also get on a regimine of detoxing these neurotoxins that are making you this way. If abx ia working you know that you are getting an increase of toxins in your body, you must release these. you nd a release protocol.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/14/2009 4:27 PM (GMT -7)   

Well...I spent two hours at my LLMD's office.

He said it sounds like serious toxin build up as well as candida. So, we are starting with Nystatin since I can't tolerate Diflucan and he said I definitely have to tackle the yeast that's ruining my digestive system! Also, I mentioned to him how valium helps me immensely, and he prescribed Zen (Gaba). I just took two pills. he said I could take 3 or 4 or more if I wanted since natural things are usually not as strong as pharmaceuticals. We'll see.

I told him I don't think I'm ready for the PICC...I need to reduce my toxin load more first because I can barely think straight today. It's probably the worst it's ever been. I thought I was going to forget who my own mother was while I was in the car with her. And my emotions were seriously out of whack. One minute I was telling her I didn't want to go and was ready to jump out of the car, and the next I was bawling into my pillow. Then I took the valium and was much better. I told my mom this is because things in my brain are misfiring and valium slows all of that down. Surprisingly, I went into the office and the doctor said almost verbatim what I said to my mom about this happening. This is when he suggested the Zen supplement.

I have to believe that it's the Flagyl doing a lot of butt kicking right now because I didn't feel thid bad before the Flagyl pulse started.

I brought the list of viruses that I had posted earlier about, and he ended up testing me for HSV 1 & 2, EBV, Cytomegalovirus, and Parvo Virus. I also got retested for Lyme and he said since most of my stuff is neuro, he really thought a Bart test was necessary. So....almost $700 later, I am home now.

He suggested something called the Lymphstar Pro. Heard of it? It's supposed to get deep into the lymphatic system to rid toxins. My doctor has done it himself as well as his wife and he said he lost 3 pounds overnight! He said he has had 15 patients do it too and they believe it can actually lessen the actual bacteria load too. Then he suggested bioresonance energy/testing. He said that it can really tell you some crazy things about your body that may not even be detectable in blood work. My mom and I were quite intrigued, and I think I'll be doing both of these things very soon.

Well...I'm off to do more research about all of this stuff!

My mom called me a medical dictionary today, LOL. Ah, the things we learn from being sick!


Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/14/2009 4:34 PM (GMT -7)   
I'm glad you went to the doctor and it seems like you're definitely headed in the right direction. Hang in there and trust that you're on track with all of this.

I'm interested in the Lymphstar Pro and am going to do a search right now. lol

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/14/2009 4:40 PM (GMT -7)   
I also wanted to ask...does anyone shake badly? Lately, my hands have been shaking like they never have before. I'm used to the leg stuff but it's definitely worse lately. My hands shake like crazy. I didn't realize this was a kind of tremor. I always thought of tremor and twitching as the same thing. This freaks me out and leads me back to the Parkinson's question!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/14/2009 4:54 PM (GMT -7)   
Jendays247, do you take high-quality acidophilus at least two hours away from your antibiotics?  This replaces the good bacteria and helps prevent yeast overgrowth.  The best ones to get are refrigerated and have a high culture count.

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/14/2009 5:00 PM (GMT -7)   
Ticker,

Yes I do...in fact I doubled up on my probiotics (they are refrigerated) since starting treatment. I got another bottle today while @ the dr.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 7/14/2009 5:33 PM (GMT -7)   
Jen,

Sorry that you have to go through so much, but hopefully something will show up with all this testing so you can find what you really need to heal. It sounds like your Dr. is willing to search until he finds the source of all of your symptoms, and get you well again. Hope the detox eases your nausea and you at least feel a little better that way. I don't know about the shakiness. Youv'e got a lot of stuff going on in your body right now. Could it be from the meds?

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/14/2009 5:38 PM (GMT -7)   
sorry about all your pain today, i'm glad you got to the doctor though, you are going to get alot of questions answered with all the tests you have done, all that will lead to peace of mind, then you can start attacking what you need too...

i was feeling pretty good for about 4 days, and then today i felt spacey, i think i have a major dose of bart.. i'm going to try and take a quick nap.. but i think the mind is very powerful and my anxiety took over and made me tremor and shake alot today in my hands.. i would lift my hand up and it would shake non stop, no muscle spasms, or major twitching, but just shaky..

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/14/2009 7:38 PM (GMT -7)   
Jen,

Your doctor sounds awesome! I like that he believes in natural things too.

Ive been going through something similiar with my emotions. I woke up this morning not knowing where I was. It took me a few minutes to catch my head. I think Im overloaded with toxins too. Im gonna do another detox tonight and see if it helps. Ive been so up and down with my emotions, it is crazy. I haven't felt like that in a while so I guess that anitibiotics are working but boy does it make me feel like crap. I am having so much trouble thinking. I feel like I have a brick in my head. Blah!

I think I'm gonna invest in the portable sauna too. I hear it helps with detoxification alot.

Anyway, sorry to babble on your post. I just wanted you to know that I feel the same. Let me know how the lymphatic stuff works out. I've been wanting to do something because all of my lymph nodes are swollen.


I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/15/2009 2:48:11 AM (GMT-6)


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/14/2009 8:02 PM (GMT -7)   
CG-

I emailed you!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/15/2009 1:49 AM (GMT -7)   
Thanks Jen. I will have to look later. My phone crashed and Im trying to restore it, Grrrrrrrrrrr!
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


jessMi
Regular Member


Date Joined Jun 2007
Total Posts : 108
   Posted 7/15/2009 9:31 AM (GMT -7)   
"He suggested something called the Lymphstar Pro. Heard of it? It's supposed to get deep into the lymphatic system to rid toxins. My doctor has done it himself as well as his wife and he said he lost 3 pounds overnight! He said he has had 15 patients do it too and they believe it can actually lessen the actual bacteria load too. Then he suggested bioresonance energy/testing. He said that it can really tell you some crazy things about your body that may not even be detectable in blood work. My mom and I were quite intrigued, and I think I'll be doing both of these things very soon"

Hey Jen I did both of these so far!! The bioresonance testing was the most helpful!! Know what else really helps too is a Infared Sauna I bought a portable one online for $300 and it really helps with Detox you just sweat it all out but you have to drink a lot of water and take vitsmin C since it can dehydrate you otherwise!!

Jess

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/15/2009 9:56 AM (GMT -7)   
Jess - did you find out anything weird from the bioresonance test? Dr. Z said he had some guy that found out some really crazy things.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


jessMi
Regular Member


Date Joined Jun 2007
Total Posts : 108
   Posted 7/15/2009 1:29 PM (GMT -7)   
"Jess - did you find out anything weird from the bioresonance test? Dr. Z said he had some guy that found out some really crazy things."
 
Hey Jen,
Yeah I actually did I had excess levels of venom from some kind of insect bite he said, it also pulled up the lyme disease and I didnt even tell him I had it. It also pulled up very high ready of chemical toxins the test doesnt get that specific about the kind of toxins just states chemical toxins! And problems with my muslces not getting enough nutrients and my body was not absorbing nutrients correctly "malabsorbtion syndrome" <- I think I spelled that wrong! I went to him for several months and my CD-57 did double and was getting better though I physicaly didnt feel any better. Insurance doesnt cover and of the testing or homepathic remedies so I had to stop going cause it was getting too expensive!
 
Jess

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/15/2009 2:31 PM (GMT -7)   
Jess,

This is actually what Dr. Z told me yesterday. He said one of his patients found out there was venom and I said FROM A SNAKE? And he said no it was from a spider bite! (I think - lol I was so out of it)

Well that all sounds good except for the part about you not feeling any better! Maybe once you find everything out, there are other ways to tackle it than what he proposed.

Do you believe it was all legitimate or maybe not since nothing helped you?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 7/15/2009 4:49 PM (GMT -7)   
Do you want to hear something funny? I haven't gotten my detox bath in a few days, so this morning I was up early and had a little time after my shower, so decided to do the foot soak in the dry mustard and cayenne powder, and added a little epsom salts. I didn't measure any of it, for one thing, and I can't remember if I rinsed off my feet or not, but once I was moving around work enough to get my feet a little warm, they started tingling. They felt that way all day, which in the air conditioning was okay and in the winter would feel really good, but my shoes came off as soon as I got home! Just a little detox humor. Hope you are holding up okay.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/15/2009 5:08 PM (GMT -7)   
Turquoise,

Hey hun. How have you been feeling? You have been on my mind lately and I've been wanting to ask.

I was going to make a new post about foot detox. Did those ingredients help you at all?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/15/2009 5:09 PM (GMT -7)   
Jess,

Where did you get the infared sauna? Does it come in different sizes? Thanks!
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 7/15/2009 5:37 PM (GMT -7)   
magnesium can help with the tremors. hope you feel better soon. I had to stop due to GI stuff, but now I think I just have GI stuff as a matter of course.
Bit June 08.


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 7/15/2009 5:39 PM (GMT -7)   
I'm doing better again. Still a little stiffness in knees and neck, but not pain. It was difficult being on the Doxy and Benadryl and trying to work. I was skipping the morning dose toward the end because I needed to function. I don't know if that was bad to do, but it was that or not take it at all.

I did get the Spirolyd Compound and Spirolyd Support from the health food store. They are in tincture form by Herbal Alchemist. These are what the clincal herbalist reccomended. I was just waiting until the new moon to start them. I remember reading somewhere that it is best to start things at the new moon. It was somewhere in my search for Lyme protocols. I can't remember where or why, but since I'm doing this on my own as maintanence, I figured I'd go by that at least.

I'm trying to figure out if I think the foot bath helped. I think so. I just need to either measure the cayenne or make sure I rinse it all off, but I will remember this for the middle of winter! It would be nice then! I prefer the tub, but keep running out of time at night, and try to get to bed on time, so end up just skipping the soak in the tub.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/15/2009 7:38 PM (GMT -7)   
Turquoise,

I'm so glad you're feeling better. It's nice to hear that for a change.

I do detox baths but not as much as I should. I'm gonna try the foot detox out and see if it helps. I'm gonna break down and get me a portable sauna too for the days I don't want to sit in the tub.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 7/16/2009 8:10 AM (GMT -7)   
CG,

I actually drove with the heat on in the car, only for a short distance, then turned it off and ended up opening the windows. It won't benefit if I pass out while driving. My Mother in law heard of someone who goes up in the attic, but my husband and I laughed at that thought. We have an attic, but the only access is through the hallway closet. There is a hole at the ceiling of the closet, and to get in there we would have to emty and remove the shelves and climb to get up there. There is a crawlspace in the garage, that has access by a folding ladder. It should probably be cleaned out anyway. Never thought of the heat as a benefit. As you can tell, I haven't invested in a sauna yet.
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