Presenting symptoms...

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Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 7/16/2009 4:38 PM (GMT -7)   
I was just wondering if it's normal with lyme and/or co-infections to present with something that may seem like nothing really and then to just progressively (slowly or quickly) get worse and worse.
Did most people follow some kind of decline or did you get terribly sick all at once and just stayed sick?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"

Veteran Member

Date Joined Jun 2007
Total Posts : 849
   Posted 7/16/2009 5:39 PM (GMT -7)   
I personally got terribly sick, like a horrid flu and that is how is started!
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to's about learning how to dance in the rain

james from missouri
Regular Member

Date Joined May 2009
Total Posts : 432
   Posted 7/16/2009 6:04 PM (GMT -7)   
i was cool on a sunday, on monday i was sick, and still haven't recovered..

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 7/16/2009 6:15 PM (GMT -7)   

For me, it started slow. I started off with panic attacks, anxiety and heightened senses. That started in 2003. Every year it seemed I had something new. I started feeling like I had the flu every three months in 2005. Then, it seemed to dissapear for a bit and the next year I'd have something else with the anxiety, flu-like symptoms. The brain fog started too.

In 2007, I was diagnosed with Lyme but I still wasn't as bad off as everyone seemed to be. I didn't know enough about Lyme Disease then, so I blew it off. I guess I was in denial plus I had doctors telling me that there was no Lyme Disease here.

In 2008, I was great! I had a few things going on but I felt better than ever. I went to college and finished with a 3.9. I had to push myself but I could function. Well, everything hit me hard at the end of august of last year. I all of a sudden could barely bend my fingers and the flu-like symptoms came back. It hit me so hard, I was in bed for three months. I got a little better around Christmas but was back down again around February of this year. That's when the body pain hit me. Now, here I am barely able to get off the couch most days. This last year was very progressive but I had been having symptoms since 2003.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/16/2009 7:19:39 PM (GMT-6)

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 7/16/2009 7:31 PM (GMT -7)   
Mine started slowly. One symptom at a time was added over the years. There were times when I felt better and times when I was sicker, but the general trend has been downhill.
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.

Veteran Member

Date Joined Apr 2009
Total Posts : 1013
   Posted 7/16/2009 8:58 PM (GMT -7)   
i started out with a lot of pain, blow my knee then had surgery on it, thought i would be able to walk afterwards. i was so wrong. after 6 wks of PT i was no better off. then i had a lesion in my eye. had a MRI, this is how i found out i had Lyme. then it seemed like everything made since and it all went downhill from there.
still looking for answers.
Remember that advice if free, its your choice what you do with it.  :)

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