Suggestions for regimines for Lyme and Bartonella, no llmd, going it alone

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Beautiful Disaster 28
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/20/2009 11:01 AM (GMT -7)   
I can't afford an llmd, can't afford the travel, can't afford much. However, I have 2 options.

First let me state that I have Lyme and Bartonella, Lyme CDC positive and IGenex positive. My LLMD that I *had* didn't treat my Bart first which I thought was what you were supposed to do. After 28 days of Rocephin, he said that my Lyme was cured and my symptoms must be coming from the Bart because the Lyme is cured (didn't test anything - just said it was cured).

I dropped him just as he rxd Rifampin and Levaquin for Bart which I didn't take because of side effects. I'm willing to try them again but he didn't inform me as to how to take them. Together, pulsing, etc.? I will not take these because I want my blood checked every once in a while to see how my body is handling it.

ANYWAY, first choice is to find a pharmacy that offers abx, I've seen a few but I'm wondering if they are reliable. Does anyone know what I should start with? Should I go ahead and push through the Levaquin if I can and the Rifampin? If so, can someone tell me how to take them?

Second choice is Salt/C but I really need to know exactly how to do this without harming myself.

What about being on some form of abx AND salt C?

The llmd that I was referring to is Dr. C in Tampa. I will not go back for many reasons, enough said.

I don't know if this is relevant, but I was diagnosed with an auto immune disease of my thyroid...I think it's Hashimoto's?

Also, I need an overseas RELIABLE website that I can order these abx from as well as rx pain medication, especially my Xanax or Klonopin that isn't SOOOO expensive. The prices are ridiculous. My insurance is out due to the divorce and don't have any right now.

(I already know what naysayers are going to say about Klonopin and pain medicine, but I have to be out of as much pain possible as I have to chase a 3 year old around all day, and yes, I understand the risks...the benefits outweigh them)

I'll ask some more questions in other threads, be ready to be bored!

Thanks for everything in advance. I feel like I'm out in the big wide ocean without anyone to save me.

P.S I am going to see if there's a way to get labs done to make sure that my body is dealing with abx, but that's more money. I just don't know what to do. :(

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 7/20/2009 11:55 AM (GMT -7)   
Your LLMD and mine are the same.

He starts everyone out on 1 month of Lyme treatment to try and get the load down, then he heads off to treating co's and back to Lyme if required.

I too did the Rifampin/Levaquin at the same time. I had no issues from them during the 6 weeks I was on this combo. Some people do however have an issue with the Levaquin.

Overseas pharmacies are dicey to say the least. For the most part the drugs are of inferior quality or expired. I am not saying ALL are of this way, just the majority.

You have to be very careful when purchasing from these places.
 
Also, no one on this forum is qualified to be able to tell you what combos or MG to take.  Only a licensed Dr. can do that. 


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain

Post Edited (1bitten2xshy) : 7/20/2009 1:11:23 PM (GMT-6)

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