Update on "Monsters Inside Me" show

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KO-LD
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Date Joined Aug 2007
Total Posts : 887
   Posted 7/23/2009 2:50 PM (GMT -7)   
Did any of you get to see this show? 
 
 EPISODE 4 of 6: Masters of Disguise
Premiering Wednesday, July 22, at 9 PM e/p

Parasites are ruthless, single-minded and above all devious. To become the most prolific life forms in the world takes a degree of cunning that others can only marvel at. Meet the most deceptive parasites on the planet, the "Masters of Disguise."

Teenager Mallorie Greiner has Acanthamoeba keratitis, a parasite that's intent on eating her cornea. Doctors are bewildered at first because her symptoms look just like herpes. Runner Rick DiMichele is struck down with a debilitating disease. Initially, doctors think it's cancer, then malaria; eventually, they discover he has a tick-borne disease called Babesiosis. And not until he's staring death in the face do Mohammed Meah's doctors find the real cause of his problem: a parasitic worm called Strongyloides that's been lurking undetected in his small intestine and living off the steroids he was taking to combat his colitis.
 
I think it was the first one Acanthamoeba that they talked about it being able to change into a "cyst" form to evade detection.  Sound familiar? 
 
The second one was on Babesiosis which was why I was watching in the first place, was really interesting.  It mentions on their website that it "CAN" be passed thru blood transfusions and from Mother to baby.  Interesting....
 
The 3rd and last was a parasitic worm called Strongyloides which could go undetected for many years (60?) until the patient was given steroids then it really hit the fan. 
 
Hope you got to see it, if not I'm sure it will re-air.
KO


2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009

Post Edited (KO-LD) : 7/23/2009 9:07:12 PM (GMT-6)


minerals
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Date Joined Jul 2007
Total Posts : 943
   Posted 7/23/2009 5:26 PM (GMT -7)   
I saw the show......It was disappointing to hear them report that it only takes 10 days of antiparasitic meds to "cure" Babesiosis. (Sounds very familiar....(remember 10 days of doxy and Lyme is cured?) I wonder what the update for the man's symptoms are. Babesia treatment for most people takes months and maybe even years to eradicate. Most of the literature says 3 weeks is all it takes. I haven't heard of anyone who was cured in that amount of time. However it was good they at least addressed the co-infection. And definately no one who has babs should ever think of giving blood.

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!


bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 7/23/2009 11:37 PM (GMT -7)   
Thank you for the info. Wish I could have seen it.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/23/2009 11:47 PM (GMT -7)   
I got to see it. It was pretty good but I was upset too about the 10 day treatment. Then the guy said that he felt better right away. When I take Mepron, I run fever. I don't understand how he got better so fast?

Good show overall though.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 7/24/2009 12:24 AM (GMT -7)   
CG, its TV they have to have a end, not hanging like the ones here do as a fact. maybe everyone here who has Babesiosis, who wright to animal planet, to give them the true facts of the disease. JMHO


   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/24/2009 12:45 AM (GMT -7)   
Yeah, I know it's TV. I just wish they would lean more to the facts of this disease. I enjoyed watching it though.

I wondered the whole time if he was tested for Lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 7/24/2009 7:40 AM (GMT -7)   
I thought Babesiosis was considered an emerging disease.  How do they know so much about it like that it can be transmitted thru a blood transfusion and also from Mother to unborn child if it is?  They still deny that LD can be spread these two ways.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 7/24/2009 7:49 AM (GMT -7)   
How do they know so much about something I've never even heard of?  Like
Acanthamoeba that changes into a "cyst" form to evade detection, I thought that was one of the things they doubted about LD.  Babesiosis "CAN" be passed thru blood transfusions and from Mother to baby something else the critics don't believe.  Strongyloides which can go undetected for many years only to go into hyperdrive when the patient was given steroids something else I don't think they believe about LD.
KO 
 

2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/24/2009 11:22 AM (GMT -7)   
CG that's so funny...the whole time sitting there I kept saying to my mom...they MUST have tested him for Lyme...but Lyme wasn't mentioned even once I don't think!

Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"Breathe. Let Go. And remind yourself that this very moment is the only one you know you have for sure."


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/24/2009 8:00 PM (GMT -7)   
Jen,

I know! I hope the poor man doesn't suffer later on with it.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Razzle
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Date Joined Aug 2007
Total Posts : 4399
   Posted 7/26/2009 12:16 AM (GMT -7)   
I didn't see the show but my Mom was telling me about it. If the guy with Babs had an acute infection, 10 days may be sufficient to put it into remission. And if he was treated for Malaria, maybe that helped...aren't anti-malarials used by some on this board for Babs? Just a thought...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/26/2009 12:23 AM (GMT -7)   
Razzle,

Yes, anti-malarials are used for Babs but from everything I have read, it seems very hard to get rid of. The medicine usually has to be taken for over 6 months or longer.

Maybe his was caught early like you said.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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