Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Endo appt this week- any tips?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
MarriedtoLymeinNJ
Regular Member
Joined : Sep 2007
Posts : 273
Posted 7/26/2009 10:00 AM (GMT -6)
I finally getting referred to an endocrinologist.
My thyroid levels have been coming up low for a while now.
I also have been experiencing hypoglycemic episodes. I have osteopenia, diagnosed when I was 36.
And my menstrual cycle has been out of whack for as long as I can remember. (This shell be an interesting appt!)

Anyway, I feel that Lyme has a part in all of this. I don't know how Lyme friendly the endo is.

DO any of you have good tips on how to get the most out of this appt?

TIA!
profile picture
1bitten2xshy
Veteran Member
Joined : Jun 2007
Posts : 849
Posted 7/26/2009 10:35 AM (GMT -6)
Whew this is almost as tough as finding a LLMD. A good Endo is so hard to come by!

Alot of us Lymies have Hashi's which is also an autoimmune disease.

Try and get this Endo to test not just TSH, but you need FT4 and FT3. Also, if you can get him/her to test for antibodies that would be superb!

A good Endo will also check Vit D levels, iron and B-12 too!

I do not know even if I would bring too much about Lyme up, where you do not know if this Endo is "Lyme friendly".
profile picture
Dowa
Veteran Member
Joined : Sep 2008
Posts : 1120
Posted 7/26/2009 11:38 AM (GMT -6)
From my one experience with an endo. I would NOT tell him you have Lyme and just let him figure out what is going on. I made the mistake of telling my endo. there was a possible Lyme diag. and he blamed everything on that and did very little testing. So, I would not bring it up so there is not chance of that happening.  Let him do all the testing and if eveything is normal you will know that LD is messing with your hormones, etc.  Just my 2 cents..   D

profile picture
MarriedtoLymeinNJ
Regular Member
Joined : Sep 2007
Posts : 273
Posted 7/27/2009 2:08 PM (GMT -6)
Thanks for the advice... quick ? for y'all....
I have the paper work with my medical history to fill out- you think I should leave "Other illness" (where I would put in Lyme) blank?
And what about my list of meds I am taking?
Its pretty dang long.... :)

Not sure if I should include that or not.
profile picture
1bitten2xshy
Veteran Member
Joined : Jun 2007
Posts : 849
Posted 7/27/2009 2:14 PM (GMT -6)
Eeekkss...well it is important for the Dr. to know what types of abx you are on. I guess I would list the abx and leave medical history (lyme) out of it.

I know they will ask you about the abx when they see it, and at that point I you would just have to briefly say you are being treated for Lyme.
profile picture
MarriedtoLymeinNJ
Regular Member
Joined : Sep 2007
Posts : 273
Posted 7/27/2009 2:45 PM (GMT -6)
That is exactly it! I got the lecture on abx from a dentist last month... ugh!
better safe than sorry, I guess, with the meds. We'll see how I do with the Lyme
profile picture
ticker
Veteran Member
Joined : Feb 2003
Posts : 9208
Posted 7/28/2009 5:50 AM (GMT -6)

Hi marriedtoLymeinNJ.  I am on my way out. but I wanted to quickly respond to your post. 

It is important to have the Free T3, Free T4 (besides the T3 and T4) and thyroid antibody tests done.  These are blood tests.  Many doctors do not run these and put too miuch emphasis on the TSH.   In my experience, seeing an endo for thyroid is the equivalent of seeing an infectious disease doctor for Lyme.  I have had more help from a general pracititioner.  Hopefully the endo you see will be a good one.  But if he/she is not, I can give you some suggestions.

Good luck!

 

✚ New Topic ✚ Reply

More On Lyme Disease

10 Steps For Healing Well With Chronic Illness

10 Steps For Healing Well With Chronic Illness

The Low-Down On Lyme Disease

The Low-Down On Lyme Disease


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
YouTube Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.