Endo appt this week- any tips?

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MarriedtoLymeinNJ
Regular Member


Date Joined Sep 2007
Total Posts : 273
   Posted 7/26/2009 9:00 AM (GMT -7)   
I finally getting referred to an endocrinologist.
My thyroid levels have been coming up low for a while now.
I also have been experiencing hypoglycemic episodes. I have osteopenia, diagnosed when I was 36.
And my menstrual cycle has been out of whack for as long as I can remember. (This shell be an interesting appt!)

Anyway, I feel that Lyme has a part in all of this. I don't know how Lyme friendly the endo is.

DO any of you have good tips on how to get the most out of this appt?

TIA!
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/


1bitten2xshy
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Date Joined Jun 2007
Total Posts : 849
   Posted 7/26/2009 9:35 AM (GMT -7)   
Whew this is almost as tough as finding a LLMD. A good Endo is so hard to come by!

Alot of us Lymies have Hashi's which is also an autoimmune disease.

Try and get this Endo to test not just TSH, but you need FT4 and FT3. Also, if you can get him/her to test for antibodies that would be superb!

A good Endo will also check Vit D levels, iron and B-12 too!

I do not know even if I would bring too much about Lyme up, where you do not know if this Endo is "Lyme friendly".


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain

Post Edited (1bitten2xshy) : 7/26/2009 11:45:33 AM (GMT-6)


Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 7/26/2009 10:38 AM (GMT -7)   
From my one experience with an endo. I would NOT tell him you have Lyme and just let him figure out what is going on. I made the mistake of telling my endo. there was a possible Lyme diag. and he blamed everything on that and did very little testing. So, I would not bring it up so there is not chance of that happening.  Let him do all the testing and if eveything is normal you will know that LD is messing with your hormones, etc.  Just my 2 cents..   D

MarriedtoLymeinNJ
Regular Member


Date Joined Sep 2007
Total Posts : 273
   Posted 7/27/2009 1:08 PM (GMT -7)   
Thanks for the advice... quick ? for y'all....
I have the paper work with my medical history to fill out- you think I should leave "Other illness" (where I would put in Lyme) blank?
And what about my list of meds I am taking?
Its pretty dang long.... :)

Not sure if I should include that or not.
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/


1bitten2xshy
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Date Joined Jun 2007
Total Posts : 849
   Posted 7/27/2009 1:14 PM (GMT -7)   
Eeekkss...well it is important for the Dr. to know what types of abx you are on. I guess I would list the abx and leave medical history (lyme) out of it.

I know they will ask you about the abx when they see it, and at that point I you would just have to briefly say you are being treated for Lyme.
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


MarriedtoLymeinNJ
Regular Member


Date Joined Sep 2007
Total Posts : 273
   Posted 7/27/2009 1:45 PM (GMT -7)   
That is exactly it! I got the lecture on abx from a dentist last month... ugh!
better safe than sorry, I guess, with the meds. We'll see how I do with the Lyme
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/28/2009 4:50 AM (GMT -7)   

Hi marriedtoLymeinNJ.  I am on my way out. but I wanted to quickly respond to your post. 

It is important to have the Free T3, Free T4 (besides the T3 and T4) and thyroid antibody tests done.  These are blood tests.  Many doctors do not run these and put too miuch emphasis on the TSH.   In my experience, seeing an endo for thyroid is the equivalent of seeing an infectious disease doctor for Lyme.  I have had more help from a general pracititioner.  Hopefully the endo you see will be a good one.  But if he/she is not, I can give you some suggestions.

Good luck!

 
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