Pyrroluria,lyme ,chronic illness

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loveandlight1111
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/26/2009 3:56 PM (GMT -7)   
Hi everyone,I just joined. Is anyone here doing Pyrroluria treatment ? I tested positive about 3 mo ago. Makes so much sense why I have only gotten worse instead of better with lyme and co's treatments. Dr K says 80% of people with lyme have this,and 10% of normals. Here is an article my Md wrote about it. http:/drrandy.org/article.html You can also do a search on Lymenet,search Pyrroluria,KPU or Krypto pyrroluria. Protocal is hard as the body starts dumping stored heavy metals and toxins. I wish I would have know about this yrs ago. I maybe would have my life back now.

Post Edited By Moderator (CajunGrl) : 7/28/2009 3:39:47 AM (GMT-6)


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/26/2009 4:22 PM (GMT -7)   
Love -- I have skimmed over this, and oh my God it is overwhelming! I am saving this to go over piecemeal, as I'm able, because the truth seems to be ringing here. I want to share the last paragraph, pasted below:

'All of us as practitioners have to start looking beyond antibiotics for help and for hope. The microbes have always been with us. They are not the enemy. It is us who have altered the environment so severely and in a way which facilitates the growth of lower evolved species like cell wall deficient microbes and viruses - and ends the life for many more evolved species. Extinction may be forever.

Lyme disease is a messenger. If we don’t change, we may be on the endangered species list someday not too far from now.'
 


bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 7/27/2009 3:16 PM (GMT -7)   
Hi Love, Welcome to the forum! Your post is interesting to me and I am going to try and find the time to read all the stuff in the website you posted! Thank you for posting it! I may want to "talk" to you later about it all. I think my doctor is sort of near yours and I forwarded the website address to him to see if our docs know each other. This may prove to be useful info for my family. Thanks again, bablymers mom
P.S. Is HW the best way to contact you, or do you have a private email I can use? My email is listed by my user name.

loveandlight1111
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/27/2009 9:21 PM (GMT -7)   
Hi bablymers ,Thanks for the welcome. You can write me at loveandlight1111@yahoo.com . Curious who your Md is. I am so glad I posted this here as I think it may help lots of people. I am trying to get the word out on all the lyme groups.Not sure if I am doing the forum right as I do not see my reply to +lyme. Lyme brain here LOL Joyce

Post Edited By Moderator (CajunGrl) : 7/28/2009 1:39:09 AM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 12:41 AM (GMT -7)   
Hey Love,

I fixed the link and email you posted so that members can now just click on it. I wanted to let you know in case you were wondering why your post was edited.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/28/2009 12:51 AM (GMT -7)   
CG when you fixed it you left some of it out. it wont work. oops
i copied it and here it is.  http://drrandy.org/article.html  i had it open to look over and glad i did.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 1:16 AM (GMT -7)   
Hmmm, it's opening for me. I will add in the http://
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 1:19 AM (GMT -7)   
When I tried to edit it again, the http:// is showing. It's still opening for me when I click on it. Are you using a different browser maybe?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/28/2009 1:59 AM (GMT -7)   
when you fixed the link you left off the d its drrandy and u have it as rrandy no d. lol
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 2:42 AM (GMT -7)   
RD,

It's the code messing up the link. I didn't leave the "d" out. When I go back in to fix it, the whole link is there including the "d". I don't know why it's messing up when I put the code. I put it back like it was.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


loveandlight1111
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/28/2009 11:02 AM (GMT -7)   
Thanks everyone. I am not puter lit and with foggy brain and confusion,all this is a mystery to me. lol Joyce PS I like that saying that is posted.You never know how STRONG you are...until being STRONG is the only choice you have Life and dealing with Lyme and co teaches that.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 11:11 AM (GMT -7)   
Hey love,

LOL, I went round and round trying to fix that link. It's in RD's post so if anyone is interested, they can click there.

Thanks, I like the quote too. It is so true too, especially when dealing with this disease.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


loveandlight1111
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/28/2009 1:25 PM (GMT -7)   
CajunGrl, Thanks for taking your time and energy to change it. My Md will probably be writing a book on Pyrroluria as he is following many of us doing the protocal. He will write it in simple language so all can read it.Not everyone comes up positive with the urine test and still have the problem. There is more info in Depression Free Naturally by Joan Mathews Larson Ph.d its not all about depression but can be part of it.,also in the latest Townsend Letter, and Explore mag from Canada I think. Have a beautiful Love and light filled day Joyce

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 7/29/2009 4:36 AM (GMT -7)   
Hi Joyce! Thanks for the email address. I will write you as soon as I get a chance.
Blessings to you, bablymers mom
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