Looking for TN LLMD

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Beka
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/26/2009 6:15 PM (GMT -7)   
Hi guys, I am new here.  I was just diagnosed a week ago with Lyme's and my doctor put me on a 10 day cycle of doxy.  I fear that I have had this for years.
 
Does anyone know of an LLMD in the middle TN area?
 
Thanks in advance for the help.
 

rcenters
Regular Member


Date Joined Oct 2007
Total Posts : 259
   Posted 7/26/2009 6:24 PM (GMT -7)   
I was never able to find one near here(East TN for me), fortunately for me, I'm not so sick that I require antibiotics or anything at the present time.   However, there are others here who will likely also respond to your post that are in touch with who is out there and if something has surfaced they would know.
 
I was infected in New Jersey, though.  How about you?

Beka
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/26/2009 6:31 PM (GMT -7)   
I was infected here in TN, we think. I just returned from 6 months in Oklahoma, which is high there.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/26/2009 6:35 PM (GMT -7)   

Hi Beka, welcome to the board!

What dose of Doxy are you taking?  Ten days is not long enough treatment.   From what I understand, six weeks of the proper dose antibiotic is the minimum treatment for an infection caught within two weeks of the bite.  The antibiotics kill the bacteria when they are reproducing which is estimated at four weeks.  Six weeks of treatment will cover one growth cycle in a new infection.  If symptoms are still present, further treatment is warranted.  A longer infection needs longer treatment.  If you have been infected for years, you need much longer treatment.

Below is a Lyme symptom list.  You can have any combination of symptoms.  
 
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
 

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  Have you been tested for these?

If you need a doctor recommendation, you can email me at ko_@bellsouth.net

There are some important tips to know about taking Doxy.   Do not have any dairy, magnesium, or iron products within two hours of taking it or it will not be absorbed properly.  If it makes you nauseous, eat something substantial and non-dairy before taking it.  Avoid the sun.  You can get a severe burn in minutes even when wearing sunscreen.  Do not lay down for at least an hour after taking it, or you can ulcerate your esophagus.  This is very painful.  Drink a full glass of water when you take it for the same reason.  Whenever you are on antibiotics, it is important to take high-quality acidophilus.  They replace the good bacteria and help prevent yeast overgrowth.  The best kind to get are refrigerated and have a high culture count.

Are you aware of the Jarisch-Herxheimer Reaction (herx)?  Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones.  When the antibiotics kill the bacteria, toxins are released making them feel worse.  It can be scary, but it is a good sign the antibiotics are working.  During treatment it is a good idea to document your symptoms daily.    One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10.  Over time when you review this, you can see when your herxes occur and how you are responding to the meds

It is also important to learn as much as possible.   I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne lllnesses  at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.   He discusses antibiotics and doses starting on page 18.   I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/26/2009 11:28 PM (GMT -7)   
Beka

when i sent in a request from the turn the conner site for Al. & Tn. for a LLMD. they onyl had 1 for each state. of you on the west side of nashville. you may want to check into the LLMD in mephis. it is the only one in Tn. that i know of.

my daughter has a family bember on her fathers side who is married to someone with lyme. but as of yet i do not know who they see for treatment. they are also in the south middle part of Tn.

i will ask her to find this info for me to pass 2 you. when i talk to her tomorrow.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/27/2009 1:03 AM (GMT -7)   
Hi Beka,

Welcome to the forum! You may find this information helpful as well.

You should post your email so that members can tell you the contact info privately. You can email: stephanie@turnthecorner.org to find a Lyme Literate Doctor in your area. You can also go to: www.turnthecorner.org/bod.htm and ask for further sugestions.  

For more info, please read the topic at the top of the first page of this forum tittled "The Basics, Newbies check this out". It will help you get started learning about lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/27/2009 7:57 AM (GMT -7)   
Rotten Dog: Can I email you and get that name for the LLMD in TN????PLEASE????? amey

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/27/2009 12:42 PM (GMT -7)   
sure you can i think i still have the email with the name and number saved. email me and i will forward the info to you.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


Beka
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/27/2009 1:15 PM (GMT -7)   
Thanks for the info.  RD - if you wouldn't mind, please pass that info along to me.
 
I am on 100 mg 2x a day of the doxy.  about the herx...YES.  My pain has gotten worse, to the point of it being hard to walk because my knees and heels are killing me.
 
 

Beka
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/27/2009 1:16 PM (GMT -7)   
also, please disregard my short replies...my keyboard is going out and it's a pain to type smilewinkgrin

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/27/2009 9:38 PM (GMT -7)   
Beka
i would love to pass the info to you, but as you don't have this option open yet, you will need to email me first. then i can return it to you. just click on the envelope under my nic. to the left
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)

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