Uh oh! Went off antibiotics and now paying the price...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

vicparis
Regular Member


Date Joined Jul 2009
Total Posts : 113
   Posted 7/27/2009 11:26 AM (GMT -7)   
I'll be honest and admit that I had to move my office (by myself), had company coming, excuses, more excuses - so I went off antibiotics so I'd feel okay. I felt pretty good for the first two weeks - then BAM!!! All symptoms came back - especially the short-term memory loss, i.e. "what's the word for that? oh yeah, it's a fork." I thought I was having little strokes - the entire right side of my body was numb and the left hurt.
 
I've always followed the advice of my LLMD and now will continue to do so. I found liquid Mepron made my heart beat really fast and made me uncomfortable, so I'm on three different medications now.
 
When the heck is this going to end? I know no one really knows - but heck, I am so tired of being tired.
 
I am really glad I discovered this board and guess I should introduce myself - my name is Victoria and I was diagnosed 3.5 years ago. I remember pulling a tick off myself in the late 70's and then getting really sick, so I've had this for quite some time. I was tested by Igenix, but for the life of me can't make heads or tales out of the results. Hopefully I'll remember where I put the results confused
 
I hope this post isn't too long.
 
Victoria
 

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/27/2009 11:54 AM (GMT -7)   
Hi Victoria,

Welcome to the board! And no- your post isn't too long! Have you gone back on antibiotics? Have your symptoms improved since then?

It is a long process, but always remember that there is light at the end of the tunnel!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/27/2009 11:58 AM (GMT -7)   
Hi Victoria,

Welcome to the board hun! If you need any information let me know:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


vicparis
Regular Member


Date Joined Jul 2009
Total Posts : 113
   Posted 7/27/2009 12:30 PM (GMT -7)   
Thanks for the nice welcome. Yes, I've gone back on antibiotics and I'm starting to notice a difference in how I feel. I've taken a lot of different antibiotics, but one of the current ones leaves a really bitter taste in my mouth - comes on about an hour after I've taken my meds and lasts hours.

I wish I could find a general practitioner who wouldn't bite my head off for taking antibiotics long-term. I don't need anyone to treat my Lyme, I already someone for that. I need a doctor for things like high blood pressure, etc.

Victoria

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 7/27/2009 12:45 PM (GMT -7)   
Hey Victoria,
This place is great for support and you have come to the right place. So many are in your shoes with the abx.
I too did them heavily and when I would go off of them it would all come back. Harder and harder each time.

I got all of my support on this forum. At least you have many who can understand what you are going through. And the best Dr.s are the ones that have lyme too.

What you do need is a Dr. who would only be interested in building your immune system back up. That is the worst thing about lyme is that is ruins your own bodies defense. And then all of the symptoms that appear read like one good book on auto immubne disease. If you can find one then you will see that you have all of the auto immune diseases in the whole book.

The abx can do brain damage and put you in a bad fog....it did for me. I forgot how to drive one day, and could not finish a sentence.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 7/27/2009 12:46 PM (GMT -7)   
They call that relapse.
I never understood that before. So I would go back on the abx....and then again and again.
One cannot live on abx. Because it is not good for the immune system or the body or the brain.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/27/2009 1:17 PM (GMT -7)   
Vicparis,
Antibiotics saved my life. I too have had Lyme a long time since the 80's that I know of. Just started treated 2 1/2 years ago.

Martha's vinyard is correct about the key of being able to build your immune system up. It is our immune system that heals our bodies not antibiotics..However one's immune system cannot do that easily until some serious bacteria is killed. Many times herbals don't do it especially when Lyme has had years to get deeply into your body. It will be a slow process but you can do it. I was very sick 3 years ago, dragged my entire left side and had headaches that would cause one to want to rip the head off. After seeing no less than 32 doctors who took insurance I finally got a LLMD and paid out of pocket-best thing I ever did.

Luckily unless herxing in the beginning the antibiotics have always allowed me to function well enough to do everyday things that I needed to do. I have been able to maintain my own practice and have even installed marble floors while on IV! My goal is to get off oral meds and take only herbals to maintain wellness. I think I can try that again soon now that my thyroid is under better control. We will see. It is a crap-shoot.

Have you had your thyroid tested with the proper tests-not just the typical thyroid panel?
Have you been tested and or treated for co-infections????VERY IMPORTANT in order to get Lyme into remission.

Welcome to the board.

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 14, 2017 5:55 PM (GMT -7)
There are a total of 2,905,560 posts in 318,871 threads.
View Active Threads


Who's Online
This forum has 158223 registered members. Please welcome our newest member, samanthaelizabeth.
412 Guest(s), 8 Registered Member(s) are currently online.  Details
imagardener2, PeppermintTea, Michael_T, n2braves, Serenity Now, jgedlttlpill, RobLee, straydog