I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about
10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.