Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

when to stop abx

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Lovelabs
Regular Member
Joined : Jun 2009
Posts : 367
Posted 7/29/2009 7:31 AM (GMT -6)
I am assuming people do stop when they are not 100%. I am not there yet and don't even expect to be. Is there a point when you just stop and see how well you can fight it on your own? I am 8 months into treatment and know that I will have to face the reality of stopping at some point. I actually could throw up thinking about it. I really depend on my doctor and the thought of going it alone at some point really scares me. Any of you think about this, or have done it? I know they say the relapse rate is so high. Do we ever just go on without our doc? I think for some reason I am getting scared about that possibility. Maybe it is the new meds making me emotional.
profile picture
minerals
Veteran Member
Joined : Jul 2007
Posts : 943
Posted 7/29/2009 9:10 AM (GMT -6)
That is the million dollar question many of us have that are on meds. When can we stop.

I have been on abx for 2 1/2 years now including IV for 4 months. There are a few times that I thought I was well enough to see where I was at and weaned off only to find within a few weeks that the symptoms came back. So I go like a dog with her tail between her legs running back to the meds.

My LLMD says that when I am 80% better for a few months then I can try it again. However I think one needs to take herbs and suppliments while off meds to ensure wellness.

However, Lately I have found that many of my symptoms were from not enough thyroid meds--so maybe I will try to go off again after I see my llmd at the end of August. Most days since upping my thyroid meds I feel 80% good. But am I terrified to go it alone??????
You Betcha!
profile picture
Lovelabs
Regular Member
Joined : Jun 2009
Posts : 367
Posted 7/29/2009 11:24 AM (GMT -6)
I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.
profile picture
minerals
Veteran Member
Joined : Jul 2007
Posts : 943
Posted 7/29/2009 6:06 PM (GMT -6)
I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.

Blessings

profile picture
CajunGrl
Veteran Member
Joined : Mar 2009
Posts : 4717
Posted 7/29/2009 8:44 PM (GMT -6)
Minerals and Lovelabs,

Why do you both have the exact same post?
profile picture
Lovelabs
Regular Member
Joined : Jun 2009
Posts : 367
Posted 7/29/2009 9:29 PM (GMT -6)
I don't know what happened. I just posted it once. Weird huh?
profile picture
CajunGrl
Veteran Member
Joined : Mar 2009
Posts : 4717
Posted 7/29/2009 9:44 PM (GMT -6)
Very weird, lol. Maybe Minerals was trying to copy and paste your post to reply?
✚ New Topic ✚ Reply

More On Lyme Disease

The Low-Down On Lyme Disease

The Low-Down On Lyme Disease

Painsomnia:  Getting A Good Night Sleep With Chronic Pain

Painsomnia: Getting A Good Night Sleep With Chronic Pain


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
YouTube Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.