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when to stop abx

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Posted 7/29/2009 7:31 AM (GMT -6)
I am assuming people do stop when they are not 100%. I am not there yet and don't even expect to be. Is there a point when you just stop and see how well you can fight it on your own? I am 8 months into treatment and know that I will have to face the reality of stopping at some point. I actually could throw up thinking about it. I really depend on my doctor and the thought of going it alone at some point really scares me. Any of you think about this, or have done it? I know they say the relapse rate is so high. Do we ever just go on without our doc? I think for some reason I am getting scared about that possibility. Maybe it is the new meds making me emotional.
Posted 7/29/2009 9:10 AM (GMT -6)
That is the million dollar question many of us have that are on meds. When can we stop.

I have been on abx for 2 1/2 years now including IV for 4 months. There are a few times that I thought I was well enough to see where I was at and weaned off only to find within a few weeks that the symptoms came back. So I go like a dog with her tail between her legs running back to the meds.

My LLMD says that when I am 80% better for a few months then I can try it again. However I think one needs to take herbs and suppliments while off meds to ensure wellness.

However, Lately I have found that many of my symptoms were from not enough thyroid meds--so maybe I will try to go off again after I see my llmd at the end of August. Most days since upping my thyroid meds I feel 80% good. But am I terrified to go it alone??????
You Betcha!
Posted 7/29/2009 11:24 AM (GMT -6)
I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.
Posted 7/29/2009 6:06 PM (GMT -6)
I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.

Blessings

Posted 7/29/2009 8:44 PM (GMT -6)
Minerals and Lovelabs,

Why do you both have the exact same post?
Posted 7/29/2009 9:29 PM (GMT -6)
I don't know what happened. I just posted it once. Weird huh?
Posted 7/29/2009 9:44 PM (GMT -6)
Very weird, lol. Maybe Minerals was trying to copy and paste your post to reply?
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