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Knees shaking?

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Posted 7/31/2009 7:27 AM (GMT -7)
Started new meds. I am getting kicked in the butt from them.

Anyones knees shake? New symptom for me. I actually need to hold the rail coming down the steps.crazy,scary.
Posted 7/31/2009 7:53 AM (GMT -7)
Lovelabs,

My knees didn't shake but my arms did and it was pretty scary. Be extra careful when your going up or down stairs and let your LLMD know.
Posted 7/31/2009 7:54 AM (GMT -7)
Lovelabs, that does sound scary. I don't have it, but since you mentioned walking down the stairs, I could make some guesses. :) (totally uneducated ones, though)

It could just be that this med has aggravated/caused muscle weakness. When I try to walk too much, I get shaky from tired muscles- and the first, and worst, place it happens is my knees. It is especially bad going down stairs, because youre knees need to be quite strong to support you as you go down.

Still scary, but IMO, not as scary as unexplained shaking.

Hopefully this ends soon!
Posted 7/31/2009 8:02 AM (GMT -7)
Thanks, me too
Posted 7/31/2009 10:47 AM (GMT -7)
i have had the shaking knees for almost 2 yrs now. some days it is so bad i feel as thought they are made of jello, and some times it as though my hole legs are jello. this happened for me long b4 i know anything about lyme or on any meds.

scary very much so, if you have a LLMD let them know whats going on and i pray it passes for you soon.
Posted 7/31/2009 10:52 AM (GMT -7)
Do you think it is just part of a herx or that serious to call him? I see him in a few weeks again. Not happy you have had it but glad I am not alone. I actually feel a little wobbly. Kind of like I am hung over and drank too much coffee. Which so did not happen. My teeth are vibrating too. I'm a wreck.
Posted 7/31/2009 10:59 AM (GMT -7)
if it was me i would put in a call to your Dr. it cant hurt. but it may be of consern to him/her. it can be from any number of things. when it first started with me. it was due to blowing out my knee. i had serguery on it then after 6 wks of PT i was no better off. none of my DR. could find out why this was the case.

then about 3 months ago i found out i had lyme, and now it all makes since to me, but still no help from my Drs. as they do not know or understand lyme were i live :(
Posted 7/31/2009 12:03 PM (GMT -7)
You have no doctor there who understands Lyme? What state are you in? There has to be someone close, no? That just breaks my heart. People who don't have this have no idea how lucky they are. Or how much hell Lyme patients go through. I hate to hear you have no one. I wish I could help.
Posted 7/31/2009 12:20 PM (GMT -7)
Lovelabs
thank you so much for your concerns. i wish everyone could see a Dr who knows and understands lyme. so far in all my research the closest one i can find is around 700 miles away, and the only one i have been able to talk to said i need IV treatment and he doesn't do that. so i am still no closer to help then the day i found out i had lyme. i live in the panhandle of Tx.

if it wasn't for the great folks in this forum, who have given me some great advice as to Vits i wouldn't be doing as well as i am right now. but i know its a matter of time b4 i am not gonna be well at all. or have the mind to think with. to fight this battle with Drs for treatment. this is what scares me the most.
Posted 7/31/2009 2:31 PM (GMT -7)
RD,
I wish I could put my LLMD on a plane and come help you. Although I have been in treatment with him for 8 months and as you can tell from my post I am still having a hard time. I think they do all they can but sometimes that is not enough. Are there any ND's near you? I saw one here while waiting for my doctor appt and he did give me some natural antibiotics as well as some good detoxing advice. Would you ever think of coming East to get help?
Posted 7/31/2009 3:30 PM (GMT -7)
i have thought about it many times, and wish i could come up with the money to go to a LLMD. but for now i am not able to go anywhere do to lack of funding. i have wished prayed and anything else one can think of that a LLMD would showup close to me. i do know there are others close to me who have lyme, but can not find out who they go to for treatment.
Posted 7/31/2009 5:22 PM (GMT -7)
I know sometimes churches can help out. I have heard of this, didn't know if you belonged to one. I read an article about a man who had Lyme and had to come here in the East for treatment, and his parish funded the appt and the flight. You see, I would be a perfect person to win the lottery. I have said for 2 years now since having this if I won, I would donate so much for Lyme research(to the right doctors of course), and set some form of account up at my LLMD's office that would pay for treatment for people who couldn't afford it. Flights, appts, meds
whatever is needed. RD if I ever have that lucky ticket...you will be first on my list. Hang in there.
Posted 7/31/2009 9:37 PM (GMT -7)
LoveLabs, how odd it is that so many with lyme think as you do about winning the lotto. me and scorpio have both said the same thing. i would set up a trust for lymies who like my self can not work therefore can not hunt down and travel for treatment.

as of right now i am supposed to be on 6 different meds, but the county program i am on only cover for me to have 3 scripts a month. so i picked the 3 that are over 100 bucks and the others if i can afford them i by whats OTC. close to the same stuff.

as for the Church thing, i have not been to one here. as i got sick right after moving to Tx 3 yrs ago. compounded with other reasons i will not go into here. i am sad to sat i do not go. it does not change how i feel in my heart tho. so i do not feel comfortable asking for help from the community i left so long ago.
Posted 8/1/2009 4:17 AM (GMT -7)
that wouldn't be a reason I wouldn't ask. You see, my feeling is you don't need to sit in church every Sunday to be considered a good person. It is what you do with your life outside of church that matters. It is the way you choose to live your life, not necessarily saying sitting in church every Sunday will make you better. I know a lot of people who would never miss mass, one in particular that is so mean to people, makes fun of people, and the list goes on. So don't beat yourself up about that. I do think there are probably many very giving people in your community. People help because they want to. Just as we would do if we had a means of doing so. I would reach out, you never know it may surprise you. And in the mean time don't beat yourself up. You are going through a lot and need to concentrate on you, not about your participation in church. I am keeping you in my thoughts for better days ahead. I believe you will get there, try to stay strong ok?
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