Low-dose naltrexone

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BigRed
Regular Member


Date Joined Aug 2005
Total Posts : 66
   Posted 7/31/2009 10:14 AM (GMT -7)   
Hi Everybody:
 
Has anyone tried low-dose naltrexone for lyme?  I started it about two weeks ago.  It has worked miracle for MS and other auto-immune diseases and it is cheap.  i would love to hear  from anyone who has been on it for a while.  i will keep you posted as to my progress.
 
Big Red  

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 7/31/2009 11:50 AM (GMT -7)   
Hi Big Red,

I have seen people post here in the past that they used ldn and liked it. Thought it helped. I met a man in a doctor's office that said he uses it and thinks its good. He said I should try it. I will have to try and remember to ask my doc about it. Please let us know what you think about it as you continue to use it.
Best wishes. bablymers mom

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/31/2009 8:32 PM (GMT -7)   
I've been on LDN for 3 years now and I have just gotten worse and worse...I don't know what to think about it anymore...I was taking it because I thought I had MS and I got a doctor to prescribe it for me since it can't harm you if you DON'T have MS...but now I'm concerned that it's just not working at all.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"Breathe. Let Go. And remind yourself that this very moment is the only one you know you have for sure."
 

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/1/2009 7:37 AM (GMT -7)   
BigRed, I am very interested in LDN. I asked my LLMD about it on the first visit and gave him printed info about it.  Next appt, I mentioned it again and he had not even read the info, nor did he offer to find out how to prescribe, but did prescribe a bunch of other stuff.  Needless to say, I am not impressed. 
 
I am very anxious to hear about your experience with it!
 
I am sorry to hear that Jendays has had such poor experience with it. Jen, I wonder if your dose is correct?  what does your Dr say about your lack of progress and worsening illness?
 
Everything I've read about it offers a lot of promise -- from AIDS to cancer.  I'm gonna have to find a Dr who will look at this!
 


sickof lyme
Regular Member


Date Joined Aug 2008
Total Posts : 110
   Posted 8/1/2009 7:40 AM (GMT -7)   
I just had my alternative doctor suggest it,I probably will try it soon,let you know how it goes!

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 8/1/2009 9:34 AM (GMT -7)   
I worked my way up to the 4.5mg...the only thing I believe the LDN did is lessen my allergies, which is good. Some doctors first suggested taking LDN for three weeks and then a one week break, but a lot of patients who were benefitting did not want to take this chance, since LDN only stays in the system about 18 hours and symptoms can return after missing just one dose. So, because of this suggestion...it could mean that the body just becomes used to what the LDN does, as it would get used to any drug causing chemical production over a long period of time.

I really have no idea if it did work for me, since I tried all doses starting with .5mg for one week at a time and escalating by .5mg each week until I reached 4.5.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"Breathe. Let Go. And remind yourself that this very moment is the only one you know you have for sure."
 
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