wondering about a few things...

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Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 8/1/2009 11:00 AM (GMT -7)   
Hi All,
I have used the search feature her & did not find anything to shed any light on a few weird sx.

I have recently been under quite a bit of stress, & when I finally made it home, I drank a whole bunch of water (3 -4 quarts daily) with lemon juice. Then two days in a row, the inside of my mouth, right in front of my bottom teeth, peeled a large area of skin - anyone have any ideas?

I'm not under the care of a LLMD, as mine recently passed away (Dr. M. in Mo.). I don't think I will be able to see another one for quite a while, as they are all 5 - 7 hr drives just to get there!! Then I have to drive back shakehead
Not something I can do any more.

Another thing is persistent tendonitis. Anyone know anything about this & possible connection with TBI's?

Before my LLMD passed away, he had put me on a large dose of mino - 100 mg 2x/day. Would that have been a tx for co's? He dxed me with Masters' Disease (AKA STARI), & lately I test pos. for RMSF & LD.

My current doc is Lyme friendly only, but he recently (maybe 2 months ago) dxed me with chronic LD. HE also is willing to read most anything I bring to him about LD. Although, I will be 'on my own' for figuring out any tx.

Anyway, anyone have even any suggestions?

Thanks in advance~
Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/1/2009 11:25 AM (GMT -7)   
Travler, bless your heart. I don't know anything about your meds, but did quite a bit of reading on Cipro and drugs of this class because of my father. It is known to cause tendonitis. And if you took it in the past, but stopped, the side effects would not necessarily have gone away --- damage that was done is usually permanent.

I want to talk to you more, as we're able, as we'll be in a bit of the same boat for awhile (lack of LLMD), and you are so knowledgeable!

I have more questions to post, plus trying to clean up. My kids are feeling sorry for me and taking me out for dinner -- LLMD one day and car theft the next. I am ready for some MEAT.

But I will try to keep up w/ your posts as I'm able, OK?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression.
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19,, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 8/1/2009 6:01 PM (GMT -7)   
Hi +Lyme,
I am not sure where you got the idea that I was quite knowledgeable!!! I still have waaay too many unanswered questions. But thank you for that compliment.
I have been trying to learn everything I can about TBI's for the last 10 yrs. Although communicating it has become harder & harder. =(
I have never had Cipro. For some reason I am still able to remember what abx I have taken - good thing too as I am VERY allergic to Penn. Keflex has not a choice for me either, as I react badly.

The only abx I have had in the last 10 years has been doxy & the Mino.

My 'boat' has been 'rocked' for many reasons at this point. I've had my appendix & gall bladder removed, as well as female parts. I am concerned of "what's next" like a lot of people here on HW.

I hope you thoroughly enjoyed your night off & your MEAT!!! I get that way every once in a great while. =)

I look forward to having more conversations with you. I promise to watch my yahoo accnt, if you would like to email me there, but I spend a whole lot more time in gmail.

If you would rather not - I understand & will be happy to have these conversation here on HW.

BTW -thanks again for responding & for the compliments.

Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/1/2009 8:21 PM (GMT -7)   
Well, Traveler, I'm having enough difficulty right now keeping up w/ this forum and am way behind in my email, so at least for now, until and unless something comes up requiring us to email, let's stay in touch here, OK?

Please don't take that to mean I would rather not email, in fact, I will give you my address, if you ever feel the need to unload crap that you shouldn't unload here. I'm a pretty big crap unloader myself, and writing fast and long emails can be very theraputic and often you can type your way into an answer. And I'm a pretty good reader of crap unloading, too!

bwtoto@ yahoo.com (close the space) So, if you need to talk, I'm here, OK? I can't email from work during the day tho, so keep that in mind.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 8/2/2009 7:14 AM (GMT -7)   
Hi +Lyme =)
Thanks for the invite to email you! I will send you an email, just so that you also have my email addy. You can email me anytime you need to unload, or have a ? .

I know what you mean about writing yourself into an answer you seek! I seem to do that regularly!! B/C of the need for concentration when writing, it really helps when needing to focus my brain on one subject. My thoughts can get pretty scattered sometimes. =( And, although I might write a long email (or post) - it never happens fast!!!

So you're still about to work!! Good for you!! I had to quit working back in 1988. I tried to go back to work a few times over the yrs, but for each month I managed to struggle through, my body insisted on being bed ridden for a month. I figured I was on the losing end of that idea!! So I quit trying to work outside the home.

Thanks again!!!

Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

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