After alot of thought....

I think I'm going to see another LLMD. I've been having neurological problems and I don't think my current LLMD is experienced enough to treat me. I recently called the office and asked what he usually does for neurological problems with Lyme, beings as I just started having this after I started treatment. I was told I would probably be sent to a neurologist!?! That alarmed me because I live in the South and most doctors here do not know how to treat Lyme. Most don't even think it exists here. In my opinion, I would think that my current LLMD would know what to do. <sigh> Maybe this is a good thing. I don't know. I do know that I definitely do not want to leave my life in someones hands that doesn't know what they are doing. Sooo, I'm filling out paper work right now to see an LLMD in Florida. I've heard really good things about him. I called and spoke to the secretary there and told her that I truly had to make sure he had dealt with patients with neurological symptoms from Lyme Disease especially since I would be driving 12 hours to get there. She advised me that he had been treating neurogical symptoms for decades and she stayed on the phone with me and calmly answered other questions. She was very sweet. I really feel good about this. The only thing I'm worried about is the long drive. I have to push myself to do it though! This is my life and I want it back!

I had to have a primary doctor work with my LLMD since he's so far away. Well, I found one to work with him!!! She is a great doctor. She's my husband and I's internist. Shesvery caring and open minded. I know she will be there for me.

All I have to do now is send the paper work back and see if he accepts me as a patient. I also need
to call my insurance and make sure they still cover him. They did back in 2007. This is actually the
doctor I was going to go to the first time. I wish I would have.

Anyway, that's what I'm dealing with now. I need lots of prayers. My health has not been too good
lately. I'm glad I have this board and all of you:) You all give me something to look forward to everyday.

A special thanks to 1bitten for giving me all of the doctor's information. She has been there for me and has answered a ton of questions! Thanks hun!

Big hugs to everyone!

Thanks RD!

Rich,

It would be great if he did that. That would be alot easier on me for sure.

Thank you so much Traveler. I'm so sorry about your husband. Is he okay?

OH, CG, I do not envy your adventure and your drive! Interstate driving is one thing I cannot do and my son had to drive me 30 miles south to see my LLMD. You are brave and so now we know you are strong enough to beat these nasty things!

Your post sounds very optimistic, so between you and all our prayers, I believe you are on your way!

Hi CajunGrl,

I also suffered from many neuro problems including lyme rage episodes.   It was horrible!  I remember when I used to go to my bank I had such a difficult time filling out either the deposit or withdrawal forms.  I had to keep re-writing it and I felt so frustrated!   I kept thinking I did it right but the bank teller told me "oh no, that's wrong, take another slip"...

What I learned was that toxins (especially lyme toxins) convert into Nitrate Oxide which in turn converts into Ammonia and too much ammonia causes neuro symptoms as well as joint pain, muscle pain, fatigue, etc., etc. 

I just didn't learn this from Dr. Jernigan, I did my own research a couple of years ago where I saved all these links from other doctors who study this, I don't know where those links are today.

In any case, what do you have to lose by taking a product that helped me clear out all that ammonia from my brain and body?  I took Dr. J's CNS/PNS Neuro-Antitox Formula.   I believe it's the same price as it used to be $48.00 for a bottle and no, I am NOT affiliated with Dr. Jernigan in any form, hey, I wish I was!  LOL!  Then I could learn more to help others.

You can take it with antibiotics (certain ones you would need to remove the alcohol which is very simple).   I remember when Alfers took it and she said it helped her alot.

Hope you feel better!

Denise 

Hey everyone, thank you somuch for the well wishes and encouragement:)

Scorpio: I had the same thing happen to me a few times while on treatment. The worst was wheni was on Zithromax. I woke up and couldn't remember my husbands name or who he was. When I finally did remember, I kept feeling like I would forget again. That scared the you know what out of me!

Recently, I've wokenup and still felt like I was in a dream. I catch myself staring at a certain object in the room not knowing what it is. I hate that feeling. I know how it feels and I sure hope it gets better for you soon.

Minerals,

You're so sweet. Thanks so much.

I am going crazy trying to get all of this done today! I just called my insurance to make sure that this doctor was covered and I basically didn't get a for sure yes. I went off on the lady and told her she was rude. She even made sure I knew that this doctor was in another state and "did I know that?" She said, " You do live in Louisiana right?" Duh! I know how far away he is!!! Grrrrrrr! I hate when people are rude for no reason especially when I'm sick! So, I had to call back to make sure he was for sure covered. He is, thank God! The new lady I talked to apologized for what happened. Geez!

Anyway, vent over, lol. It's like you have to jump hurdles when it comes to insurance.