where to start? hmm
well i was called early this morning by my nuero's office. and the lyme test came back negative. no surprise there. this i felt was my last hope for treatment.
recap: i was placed in doxy 100md daily in march. took it for about 7 days and was so sick i had to stop taking it. then a few weeks later i was placed in prednisone for the lesion in my left eye. i had a extreme reaction. i turned beet red. like i was on firer. i tried to take it longer but couldn't. i stopped after 4 days.
then i had the MRI and it showed i had 10 to 15 lesions in my brain. and 1 of the possible cosses was lyme. so i asked to be tested for it, as my dog was dx with lyme last yr.
well low and behold it came back positive on IgM. band 23 & 41.
i think due to the doxy and pred combine it why it was positive. it made lyme show its ugly head.
now that i am not on anything all the new test they are running keep showing up negative. its like the band 23 is specific to lyme Bb. why cant they go by this and also with my sx i have. it should be enough for treatment. especially if i am willing to take the abx. i know more then they do it seems like to me. why cant a Dr. lesion to me and do as i ask. what harm could it do to them, when in fact it could help me the most.
they are more then willing to give me everything under the sun for pain, dizziness, muscle spasms and headaches. they treat the sx and not the cause. this is what makes no since to me. and its a wast of money. i have been on celbrex for over a yr now, at a cost of 130 bucks a month. glad i don't have to pay for it.
I think my body was fighting it off very well for yrs, till i blow out my knee, had surgery on it and all hell brook lose. the yr it took me to have my surgery, all i keep saying was i just want to be able to walk again. over 1 yr later and i still cant walk for beans.
i have 2 adult rotties and when i try to step over them i am not able to lift my leg up high enough to clear then, so i just drag my foot over them.(glad they do not move)
I don't know what i can do now or where to go from here. i am at a totally loss now. i KNOW i need TREATMENT but without a Drs help i cant get treatment. and without money i am more or less up a creek without a paddle.
it has me so depressed right now. and i have been fighting with my b/f over nothing really, but i just cant seem to stop myself.
when i first got my positive test i though wow, i am one of the lucky ones. i didn't have to go thru the Drs bull runaround crap. boy was i mistaken. if not for bad luck i wouldn't have no luck at all.
so i think now. i have to either pray that the deal on the 30th will change things for folks like me, so we can get the proper treatments. or i just sit here in my chair or bad and wast away slowly and painfully. how many yrs will it take for lyme to kill me..
i do not want to go down this road. i want answers and treatment. i want my life back. i do not think this is to much to ask for. i think its a crime that DRs are allowed to leave us to our own demise.
praying for everyone to have better days and nights.
still looking for answers.
Remember that advice is free, its your choice what you do with it. :)