Wow Mia's western blot is back!!!!

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veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 9:33 AM (GMT -7)   
It is IGM pos IGG neg.

IGM
pos 18 31 34 39 41 83-93


IGG
pos 39 41
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 8/7/2009 9:39 AM (GMT -7)   
Hi Veronica,

I'm so sorry to hear that. It looks like Mia does have Lyme. Thank goodness she has you as her mother- you can make sure that she gets the right treatment, right away. And, I recently heard an interview with an LLMD, who said that children don't relapse (although they can get re-infected). If you can, I would look for an LLMD who is a pediatrician. Maybe the positive WB will help her get treatment.

Best of luck to the both of you. I'll keep you in my prayers,

Nicky

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 9:59 AM (GMT -7)   
Hi Nicky! She isnt showing overt symptoms like arthritis or swelling but she is lethargic in the morning she has diaper rash which is indicative of bacteria. So i believe the rash is spirochetes not just red its papules and spots they dont go away without antibiotic creams. she fevers and she does occasionally say hurts but i dont know what she is only just going to be 2 in sept.

Where did you hear this Nicky about relapse. How can it be possible. i hope it would be true. Thank you for the kind words.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 10:05 AM (GMT -7)   
Iam sorry to hear her test is pos. Ihope she gets better fast. Have you talked to a doctor about what kind of treatment she is going to do?

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 10:06 AM (GMT -7)   
I did this test with the authorization of her regular pediatritian through ingenex. So i have to make an LLMD apt for her.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 10:09 AM (GMT -7)   
Well I wish you the best. Iam a nanny and the three young kids I watch all have lyme and co infections.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 10:26 AM (GMT -7)   
Thank you . Wow how is that? Are they temperamental. What are they doing to treat them.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 8/7/2009 10:30 AM (GMT -7)   
So sorry to learn your baby has Lyme. Please be sure to give her a good probiotic for infants--that will healp alot especially with the yeast in the diaper rash.

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 10:31 AM (GMT -7)   
They have good and bad days. Thay are on Rafamptin, Mepron, and I think biaxin.They also take artimisin. Its been over a year of treatment. We are starting to see improvement. They to say things hurt, The young one did have alot of diaper rash in the begining.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/7/2009 10:32 AM (GMT -7)   
Awwwwww Veronica:(

I'm so sorry about baby Mia. I'm glad you caught it early though. Kids recover better and faster than adults do. Poor baby. I hope you both feel better soon.

P.S.- I love your daughters name. I had a kitty cat named Mia.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/7/2009 11:50 AM (GMT -7)   
V i am so sorry baby Mia is sick. but the great thing is you didnt give up and had her tested. to get to the truth, now you have to find the right Dr to treat her, and know she will get better. no way she couldnt with you for a mom.

and its so true babies do get well sooner then adults do, for some reson they have a faster system to fight things off.

¤°´¯BIG.¤*¨*¤(¯`´¯)¤*¨*¤.Hugs¯`°¤.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 8/7/2009 11:53 AM (GMT -7)   
Hi Veronica,



I heard that on this interview with Dr. J. Here's the link (if it doesn't work here, go to www.canlyme.com, then to their forum, then to the link for the interview with "Dr. C. J.")



http://lyme-disease-research-database.com/lyme_disease_blog.html

Post Edited By Moderator (CajunGrl) : 8/7/2009 1:29:47 PM (GMT-6)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 2:45 PM (GMT -7)   
Thank you, Caj her middle name is Mia her first name is Era so , Era Mia .

thank you Nicky and everyone who cares to respond to me. I love you guys!!
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 8/7/2009 3:56 PM (GMT -7)   
V, I am so sorry to hear about little Mia's test results. She's very fortunate to have you as her Mom. I wish you both quick healing and peace.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 8/7/2009 7:11 PM (GMT -7)   
most people have no idea about this or what a western blot is, its is good you did this early so she can get everything knocked out.. when i was a child i didn't have any stress at all.. she will recover quickly! when you are an adult with stress it seems alot harder to get over...

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/8/2009 9:02 AM (GMT -7)   
That is true james. thank you.
And thanks to thoswe who said she has you as a mother shell be ok. that is sweet and didnt have to say that. I really just love all you guys. Hahaa really. I felt bad for a bit cuz of this but i know this quickly must pass in order to bring about the goodness and healing.
If i wasnt in so much of my own pain it would be easier.
thanks everyone.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 8/9/2009 1:58 AM (GMT -7)   
Hi Veromia,

Please check for yeast, Bartonella, and Rocky Mtn Spotted Fever----ask pediatric llmd about coinfections. The rash description with fever makes me fear more than just lyme. I am so sorry you and your little one must suffer from all this. You are way ahead of most people though, since you know lyme etc. exists and you know there are tests. My daughter was probably born with all this stuff, (due to my own lack of knowledge or diagnosis) , but we never knew it until she was finally diagnosed at age 16!!! She is now 18 and we are still fighting. I am so happy that you are able to tackle this right away. Also, the suggestion made to put her on probiotics is a good one.

Wishing you all the best, bablymers mom

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/9/2009 8:31 AM (GMT -7)   
Holy SMoke, Veromia -- what a classic WB! Oh my God, I am so so sorry. I know that it's good that she had such a definitive test and that you can move forward, but we sure don't wish this diagnosis on anyone!

Bless your heart -- yes, she is very lucky that you are her mother, still you have my symathies and prayers treading into such UNholie waters! We are all pulling for both of you!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 8/9/2009 4:59 PM (GMT -7)   
So sorry that the test came back positive, but at least you know what to do for her.  It is so hard to see little ones suffer, but hopefully everyone is right and she will heal very quickly once she can be treated.  Hope you are holding up too!

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/9/2009 8:53 PM (GMT -7)   
everyone is so beautiful thank you. I had RMSF i havent been tested but just like i knew i had lyme i had the spotted rash when i got the lyme. So we do have to check for that and my feet hurt so bad so i think thats bart.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Amy C
Regular Member


Date Joined Jan 2009
Total Posts : 45
   Posted 8/10/2009 11:46 AM (GMT -7)   
Wow she had a lot more positive bands then my kids. Sorry to hear this but glad you didn't wait to test her. She is young and I hear they do better when younger. My youngest is 10 and has had health issues since he was a baby. Had I known then he would have been better off. He's got so many issues now. Adrenal problems, Aspergers, and so much more. The kid is a mess! So it is really good you figured it out now. I sent you an email :)
One BIG Lyme family!! Possibly congential...
~I tested CDC positive 10/08
~My mom Igenex positive 11/08
~My brother Igenex positive 4/09
~My 2 boys some positive & IND bands, clinical diagnosis 3/09
~My youngest has Aspergers too (a form of autism)

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