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halfpint
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/7/2009 9:30 PM (GMT -7)   
I don't know yet if I have lyme disease or not,and am very frustrated. Here is my story:
 
I know I was bit either July 18 or 19th of this year, I am from Alberta (ticks are rare here) and had never seen a tick. The morning of the 20th I noticed a raised mole like thing on the back of my shoulder,( holidaying in southern Manitoba) and decided to get it checked once I got home . The following Friday night I asked my husband to check my shoulder( he is from Southern manitoba and knows what they look like). He informed me it was  a tick and took it out, but then said he was not sure he got it all and took me into emergency.
 
I explained to the doctor where I had been and what had happened to me. He looked at the bite and said that it looked clean, and was probably not a tick bite at all, probably a sliver.
I went to my doctor the following Monday who put me on Doxycycline for two weeks, also scheduled a physical for me and a full gamut of tests. She told me to research lyme and be very vidulant. She then left on holidays for 6 weeks.
 
Since then I have done alot of research and know that I shold be on doxy alot longer then 2 weeks.I have seen 2 other doctors, one of which said the bulls eye rash , is just the way of my body healing from the bite. I decided to go doctor shopping and went to a walk-in clinic, he gave me a perscription for another week and ordered the lyme serology test which I had 2 days ag
 
I have been in touch with a retired lyme specialist in Vancouver and sent him pictures of the rash, he said he would try help me find a LLMD in my area, and I am waiting.
 
I have started a regime of vitamins and herbs, to build my systom up. I do not have alot of symptoms, but have enough to know it is suspicious:
headache chills, sore neck shoulder and back, achy hips and legs, tingling in my nose, numb  around my eye, blood presure fluctuations, and shooting pains.
Talked to  the pharmisist who told me to go into a major hospital emergency and see an infectious desease doctor.
 
Anyhow in the end I am frustreated , there is alot more to my story but I have said enough.
 
any advice would be greatly appreciated

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/8/2009 10:45 AM (GMT -7)   
Sorry you are dealing with this. Yes you will need more than two weeks of meds. Keep doing research the more you know the better. The best thing is to get in to see a llmd as soon as you can. Good luck with everything.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/8/2009 11:03 AM (GMT -7)   
Hi Halfpint,

Welcome to the forum!

The recommended dosage for a new tick bite with a bulls eye rash is at least 6 weeks. The Lyme bacteria cycle every 3-4 weeks so it is important to get them when they are up and moving. That's why 6 weeks antibiotics is recommended. I agree that researching is very important. Find out as much as you can so that you can always be on top of things. Knowledge is power!

If you want to find an LLMD in your area you should post your email so that members can tell you the contact info privately. You can email: stephanie@turnthecorner.org to find a Lyme Literate Doctor in your area. You can also go to:www.turnthecorner.org/bod.htm and ask for further sugestions.

Ticker is a senior member here and can probably help you find an LLMD too. I'm sure she will post to you soon.  

For more info, please read the topic at the top of the first page of this forum tittled "The Basics, Newbies check this out". It will help you get started learning about lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 8/8/2009 1:58 PM (GMT -7)   
Hi halfpint,

Welcome to the forum! Sorry you are having to deal with all this. Maybe the Canadian Lyme Disease Foundation can help you, and you could also try ILADS.

http://www.ilads.org/           http://www.canlyme.com/

Best wishes, bablymers mom

Post Edited (bablymers) : 8/9/2009 2:33:47 AM (GMT-6)


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 8/9/2009 6:09 AM (GMT -7)   

Hi halfpint, welcome to the board!

Although only about 50% of people who have Lyme ever get a rash, a bulls-eye rash is a definite sign of Lyme disease.  It is good you took photos of your rash, it is important documentation.  Also take photos if it changes.  Place something near it, like a coin or ruler, before photographing to give it size definition.  Document the date you saw the rash.   The bulls-eye rash alone merits treatment.  Most people test negative early in the infection.  Do you know which Lyme test you had done?  It is my understanding the ELISA or titer is the least reliable test and the one most doctors run first.

What of Doxy are you taking?  From what I understand, six weeks of the proper dose antibiotic is the minimum treatment time for an infection caught within two weeks of the bite.  The antiibotics kill the bacteria when they are reproducing which is estimated at four weeks.  Six weeks of treatment will cover one growth cycle.  If symptoms are still present, further treatment is warranted.  A longer infection needs longer treatment.  Early infections are the easiest to cure.  Please do everything possible to make sure you get the proper treatment now.  Getting the proper treatment early may reduce the chance of long-term complications.

Below is a Lyme symptom list.  You can have any combination of symptoms.    

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
 

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  No test is completely reliable, and results can vary by lab.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. 

There are some important tips to know about taking Doxy.  Do not have any dairy, iron, or magnesium products within two hours of taking it or it will not be absorbed properly.  If it makes you nauseous, eat something substantial and non-dairy before taking it.  Avoid the sun.  You can get a severe burn in minutes even when wearing sunscreen.  Do not lay down for at least an hour after taking it or you can ulcerate your esophagus.  This is very painful.  Drink a full glass of water when you take it for the same reason.  Whenever you are on antibiotics, make sure you take high-quality acidophilus capsules.  They replace the good bacteria and prevent yeast overgrowth.  The best kind to get are refrigerated and have a high culture count.  Most health food stores have them.  Wait at least two hours after taking the antibiotics to take the acidophilus.

Be aware of the Jarisch-Herxheimer reaction (herx).  When people who have Lyme take antiibotics their symptoms can get worse or they can get new ones.  When the antibiotics kill the bacteria, toxins are released making them feel worse.  It can be scary when it happens, but it is a sign the antibiotics are working.  Although it can vary individually, many people experience this at the beginning or change of treatment and every three to four weeks.  During treatment, it is good to document your symptoms daily.  One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10.  Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

Infectious disease doctors are not usually the best to see for Lyme.  If you need a doctor recommendation, you can email me at ko_@bellsouth.net

It is also important to learn as much as possible.   I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne lllnesses  at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.   He discusses antibiotics and doses starting on page 18.   I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.

Good luck with your treatment! 



halfpint
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/9/2009 3:12 PM (GMT -7)   
Thank you all ,
Ticker it is 2 weeks of 100 G twice daily. I have got the third week of the same after doctor shopping

 

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