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Regular Member

Date Joined Jun 2007
Total Posts : 108
   Posted 8/8/2009 10:27 AM (GMT -7)   
I was wondering if anyone else have a lot of problems with sore, painful muscles in their neck and shoulders and even the back of their head! It's even making me dizzy case its so sore and tense. Ive tried everything pain meds,massage, hot and cold packs and nothing! My LLMD said it should lessen overtime I just strated a new ABX I became allergic to the other one and he jst said lots of water and magnesium and reduce the stress and rest a much as I can and it seems to be doing no good! It's been a week already and I have had a constant headache and I cant even think or function becasue of it! Any ideas!! I go back to the DR Tues cause of the allergic reaction and he is going to start me on bicillin shots! Fun fun! Just though someone may have something they take or have taken that helped them!!

Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 8/8/2009 11:07 AM (GMT -7)   

I think your pain sounds worse than mine...but I get a "tight head" feeling all over and it makes me feel cervical spine is all messed up and I get a lot of headaches stemming from the bones just at the bottom of my skull, and the pain shoots into the eye of whichever side it's on. It's nauseating and I always have to take 800mg of Motrin when this happens (yesterday!).

Do you see a chiropractor? I'd be interested to know if you're as messed up as me in that area! It may not be the only factor, but it certainly could contribute!

Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
"Breathe. Let Go. And remind yourself that this very moment is the only one you know you have for sure."

Veteran Member

Date Joined Oct 2006
Total Posts : 1458
   Posted 8/8/2009 12:31 PM (GMT -7)   
Hi Jess,

Sorry to hear you are having this painful symptom. I think there are some natural rub-in creams you could try. They sell them at health food/vitamin type stores. A friend of mine uses Topricin for muscle pain sometimes. I don't know if it would help, but you could ask your doc or at the store that sells this kind of stuff. Also, there is a prescription drug---a muscle relaxant---that I sometimes use when I have bad trouble. The generic name is methocarbamol, a trade name would be Robaxin. The drug has been around for a long time, so a lot is known about it. There are other drugs available that are stronger and newer, but luckily for me, the old one works OK for me. Maybe you could ask your doc to try one of these type of drugs. I also use Advil (ibuprofen) to help with muscle/body pain. Nothing has ever helped my headaches though.

I hope you find relief soon. Best wishes, bablymers mom

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 8/8/2009 2:32 PM (GMT -7)   
When my neck/shoulder/head hurts like this, my Mom gives me a neck/shoulder massage and it really helps to break up the pain. She also recommends moist heat.

Wintergreen essential oil has natural aspirin in it, may help topically with the pain & inflammation.
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.

Beautiful Disaster 28
Regular Member

Date Joined Jul 2009
Total Posts : 21
   Posted 8/8/2009 3:05 PM (GMT -7)   
This was one of my very first symptoms that made me seek medical care. It was so horrible that it has pretty much ruined my quality of life. I HATE it. It is there all of the time. They put me on Klonopin and it helped enormously. Only problem is that I became tolerant of it and they had to keep raising my dose....this is over a span of 1.5 years. Now I'm at the "max" dose and doctors won't rx over that dose. It's not my fault I get tolerant to it. They will rx me oxycontin all day and ask if I want it upped every time I go but that doesn't help. I don't take oxycontin anymore but I did for a while. It's irritating that the one thing that helps is the one thing that they won't ask if it needs upped.

I tried every muscle relaxer, it didn't work. I tried Robaxin, Soma, omg, 3 others but I can't remember. It didn't go away with treatment and it makes my life hell.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 8/8/2009 4:32 PM (GMT -7)   

I have this also. In fact, these past two days my headaches have been really bad. Advil hasn't been able to get rid of it all the way. The pain is in my neck, shoulders and back of my head, at the base. It's very uncomfortable. The only thing that eases it for me slightly is rubbing muscle rub on it.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Regular Member

Date Joined Sep 2008
Total Posts : 293
   Posted 8/9/2009 8:44 PM (GMT -7)   
i know exactly how ur feeling. i have been in pain for weeks now with my spine kneck shoulders and head. i just try to rest it when i can and get back rubs and also cold packs feel good for the inflamation. i gave uo on advil and i dont take anything for it so im always hurting andhalf way through my work day im hurting....hope you all feel better
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
ADHD/anxiety/depression// celexa 20mg

Regular Member

Date Joined May 2009
Total Posts : 147
   Posted 8/10/2009 1:29 AM (GMT -7)   
I had terrible neck/shoulder/head pain at the start of lyme - it went on for months - I found some relief with a 'TENS' machine - a small hand held gadget with two vibrating/massaging pads which send gentle electrical pulses to the attatched area.

I did however eventually agree to having 'cortisone' injections into my trapezium muscles - after about a week of worse pain - me thinking I had made a big mistake - I had a lot of relief from pain - I feel that being able to relax - with no neck pain - got me out of a viscious circle of tension/pain - I realise that steroids is thought to be a bad thing with lyme - but I am glad I had those injections - three in each side.

Regular Member

Date Joined Jul 2009
Total Posts : 29
   Posted 8/10/2009 7:15 AM (GMT -7)   
Yes. Terribly bad.

Veteran Member

Date Joined Nov 2008
Total Posts : 759
   Posted 8/10/2009 8:56 AM (GMT -7)   
Thanks for raising this issue. It sounds EXACTLY like mine.

It starts in my neck and it won't stop popping... and it spreads to my head and is in my jaw and makes my teeth hurt and I can't get the nutritiion that is so vital to our healing.

TENS helps some, but that contraption can be a bit much.

Maybe they'll try cortisone shots on me like gorby belle. I'm quite sick of it too! It's so ongoing.

Friday I had a good day and I attribute it to me not being stuck with my neck cranked in front of the computer. Lyme and friends attacks weakness in muscles and joints. It is just that the neck has all kinds of ramifications due to its function approximity to the head.
Bit June 08.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 8/10/2009 11:19 AM (GMT -7)   

You mentioned pain in your jaw and teeth. Have you ever been checked for TMJ? It can cause very bad headaches and Lyme Disease is also associated with it.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Regular Member

Date Joined May 2009
Total Posts : 147
   Posted 8/13/2009 6:45 AM (GMT -7)   
also - sleeping with one fairly thin pillow helps - you do get used to it! - anything that eases any kind of strain - for instance not keeping neck in one position for long - all these little things - though not an instant remedy - do help to ease neck pain - of course [besides lyme itself] - stress plays a big part in neck pain/headaches - so obviously the more relaxation we can manage the better.

I know how lyme can cause anxiety in all kinds of ways so relaxing isn't easy - but it is very beneficial.

Regular Member

Date Joined May 2009
Total Posts : 147
   Posted 8/13/2009 6:52 AM (GMT -7)   
I forgot to mention - I found a very small amount of the drug 'diazepam ' -[equivilant to 'valium' I believe] - taken just before bedtime - very good at relaxing the muscles - I only took it when nothing else gave me any relief - it can be addictive but I am only talking about taking it now and again - it is prescribed mainly for 'anxiety' and 'muscle spasm'.

Regular Member

Date Joined Jul 2009
Total Posts : 113
   Posted 8/13/2009 1:11 PM (GMT -7)   
I was having really bad pains in the back of my head on the right side. I was afraid I was having strokes - the right side of my body was numb 99 percent of the time. My LLMD changed my meds and it hasn't bothered me lately. Headaches are gone as well.
Hope you feel better soon,
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