Looking for a LLMD - again

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Traveler
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   Posted 8/8/2009 4:53 PM (GMT -7)   
Hi All,
Well my regular gp wants me to go to a LLMD - amazing, since he didn't even believe that there was such a thing as chronic LD - he now has dxed me with chronic LD, though!
Any way, I'm not doing so well physically so a long drive will cause many flares. Working on a plan... idea

I live in North-Central Arkansas. I know about Dr. C, but I can't afford to see him - he will not accept ANY type of insurance. Everything is up-front -cash.
I found another one in Mississippi, but I'd have to take three days round trip - that would stress me out (just the driving &/or riding in a car) to the point that really scares me.

I've already had to restrict myself to bed rest every afternoon, but I refuse to do that every day as well.

I would, of course, much prefer seeing an LLMD, but worse case scenario - I believe it's a small chance, but I could pick a protocol & get as much info in that protocol & ask my gp to over-see & write any scripts I may need.

So if anyone knows of a LLMD very close to North Central Arkansas - I would appreciate any help that I can get!!!

Thank you in advance~
Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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   Posted 8/8/2009 5:36 PM (GMT -7)   
Hey Traveler,

I have some info for you so that you can find a good LLMD. Good luck with everything.

You can email one of our long time members, Ticker at:
ko_@bellsouth.net to find an LLMD in your area. If you'd like more suggestions, you can email: stephanie@turnthecorner.orgYou can also go to: www.turnthecorner.org/bod.htm and ask for further sugestions.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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+Lyme
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   Posted 8/8/2009 7:20 PM (GMT -7)   
Hey Traveler -- gosh, what a sore spot you are in!

But since your PCP has dx'ed chronic lyme, perhaps you could make just one trip to a LLMD (per Ticker) and get a good eval and treatment prescribed. Then maybe you could keep seeing your PCP while on treatment and not have to return to the LLMD. Kind of a 'consulting' thing. If a protocol is suggested for your PCP, he/she should be able to monitor you and prescribe refills if you are doing OK on whatever is prescribed.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
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   Posted 8/8/2009 7:45 PM (GMT -7)   
Traveler,

Just like Lyme said, is what out of state LLMD's usually do. You go to your first consult and then they work with your primary doctor and your primary does everything for you. At least this is what the new LLMD I'm hoping to see will do.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


hopingToFindCure
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   Posted 8/8/2009 8:14 PM (GMT -7)   
You may not get an appointment right away.

So, start on a protocol -- it's all trial and error anyways (llmd treatments) -- so you experiment and see if you cannot start to heal while waiting for your antibiotics to be prescribed.

Good luck !
Bit June 08.


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 8/13/2009 2:40 PM (GMT -7)   
First of all, my apologies - I haven't been on the computer for the last few days , been feeling really bad - eyes Although I did manage to forget to log off the last time I was here blush

Thank you CG, +lyme & Hoping!!
My next question would be - just how does one decide which protocol to start? Do you just pull a protocol "out of the hat"? Or is there a way to single out just one or two?

I do have the 'KingBio" products (specifically their Lyme one) available in my area. Should I start with that? Should I use only that, or would it be advisable to take other things at the same time?

I have gone through the sx of most of the co's & have the majority of the sx that were listed. Should I assume that I do have all of the co's except the one I have only 2 or 3 of the sx?

Man! shocked It's really complicated for my brain any more!! Also, am I making it more complicated than it really is???? shakehead

I am soooo confused on this stuff!! smhair What ever info anyone can share on this subject, I would really appreciate it!!!!

Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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   Posted 8/13/2009 3:02 PM (GMT -7)   
Hey Traveler,

If it were me, I would wait to start anything until I saw my LLMD. You could always add things in later. At least by then, you would know a little more about each protocol.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 8/13/2009 3:56 PM (GMT -7)   
Thanx CG!! I am so very tired & having trouble with even the simple decisions!!
At least I know that I can come here & ask these questions & not be told 'Why can't you make these decisions' or something equally as frustrating!!
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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   Posted 8/13/2009 4:11 PM (GMT -7)   
I don't think anyone here would ever tell you that. We all have trouble making decisions. When we do finally make a decision, we forget what we decided! lol.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Traveler
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Date Joined May 2007
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   Posted 8/13/2009 10:51 PM (GMT -7)   
CG ~ ROF****!!!! Looove your sense of humor!!!

ok, another question - my doc said he wanted me to pulse steriods, because of the pain & inflammation I'm having right now (10 mg of hydrocodone 2 x a day doesn't really do much - but at least it helps with the pain some)

I have told him no way & he accepted that - this time, but he is pretty set on the notion tha is what I need to do.

Pulsing steroids is just as big a no no for us as one of those little packets, right? I actually hadn't heard of the idea of pulsing steroids before this.

Thanks yet again!!!!
Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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   Posted 8/13/2009 11:24 PM (GMT -7)   
Hmmmm, that's a toughy. I don't think 10mg is alot at all. In fact, I think 1bitten mentioned taking HC for adrenal problems.

Is this your family doctor suggesting this?

Maybe someone else could chime in here. I don't want to say yes, and then something go and happen to you. I'll leave this up to the more knowledgeable members.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
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Date Joined Apr 2009
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   Posted 8/14/2009 12:26 AM (GMT -7)   
Hi Traveler

i don't know if this is of any help to you, but i understand your DR wants you to take 10mg of something like prednisone?

here is what happen to me on 20mg of pred 1 month b4 i found out i had lyme disease. on the very first day i had a strong reaction. my hole face turned beet red. then on day 2 my hole body hurt so bad i couldn't even touch myself. on day 3 o was told not to take it again. now i know i am not allergic to it as i have had it many times in past yrs.

if it was me, i would definitely take to a LLMD b4 taking any thing like this.

i wish you all the best.

¤°´¯BIG.¤*¨*¤(¯`´¯)¤*¨*¤.Hugs¯`°¤.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
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   Posted 8/14/2009 3:17 PM (GMT -7)   
Traveler,

Scratch that last post of mine. I misread. I thought it was 10mg of hydrocortisone. You said hydrocodone though. Duh! Sorry about that!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 8/18/2009 11:08 AM (GMT -7)   
First of all, thanx to the mod that edited my earlier post! & sorry for that language! *blush*

CG ~ No need for apoligies - just happy for the clarification, as I do rely on some apinions here on HW!!! =) =)

RD ~ Thank you for your post. I know all about needing to go to a LLMD for tx - it's just that I can't travel the 1,000 - 1,400 mile trip - those #'s are round trip!

Plus the cost of the LLMD & then the drugs for the protocol ~ there's just no way we can afford it right now. =( =(

And it was my gp that wanted for me to pulse the steroids, as he told me that he had no clue as to what to do about the LD any more.

Soooo, for starters, I will start on KingBio's Lyme tonic. I can get here very locally (@ my pharm.) and he has it for a better price than I can order it on-line!!!

The main thing about using homeopathic meds - I have absolutely no clue as to what all should be take & at what time w/ homeopathic meds.

I do have an option to go to an acupuncter (sp?) doc here & he could help me with dosing of herbal/Chinese meds.

Although, that would only be if I could get my hands on a protocol using Chinese tx!!! He's not into healing of diseases either - he mainly just works on sx-

as this is mainly a retirement community here & he says that mainly all they want is help with the sx of what is wrong with them.

So I'll have to see what I can figure out that I can actually do right here - close to home & how to do it.

I'm pretty sure I am in for the expierament of a lifetime!!! :p !!!!

Thanx again for your posts!! I'm going to need all the help I can get on this one!!!

~Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

Post Edited (Traveler) : 8/18/2009 12:16:00 PM (GMT-6)


CajunGrl
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Date Joined Mar 2009
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   Posted 8/18/2009 4:34 PM (GMT -7)   
Traveler,

Hey hun:) We didn't edit your post. The forum edits out some words automatically. I'm assuming that's what happened.

Have you thought about trying one of the natural protocols? I'm not sure how much each one costs, but maybe you can research them.

Dr. B's protocol lists all the supplements you should be taking for Lyme Disease.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 8/19/2009 4:15 PM (GMT -7)   
HI CG~
Oh - well at least I now know there's a machine doing good things for me!!! **grin**

After we get our next monthly disability deposit, I will get KingBio's Lyme tonic. My Pharm. recommends them highly, so that's where I will start.

While we are saving up a little bit of a cushion financially (only a few months), I will start on either homeopathic or herbal protocol. No sense starting one if I can't get all I will need each month.

Thank you once again for allowing me to pick your brain for a bit!!! ~
Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/19/2009 6:24 PM (GMT -7)   
Traveler,

Well good:) Im glad you have a plan. Let us know how it works for you. Members are always looking for natural things to take.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 8/20/2009 12:49 PM (GMT -7)   
I know I'm a pest, but thank you so very much for all the encouragement, support, & allowing me to pick your brain (since my doesn't want to work at all hardly right now!)
I will def. post my experiences with the different things I do for the LD & co's & Masters Disease. It's a terrible, insidious disease & we all need to share - it's the only way to get good info!!!
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

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