tired but not tired

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2long4this
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 8/16/2009 8:01 AM (GMT -7)   
Does anyone get really tired and weak, need to sit all the time, but you just can't rest?
I can't nap or anything because my mind won't shut off.
I wake early in the morning and doze on and off, but when I do it's not restful. Things will
pop into my head and wake me up with a start.
It's very disturbing, makes my anxiety sky high.
My brain just won't shut off..anyone else have this problem?

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 8/16/2009 9:01 AM (GMT -7)   
My brain never shuts off. Same sleep problems as you. Thinking it is all part of Lyme. Never was like this before I used to sleep like a baby. I miss those days!

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 8/16/2009 9:28 AM (GMT -7)   
I have found deep breathing, making the chest go in and out, really help relax and get me to sleep, even if just for nap.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/16/2009 11:56 AM (GMT -7)   
seems like i am always either sitting or laying down, but i cant sleep either. i am up till 5 to 9 am and i never sleep pass 12 noon, this is with waking up every few hours too. i look at the clock and go right back to sleep for lil while more. this has been going on for me for many yrs now.

not 1 Dr i have seen knows why or what to do about it. i wish you all the best. and if anyone finds some answers plz post em. as i can not take sleeping meds either.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 8/16/2009 2:44 PM (GMT -7)   
I have a genetic variant that causes an increase in the amount of dopamine in my brain. I too have this trouble with the brain not wanting to shut down when it is time for sleep. I think it may have something to do with the excess dopamine. I've tried many things to help with sleep but have not found anything that really works well for me. So I too am up until 3-7am, and find myself wanting to sleep until 12-3pm. Sleeping pills don't work on me, tried Benadryl but it makes me groggy for 24 hours, and many of the herbs also don't work for me. I'm still searching for a solution.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/16/2009 4:18 PM (GMT -7)   
Although Amitriptyline alone does not help me sleep well now (I also take xanax for sleep and still wake up every few hours), i believe my problem for the past couple years has been the lyme in conjunction w/ smoking.

But I want to mention this, because I have taken lower doses of Amitriptyline in the past only for sleep -- times after my depression had been relieved. My mother takes a very low dose (10mg) and sleeps very well, while sleep aids made her feel bad the next day.

Amitriptyline is an anti-depressant (btw my mother is not depressed), but does have the benefit of helping insomnia and can often help w/ chronic pain. So, not being an addictive drug like the family that includes xanax, valium, etc; as wel as being non-narcotic, I think it might be a pretty safe drug to try w/ some of the problems expressed on this post.

2 things it really does help (at least for me): Regardless of how my mind is still running, I will still fall asleep. And the blessing for me is that even after awakening, getting up, and using the bathroom, I am able to lay down and go back to sleep. Going back to sleep was always a problem for me and my mother.

My experience has been that when a major depression is triggered in me, I am not able to sleep AT ALL. Some time ago, I went thru 2 months of not being able to sleep more than 2 hrs /day TOTAL. It was HORRIBLE. If I took an anti-anxiety drug, (and that includes beer!) I might sleep for 3-4 hrs and then the drug would lose it's potency altogether.

Getting back on Amitriptyline solved this for me, as it had become clear that I was just not going to sleep without it.

It's not for everyone, but again, very low doses can be effective for some people. In the first week or so, you will feel groggy and sluggish in the morning, but that passes as soon as the drug has built up in your system. The sleep then feels very natural and you begin experiencing the proper sleep levels again.

There have been a few periods in my adult life in which I have slept well without some kind of aid: Early married life before my ex f'ed w/ my mind; when I was getting at least 45 min of very rigourous exercise, but not too close to bed time, no alcohol, AND not smoking past 6 pm.

Either the Lyme, the treatment, or both DEFINITELY screw w/ our sleep! I can take 150mg of Amil and 2 mg of xanax and I will sleep well, BUT still wake up every few hours! now THAT's gotta be the lyme, I would think!

PS:  Toolong: I can't nap either. Not that I have the time to. But that sux too, doesn't it?


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 8/16/2009 4:44 PM (GMT -7)   
I was told at the clinic I treated at that this sleep pattern of being awake until the early morning hours is because our circadian rythym is out of balance. Wikipedia has a good description if you look up "circadian rythym disorder."It also affects your body temp and blood pressure as well. The clinic told me I was like that because my hypothalamus was injured from my mold exposure. I know Lyme Disease can also affect your hypothalamus galnd. Its all very interesting, but the clinic says as you detox your body your  c.rythym will get back on track, may take some time. I am still working on mine.   D

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 8/16/2009 4:50 PM (GMT -7)   
this is how i was at first.. this lasted about 2 months. it was the worst ever!! i was tired all day, i had to sit or lay down every 10 minutes.. It could've been lyme, could've been mono or both. This was before i knew what was wrong with me. I had horrible anxiety and insomina.. After going to the LLMD and getting my WB tests done, i know what i have now, and i have been sleeping better.. I haven't slept like i used too, but its better.. before i would sleep on and off 2 hrs. not a good 2 hrs, but at least i could dream for 2 hrs, i would wake up at 5am every morning, with my heart racing.. then toss and turn until i had to get up for work, or when i was off work, i would just toss and turn until i got pissed off and just got out of bed. Its alot of anxiety, once the anxiety is under control, you will sleep better.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/16/2009 6:34 PM (GMT -7)   
Dowa, I used to take Melatonin but quit because I didn't feel it was helping in any way. But it IS supposed to help w/ jet lag and circadian rhythm. Or folks who work nite shifts. I know a couple of people who've been helped a lot by it, but again, it did not seem to affect me in any way.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

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