when did it all start

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New Member

Date Joined Jul 2009
Total Posts : 2
   Posted 8/17/2009 11:21 AM (GMT -7)   
when did you all start feeling symptoms and what were they?... and how long did you go without being diagnosed?

Regular Member

Date Joined Jun 2009
Total Posts : 367
   Posted 8/17/2009 1:10 PM (GMT -7)   
Twitching in my foot. Fingers would lock up. Pain in shoulder. Tendinitis in wrist.

Went 15 months til diagnosed by my LLMD. Thank god for him.

Regular Member

Date Joined Jun 2009
Total Posts : 367
   Posted 8/17/2009 1:13 PM (GMT -7)   
Oh and started feeling symptoms 4 months after bite/EM rash(that I never went to the doctor for...rash was atypical but clear circle....if only I could turn back time!)

Regular Member

Date Joined Aug 2009
Total Posts : 55
   Posted 8/17/2009 5:35 PM (GMT -7)   
My blood tests came back positive a month ago. I have not been able to work for 4 months. I have been ill quite a bit over the last eight years especially. I thought it was do to all the travel I do in my career. I can't be sure which tick bite did it to me. I have had too many bites in my life to know exactly when I actually contracted the disease.

james from missouri
Regular Member

Date Joined May 2009
Total Posts : 432
   Posted 8/17/2009 9:11 PM (GMT -7)   
who knows when i was bit. but, i started feeling like crap after i killed my immune system by over exercising ..

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 8/18/2009 2:42 AM (GMT -7)   
My first symptom was intermittant wandering leg pains, which started about 31 years ago.
I just got diagnosed in 2007.
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.

Regular Member

Date Joined Jun 2009
Total Posts : 285
   Posted 8/18/2009 8:30 AM (GMT -7)   
My first symptom was high fever 104
Was hospitalized 5/31 home 6/3 Readmitted 6/14 and diagnosed with Lyme 6/16

Not sure when bitten, but probably in May 2009 Only symptoms I've ever had were fever, tremors and extreme fatigue, considering myself lucky Lyme was caught early.

Post Edited (mcjane) : 8/18/2009 8:38:00 PM (GMT-6)

Nicky D
Regular Member

Date Joined Jun 2009
Total Posts : 361
   Posted 8/18/2009 8:42 AM (GMT -7)   
Hmm. I had a bulls eye rash 26/27 months ago (a little over two years), but I didn't recognize what it meant.

Proceeded to get tendonitis everywhere, shin splints/pain, fatigue, stomach issues etc. etc. I managed to ignore it until I got tingling, muscle twitching and disorientation. Then I started looking for answers, and about 6 months later, I got lucky and found a lyme-literate naturopath.
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