Thanks for replying. I tested negative for all over co-infections. I most likely got lyme last june. the previous years i had been on alot of predinisone for my colitis/chrons disease issues and i am sure if i had lyme then, it would have flared. Last June 08, i started with having 24/7 panic attacks, crying, depression that lasted for almost 3 months. I was admitted psychiatrically twice. At the third month of my psychiatic issues(ausgust), i had what felt like the flu for a few weeks. but the panic and ridiculous anxiety made me not even care about that. afterwards towards the end of august, early sept, everything cleared. then about 1 - 2 weeks later, i starting running a fever, had severe depression, crying, and bad joint pains. my colitis was also flared up severely and i was in the hospital in IV steroids, cipro, flagyl. Its been a struggle ever since but at least the colitis has been in remission since december.
I was diagnosed by my gastro in february 09 based on a high lyme titer(i think it was like 1.81) and also the presence of 4 lyme specific bands on quest WB which most likely would have been fully CDC positive but I was still on high doses of steroids which suppress my immune system big time plus being on a chemo drug for maintence of the colitis issues. I then sought out an LLMD in march and was diagnosed on the spot, tested for co-infections, and started oral doryx 200 mg for a month to start fighting what he considered was a bad infection. The next month, i went to Bactrim twice a day, and i herxed severely for about a week, but then afterwards it felt like i was making some progress. I thought I was on my way back to being cured. Mid-May of this year, I got very sick again and didn't get any better as time went on. LLMD changed my drug to flagyl 3 times a day( he told me to start slow as he was expecting severe herx, and each time i increased my dosage i thought i was going to die. panic, couldnt breathe, extreme fatigue, chest pain, crippling joint pain, brain fog, etc). I was only able to stay a little bit stable on the 2 pills of flagyl(250mg each) a day. I was also taking 1 bactrim pill a day with flagyl because I could tolerate nothing higher. just too sick.
A few weeks back I felt i was getting better so I was able to wean off my pain medication(3 percoset 5mg a day.) I felt like i was making progress again and in fact had one good day where i felt normal, but then 7 days off pain medication, panic, depression, crying, fever(100 every night by 7pm ..starts around 2-3 pm, breaks by 11 pm), big time fatigue, flu like, burning, etc all came back. On thursday my lyme dr told me to stop antibiotics until I see him tomorrow. I went to the ER on tuesday and saw my lymphs, and abs lymphs were low and he thought my body needed a break. Tomorrow we are going to talk about some other things.
He did say he would put me on IV antibiotics from the beginning but my insurance wouldnt cover but 28 days and he thought i would need a bit longer than that. My girlfriend works in CVS pharmacy, and Generic rocephin there is 10.99 per 1 gram and $50 for brand 1g. I can easily afford that out of pocket if necessary as I do have a good job and have somehow maintained it.
I am getting to the point where I can't do anytihng without pain medication and i do feel more cravings for it but unfortunatley its the only thing I can do to live as of this point. I can't change my psychiatry medicine for cymbalata or something like that because i am able to at least work through this mental BS with my current combo and i am not willing to endure greater mental suffering. Ultram doesn't seem to work for pain and i tried that for 3 months.
This is a tough road. I feel like ive gotten worse and I just want this to be over. I have hope for the future, but living now is almost impossible. Thankfully I have a good team of doctors(i believe) and good support from family, friends, and gf.
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease - June 08
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme Disease
Drugs: 6mp 75 mg|lialda 2.4 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Bactrim|PRN Perc/Tramadol