I havent posted on here in AT LEAST a year and a half? two years?! and its for good reason! i feel sooo much better! (i really do need to remember to post on here more often to say... yes... even if you are litterally dying from lyme disease, you CAN come out alive! just have a positive attitude and you can go back to normal!) ive been working full time for two years... oh boy i should probably give a little background because i dont even know what my "signature" says... ive had lyme since i was 15, im now 26. symptoms went away with a lot of rest when i was 15, but came back when i was 21 after a traumatic event in my life..
i guess you could google lyme disease symptoms and cross off like 3 or 4 and i have or have had the rest at some point in my lyme disease career.. hehe... anyway... i still have random symptoms and still have to take klonpin to control vertigo and anxiety... but overall im pretty healthy. oh. i gained a good amount of weight from lyme... still trying to lose...
it took a year and a half and a million diagnosis and doctors after my initial symptoms hwen i was 21 to finally see a certain doc in CT that saved my LIFE! i totally wouldnt be here today if it werent for him! so i have lyme, bart and babs, and he had me on such crazy treatments (bicillin shots and mepron and this and that.. i dont even remember.. but mepron for about 9 monthss did the trick) that i went into it with straight hair and now its spiral curls... very odd... but whatever, id rather have curly hair then the symptoms i used to have!
so heres my question - when i first got sick the second time (21 years old) i started to smoke. i used to be an athlete before this, and hated cigarettes.. but i didnt know how to control my anxiety attacks i was having so i started... and that was 5 years ago... i quit smoking now 104 days ago and will never go back.. for obviously sooo many reasons... the price... never wanna quit again... it feels nice to breath... yada yada ... well about 50 days after i quit i had to go to the ER 3 dyas in a row, complaing of chills/too hot... they finally admited me when they got a chest exray with full blown pneumonia... after a day in the hosptial i almost had a code blue and my temp went to 104.9 WITH an ice blanket on and i ended up in the ICU for nine days... the doctors said i made it by the skins of my teeth. so i guess my question is, has anyone quit smoking (after feeling better for a while) and had anything INSANE like this happen!? i mean, i knwo quitting smoking does weird things to healthy normal people... but lyme disease victims... what does it do to us?! i remember when i was still really sick my doctors all told me to not quit right then because it would be too traumatic to my body... so i finally felt the time was right (should have done it earlier..) and almost died from it! im seriously not trying to scare anyone because i dont think it has anything to do with lyme, in fact, my mom asked the hospitalist that saved my life if he thought me getting such a horrible case had anything to do wtih my lyme disease, and he just blankly looked at her shocked... because he said my immune system kicked butt... and he would have never konwn i had it, had she not told him.
i could go on and on. any thoughts?
if you read this and you are new or just really really struggling... just remember what i said up above... i dont remember to come on here anymore because i forget that i even had anything wrong wtih me and dont need the support anymore... but i think i need to come on here more (and other people that feel better!) just to encourage everyone thats not feelin so hot! ive been there! i promise! i know how bad it is! stay positive! it helps! and one huge thing i def learned... dont take it out on the ones you love the most... as most people tend to do with any problems we have... and just remember, the people sticking by you are AMAZING... i dont know how my friends and family stuck by me when i was so... ehh... ya know? sick! but they did, and i still have them around and im so thankful! and i hope that if you are reading this and you dont feel well right now - that you can come on here one day soon and say something very similar as to what im saying.. .best of luck everbody! im glad you found this forum! its fantastic!
"never let the fear of striking out keep you from playing the game"
~a cinderella story~
lyme, babs, bart since 1999, diagnosed in 2005...
and.... "what a loooong strange trip its beeeeen!"
~the greatful dead
lyme disease crossed out of my life for good!!!