Someone has propelled me to check in on my old stomping ground.
It has been over 2 years since I last visited.
My life started to return to me and now, I'm somehow gleefully immersed in it--but never can I forget the horrors of LD and the hope and support I derived each day from checking in on this forum.
I had disseminated LD and have battled it for over 7 years now. I was a regular on this forum just some 2 years ago, I believe. I still take my alternative treatments, but I'm soooo
much better that I'm living each day with LD on the backburner as so many aspects of my reemergent life have taken front stage, so to speak. I've reimmersed myself into a circle of friends and all the whirlwind activities of keeping up with them, lol. Once upon a time, not long ago, I was desolate. I'm sure some of you know what I mean by that word. Like no other illness, LD has a vicious way of alienating one from the world--it is designed to do just such!
I know that there's a thread about salt and vitamin C. I just wanted to start another thread and cover some of the essential basics that have worked for me--keeping in mind that this monster is multifaceted and may present itself uniquely for everyone.
I have pretty much gone by Dr. K's brilliant protocol: "Lyme Disease--A Look Beyond Antibiotics"...it covered all presentations of this insidious illness: bacterial, fungal, viral and parasitic. Abx just could not offer all the protection I needed that was caused by the other 3 major players in my particular case (with parasitic being a very disconcerting and dominant factor).
I did over 9 successful months of salt and vitamin C. I used sea salt (loaded with mineral traces and untampered with) and over 6000 mgs of vitamin C. The herxing was crazy--I had a herx that lasted 3 weeks once I hit the 3rd month.
I also took and still take LDN (low dose naltrexone) at night and felt, on the 3rd day, my neurologically induced DP (depersonalization) and DR (derealization) get better...my world started to re-connect and the despair (a profound depression) was lifting.
I paired LDN with armor thyroid (180 mgs)-- told my LLMD that it was a synergistic way to "turn on the lights"--boosting metabolic/immune functions--the basic foundation on which any attack plan could be made to "stick". With a re-awakened immune system, whatever we chose to nuke LD would better stick. And it did!!!!
LDN= 4 mgs nightly (it is an immune system modulator that re-starts endorphin
production--something that disappears when we are ill).
I take Para Cleanse daily ( anti-parasitic, kills all sorts of buggers) from Banyan Botanicals (online). This can be boosted by Neem (also by same company)--they are ayurvedic herbal formulas. I also take a heart formula by this company.
I've taken oil of oregano (for viral and bacterial co-infections)...
Dr. K's protocol is extensive and very hard to even understand, at first--but it's been a lifesaver. I've got an LLMD that has studied with him. I've taken some doxy, but mostly, we've stuck with the alternative (natural) approach as it can be done long term and will cover the other presentations of LD that are non bacterial in nature (viral, fungal and parassitic).
Everything I tried has been long term. I don't illude myself into thinking that I've conquered this beast--but I sure as hell have fought to get my life back--full tilt and with such joy. I am that kid in the candy store of life, lol. Especially after the horror of disseminated LD. I had sci-fi symptoms that were truly desperate. And now, they're behind me.
Although we don't know if this "thing" can be licked, trust me when I say, you can turn the tables on it.
Hang in there and give it all you've got. I used to play (and still do) loud music to drive the buggers crazy, lol--"they" hated The Pixies--my favorite band! lol...
Do not give up--this monster can be tamed!
Hugs and love to all fighting this valiant battle,