Emotional problems, Bart, Babs, etc

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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/30/2009 9:58 AM (GMT -7)   
I started out w/ a post on CajunGrl's swelling thread, but ended up w/ too much of my emotional stuff and would have been screwing up her subject.  Sorry. But I still want to ask  questions:
 
Nefferdun, I just happened to have posted some of the emotional stuff on your other post.  Your next to the last paragraph in CG's post just about hits it on the head! Esp the lack of connection to the world! This is getting really bad for me.
 
Questions:
 
Lyme causes mood swings, depression, etc.  Since Bart is so difficult to diagnose thru tests, how would the LLMD know to diagnose Bart and that it's not just the Lyme?  My temp stays low most of the time, unless I feel a fever. And it does fluctuate, but I know that is thyroid also, right?
 
Also, I tested positive for Babs.  I thought it was babs that causes the spider veins.  I have a lot (but I did before this last bite), but in my feet and all over my ankles it has gotten MUCH worse. Almost like bruises in some places, they are so thick, dark and close together.  And lots of deep purple dots,  I can't even say 'my ankles look like road maps', because they are much worse than that! (someday, I'll get a picture)
 
I thought this was babs?
 
I do not have any of the bart stretch mark type rashes, but have notable red spots all over my legs, and others not as notable all over my arms and chest.  What is this?
 
I have recently noted one brown spot on an arm that has come about only in the past few weeks. It is a different color of brown than an age spot or a bruise. It is round.
 
You guys, I am so scared! The emotional crap is now moving in and I don't know that I can take it.  This is too overwhelming.  30 strains of Bart??  How in the world can we ever figure this out??
 
And now I am more careful than ever about ticks, but freaking LIVE in the middle of them. This can happen again even at any time!  Just the knowledge of what all we can get almost within minutes is terrifying! (Rocky Mt, Anaplasmosis, etc)  And I haven't even been properly tested for those yet!
 
I now feel like I've had this crap almost all my life -- see my signature.
And Neff, I would have the same insomnia complaints as you if I did not take 150 mg Amiltriptyline and 2 mg xanax at bedtime. I have to freaking knock myself out in order to sleep.  I still wake up every couple hours, but the difference is that I can go back to sleep.
 
I don't know HOW to fight this like I need to because of the emotional crap.   I'm falling apart daily.  I know it will help when/if I get in to a new Dr. Meantime, all I know is to stay on the Amox unless it finally sends me over the edge.
 
Sorry for the rambling, but I seem to be cracking up today...
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Agmaar
Regular Member


Date Joined Jan 2009
Total Posts : 376
   Posted 8/30/2009 12:24 PM (GMT -7)   
Regardless of what's causing all the psych symptoms it's worth getting them treated. Have you talked to you Dr., psychiatrist, or pARNP about your depression, anxiety, and mood swings?

I don't know how I would have made it thru the last several years with Lamictal for depression/ mood and klonopin for snxiety.

Finding the right antidepressant is a trial and error process - you may need to try several to find the one that's right for you - but it's so worth it. The "emotional crap" gets to the point where it's debilitating.
Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/30/2009 12:58 PM (GMT -7)   
Agmaar, I've been under a psych's care (for meds only) for a lot of years. Lots of ups and downs, but stayed very steady w/ low doses of antidepressants and only 1/2 xanax per day for years.

Bottom fell out couple of years ago and only since Spring of this year did I realize/ believe it was connected to Lyme. Improved some w/ increased meds, but then recently the psychiatric stuff has returned and is at times unbearable. I allowed my Dr to increase my meds, but I don't feel I can increase them any more.

I don't know how to describe that my most recent mental stuff has felt physically caused. And it has felt that way since my 2007 bite. Everything felt completely different than it has EVER felt before. I feel much more defenseless. It had been kind of coming and going until I started Amox and now it is more severe and daily.

And it now feels overwhelming, considering all the add'l infections showing in my labs, plus the zillion more that others describe, and for which I have not even been tested before.

I'm sorry. And I agree -- it is often debilitating.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 8/30/2009 2:11 PM (GMT -7)   
Trust me i know what you are going through. I was hospitalized twice last year for unyielding panic attacks and depression and haven't really ever been right since. There are some days that I feel ok though and almost as if nothing happened...but then it comes right back. ive never cried so much or felt so helpless over the past year, and i used to be a strong, capable, leader type personality.

The meds im on now, paxilCR 50 mg, 100mg wellbutrin, 50-100 mg trazodone at night, has really really helped. I don't feel right in the head, but most of the symptoms are under control. ive done alot of reading with people who had bartonella and lyme who were in bad shape mentally too and after treatment they were just about cured and back to normal...but its just going to take time, maybe up to 36 months. Thats a hard pill to swallow but at least theres hope.

it might be time to switch ur meds around. Do get treated psychiatrically because it will help. All three of the drugs up there(paxil for anxiety, wellbutrin for depression, and trazodone for sleep), have been lifesavors for me.
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Zithromax,Malarone,Flagyl|PRN Nucynta/Percoset
 
 
 
 
 


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/30/2009 2:32 PM (GMT -7)   
Thank you, Vin. I will tell you this: I don't know what I will do, but I won't last 3 yrs of this.

Please tell me about your hospitalization - as much as you can. What did you do? what happened?

I often feel I need to go somewhere like a hospital (mentally), but I have no means of support besides my job, and I have 2 dogs who need me. I don't feel I have any choice.

Sometimes, I feel like just leashing them up and leaving w/ them. To where, I don't know. But, like just to see what happens.

I'm on 150 mg amiltriptyline and xanax as needed. I am too scared to mess w/ the antidepressants -- I don't feel I'd last thru the experimentation w/ new drugs. Much lower doses of Amil. always helped me in the past. My psych thinks I'm taking 200 mg Amil -- he kept pushing me to take more because of my symptoms, but I just don't feel I can take that much -- it scares me.

Even as I argued that my symptoms felt physically caused, I gave in to pressure to see a therapist last year. My first visit, she told me to go to my 'happy place' when anxiety struck. DUH. I was there because I had no 'happy place' to go to!

2nd visit, she told me to ask the psych to increase my meds. I told her I was seeing her because I wanted to get better and OFF of meds. She flat out said, 'You will never be able to go off the meds. You will need these for the rest of your life.'

2 visits and she knew this about me?? Complete and total waste of 80 bucks, that was.

OK, thank you. At least I've made a plan. I will call the LLMD who diagnosed me and make an appt and request refill on Amox. Once I get the Amox, I will cancel the appt because I can't go back to him. I cannt afford to sit in his office while he tries to figure out what to do.

I will call the Dr whose waiting list I'm on. I'm on his Lyme waiting list, he is also ID and PCP. I will tell them all the other junk I'm dealing with, in hopes of getting in there sooner.

Vin, please don't forget to tell what you can about what happened leading up to and during your hospitalization. What kind of hospital? What did they do for you? etc?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/30/2009 8:05 PM (GMT -7)   
+Lyme, You have a huge amount of symptoms for bartonella but the doctors you are seeing are not allowing you to try bart treatment to see if it helps you. There are times that we need to be our own advocates and take charge. Amoxy by itself is not even a very effective treatment for lyme. You need another doctor. I sure hope the one whose waiting list you are on will take you in sooner. When I got treatment i was emotionally better in weeks, not completely healed, but I knew I had discovered the real problem and was addressing it. I felt like I had a life again, that there was a reason to get up. Don't give up - take control and empower yourself.

I believe if a person can tolerate abx then they should knock the disease back with at least several months of treatment. After that I think you can take herbs like the HH capsules. If you cannot get a doctor to give you abx for bart, try the HH-2 capsules. They have no side effects other than burping the taste of dead fish (but eating after taking them gets rid of that). Start off with 3 a day and build up very slowly. Expect herxing but it is short lived. Emotional herxing can be very cleansing. You can take Herbsom (also from Zhang) for the insomnia. It is corydallis and works as well as most drugs without being addictive. Some of the drugs, like levaquin, are very bad for causing insomnia. I was sleeping very well after I got off of that and was using the HH. I think (hope) my recent insomnia is herx related.

I hope you can get someone to listen to you but don't worry if they won't - the herbs are very effective. In fact, Schaller says they are the only cure. The LLMD I saw diagnosed me with bartonella because of my symptoms which were much less severe than yours. He didn't even look at my skin. I don't have the stretch marks either. When I read the threads about bartonella on this site and looked at the symptoms, I had a gut feeling that I had it although I hoped I didn't. The LLMD handed me a list of symptoms for bart, babesia and borellia. Looking at what I checked off, he diagnosed me. He didn't even do a physical exam except to check my glands behind my ears and thumb for reflexes. I traveled 1000 miles to take the same test I found online! I had already diagnosed myself but I needed him to confirm it before I would believe it myself.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 8/30/2009 9:35 PM (GMT -7)   
i'm sorry your feeling like crap!! i hate it also!! i feel like i'm living in hell everyday.. not hell as in i'm in pain everyday.. because i'm not in pain.. i'm in alot of emotional pain though.. I cannot get over this either! I feel like crap. I'm depressed about my life.. i'm feeling decent about the health.. but i'm so scared of my future..i feel like i'm going to lose someone close to me... i hate it.. i just want all of us to feel better..

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/31/2009 12:13 AM (GMT -7)   
Lyme,

I am so very sorry you are feeling this way. I understand what you mean when you say that you think it's physical. I get extremely depressed when I am on treatment. I noticed that the Amoxy seemed to bring out even more of the depression. I had very bad anxiety too.

Maybe you need a little break from the antibiotics. My LLMD told me that if my herx got too bad, to get off the meds for a few days or until I felt better again. I had even called crying one day and asked for an anti-depressant because I felt like I wanted to just get out of this world....but not really. It was a weird feeling. I knew I didn't really want to go but my mind was saying something different...almost like I had something evil standing right there beside me. It was weird and very scary. I was told to stop the meds and I started feeling a little better within days.

Have you been detoxing? It is so very important to do that. You need to get those toxins out. It can cause so many horrible symptoms.

Ask your doctor if you can take a break. Your body may be overloaded with toxins. It makes since that we would be affected emotinally and physically if these poisons are envading our bodies.

I sure hope this gets better soon for you. Keep us updated and keep posting here. We all need support.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 8/31/2009 10:29:44 AM (GMT-6)


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 8/31/2009 5:28 AM (GMT -7)   
+Lyme said...
Thank you, Vin. I will tell you this: I don't know what I will do, but I won't last 3 yrs of this.

Please tell me about your hospitalization - as much as you can. What did you do? what happened?

I often feel I need to go somewhere like a hospital (mentally), but I have no means of support besides my job, and I have 2 dogs who need me. I don't feel I have any choice.

Sometimes, I feel like just leashing them up and leaving w/ them. To where, I don't know. But, like just to see what happens.

I'm on 150 mg amiltriptyline and xanax as needed. I am too scared to mess w/ the antidepressants -- I don't feel I'd last thru the experimentation w/ new drugs. Much lower doses of Amil. always helped me in the past. My psych thinks I'm taking 200 mg Amil -- he kept pushing me to take more because of my symptoms, but I just don't feel I can take that much -- it scares me.

Even as I argued that my symptoms felt physically caused, I gave in to pressure to see a therapist last year. My first visit, she told me to go to my 'happy place' when anxiety struck. DUH. I was there because I had no 'happy place' to go to!

2nd visit, she told me to ask the psych to increase my meds. I told her I was seeing her because I wanted to get better and OFF of meds. She flat out said, 'You will never be able to go off the meds. You will need these for the rest of your life.'

2 visits and she knew this about me?? Complete and total waste of 80 bucks, that was.

OK, thank you. At least I've made a plan. I will call the LLMD who diagnosed me and make an appt and request refill on Amox. Once I get the Amox, I will cancel the appt because I can't go back to him. I cannt afford to sit in his office while he tries to figure out what to do.

I will call the Dr whose waiting list I'm on. I'm on his Lyme waiting list, he is also ID and PCP. I will tell them all the other junk I'm dealing with, in hopes of getting in there sooner.

Vin, please don't forget to tell what you can about what happened leading up to and during your hospitalization. What kind of hospital? What did they do for you? etc?

My first symptoms started as psychiatric.   One day, i just started out of the blue thinking i was dying.  my brain went nuts.   I just started crying, panicking, crying, screaming, in rage... and sometimes during the day it would let up.   but then it always came back.   i would just walk in circles feeling like i was going crazy, i felt like i couldnt breathe, i couldnt sleep, stuttering all my words...it felt like i had done 20 lines of coke + 100 cups of coffee.   my mind was going 1000 miles a minute.   Went to ER after 3 days of this.   They gave me ativan and sent me home.   Went to GP.  Gave me 20 mg of lexapro.  Tried to wait it out while lexapro kicked in... but 2 weeks later back at the ER.   Was crying and pacing in circles, they admitted me. 
 
My first experience there was a good one.  They started me on .5mg klonopin(longer acting than xanax) twice a day and kept me on my lexapro.   The klonopin was like a breath of fresh air...panic was mostly gone(started to come back before next doseage though), and i was able to settle in to the environment.   Its basically like a bunch of people in different rooms(i didn't have to share a room because there werent that many people).  There was a game room, a tv room, couches, etc.   They had many activities, therapies, 1 on 1 therapy, meeting with psychiatrist each day.    The people in there had many different problems...from depression, to bipolar, to schizophrenia, to panic disorder(which i was DX with).   The therapists and psychiatrists told me that it could come from too much stress.  I told them that i didnt have any stress really, and that ive never had a panic attack in my life.   I ended up being discharged after 7 days.  Went home with klonopin and lexapro.
 
After a few days of being home...panic and crying resumed.   it was MUCH worse.  I went to a psychiatrist recommended by the doctor in the hospital.  He changed my medicine to paxil, xanax, and zyprexa, a mood stabilizer.   I tried that for about 3 weeks and i completely went ballistic.   My dad and brother rushed me to ER where they had to strap me down and shoot me up with 2 mg of IM ativan.    That held me over for 2 hours and then i flipped out again...more IM ativan.  Eventuallly i was just drugged beyond recognitiion and I was admitted again.
 
This time was a much worse experience.   The place was packed.   I was started on seroquel which was quite possibly the worst drug experience i ever had.   I was so zombied that i couldnt even spell the word  "the" in scrabble.  I had incredible amounts of anxiety, panic, but i couldnt keep my eyes open.  It was like being locked inside my body and screaming, but to the outside world i was just comatose.   Eventually i convinced them to put me back on klonopin.  I started to improve somewhat.   The people in there this time were nuts.  Heroin addicts, psychotic schizophrenic guy who would scream all day that he was going to kill someone, etc.  Was not pleasant especially for someone who had insane anxiety to begin with.   Eventually discharged 7 days later.  Was now on paxilCR 50 mg, 1 mg klonopin a day, 100 mg trazadone per night for sleep.   I felt like a hunk of raw meat, anxious, depressed.  i was like that for a few weeks.  The paxil started to work and the panic attacks started to dwindle in severity and number.   Still was very wired, and anxious and depressed, but was making some headway.   Eventually I had a few good days where i felt normal!!!(this was 2 months into it).   But then i got sick(this is mid august).  Had a fever, joint pains, extreme fatigue.. and my panic and depression came back although not as severe.    It went away after about 2 weeks.   I felt normal for almost 2 weeks!!  I went back to work and thought i was recovering.   And then one night i had a fever.... felt very very depressed, and anxious.   Joint pains, stomach pains.   5 days later at work I passed out.  I also have Ulcerative colitis/chrons... and that day before i passed out i was passing ALOT of blood in my stool.   Was quite bad.   So workers called 911 and i was rushed to hospital. 
 
For the next 6 months i was treated for my colitis, which finally improved but i was still very sick.  Eventually my GI doctor told me he thought I had a virus or something that was fllairing my colitis up.   He ran a lyme elisa test and I was very high at 1.91.   I ended up finding a lyme specialist and here I am today.   I now have a pain management dr, lyme DR, and great psychiatric dr.  They are all on my side and understand my disease and are all very smart and helping me.   I still have issues with anxiety, depression, but its much more manageable.  Sometimes i get a few weeks where I am ok in that department. 
 
I am just glad now to know im not crazy...just sick. 
 
If you are thinking of hurting yourself, or going nuts, the hospital can help you.  Every one is different...some arent run well and leave u worse off.   But if you are in a lyme endemic area, they will understand you.   I had a few people with lyme in there with me!  They ended up improving during there stay.   however with me, i had no known diagnosis with lyme so they just thought i was nuts.   It did help me however. Isnt a great experience, but if you are suicidal it will save your life.   They wont let u leave until u make improvements.   
 
Anymore questions, and be glad to help
 
Vin

P.S.  Also wanted to say that xanax can be a death trap for those of us with very high, unyielding anxiety/panic.   The half life is only a few hours, and the rebound effect is more anxiety/mania/depression when its out of your system.   Klonopin(half life of 9-36 hours) or better yet valium(half life of 1-3 days) is much more gradual and will keep constant levels in your system. 


History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Zithromax,Malarone,Flagyl|PRN Nucynta/Percoset
 
 
 
 
 

Post Edited (Vin) : 8/31/2009 1:21:39 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/31/2009 9:35 AM (GMT -7)   
Lyme,

How are you doing hun?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 8/31/2009 12:28 PM (GMT -7)   
Yes I second Cajungrls notion.

Also wanted to mention amiltriptyline is an older antidepressant and there are much newer and better ones out there. Lexapro, Paxil were good SSRI's for me of which i had 0 side effects. Low dosages of Wellbutrin have made a night and day difference in my depression. Before wellbutrin...i would sit and cry in the bathtub for hours several times a week. My panic attacks were controlled, but the paxil wasn't enough for this nasty depression. Wellbutrin made me a new man. I don't even need the benzo's anymore :).

Vin
History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Zithromax,Malarone,Flagyl|PRN Nucynta/Percoset
 
 
 
 
 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/31/2009 3:02 PM (GMT -7)   
I hope you are also being treated for bartonella Vin. And I hope that James, Lyme and Cajungirl get treatment for bartonella. I have read your posts and thought over and over, that each one of you have many the symptoms. Like I said, if you can't get an abx, try HH capsules to see what happens.

I am herxing on the HH. I did not realize the strength of the HH-2 was double that of the HH capsules so I took the same amount. When I figured it out I cut back but am still taking one gram more than I was before. I am doing better now. I feel really bad for you guys when you end up so sick with no one to listen to you, know what is wrong and give you what you need.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/1/2009 4:57 AM (GMT -7)   
Lyme,

Please update us on how you are feeling. You have been on my mind all night.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Kiss My Lyme
Regular Member


Date Joined Aug 2009
Total Posts : 23
   Posted 9/1/2009 6:12 AM (GMT -7)   
Hi.I'm a lymie for ten years. been to hell and back too many times. I even asked God to take my life.She didn't. Try this... lyme is an insidious invader. it will try to control you,define you. you must sepparate yourself from it. this a great oppertunity to define yourself to yourself, to know who your are,and to know "it"is not who you are.You are the boss.Untill this invader leaves you you must summon your Highest Power to achieve this. Let this be your meditation.You can do it I know you can .Like Teddy Kennedy said "There is nothing you can't do!" Peace Out

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/2/2009 8:46 PM (GMT -7)   
Thank you so much -- ALL of you. And Vin, what a horror you experienced!

I'm actually feeling worse. My whole body is throbbing, esp my mouth and feet. When the back pain comes on, it is almost unbearable, but I'm not giving into it. I'm having cognitive problems at work and making too many mistakes. As a result, the 3 Bs I work with have taken to stabbing me in the back, talking to me like I'm 2 yrs old, even making fun of me right in front of me!

I swear, If I was not sick, I would hurl my own insults, but have made up my mind to keep my mouth shut, cause I'm so afraid of going off. Just to verify this, the lady whose place I took, DID go off -- she went nuts on them and hit one of them. That is how nasty they are.

Anyway, the point being -- I don't give a rat's 'a' what they think. They make me sick and I know it's not worth feeling bad from it. But these past couple weeks, I know it is my disease allowing these B's to make everything worse. It makes me hate my job.

It is exactly as James said -- I feel like I'm living in a nightmare. It takes every ounce of strength to get out of bed. To get thru the work day, then give my dogs a decent life is overwhelming. I am sick of having to push myself so hard, all day long!

my pain has increased quite a bit since the Amox. So perhaps the Amox is helping and this is some kind of herx?

I know I need to be on some kind of babs treatment and need a better test for the Bart. Tho I am counting on the next Dr to figure out if I have Bart.

I truly appreciate everyone's thoughts and responses! THANK YOU! Altho, I hope you know that I'm not posting to get sympathy (but am grateful for it anyway) I'm posting to get info. Well........ sometimes I am posting to get a shoulder....

It just feels like it would be so much easier to attack this disease IF IT DIDN'T FREAKING MESS WITH OUR MINDS!!


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

Post Edited (+Lyme) : 9/2/2009 9:54:41 PM (GMT-6)


IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 9/2/2009 9:54 PM (GMT -7)   
I had emotional problems very early on after my infection. I had mostly anxiety and panic attacks, but my emotions were all over the map. I was finally diagnosed with Lyme, babs, and bart. Only after some heavy antibiotics did I get any relief. I tried some antidepressants for my insomnia, but they didn't help. I still couldn't sleep, but I had all the side effects. I'm much better now, but I still get the occasional flare up. My doctor has given me ativan in case I need it, but I haven't tried it yet.

I guess my advice would be to tackle the underlying infection as quickly as you can. That's your best chance at long term relief.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/3/2009 9:36 AM (GMT -7)   
Lyme,

I'm so glad that you posted. You had me worried girl! I know you don't want sympathy, but I do feel bad for you because I know how bad those feelings can get. I wish there was something I could suggest to help you out more. I really want to encourage you to keep posting here though. Having support is so important with this disease. If you ever need to talk, PLEASE email me.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/3/2009 10:07 AM (GMT -7)   
Thanks, CG. Please dont' worry when I'm not posting, unless it gets to be a long time, OK? Please know that I rely heavily on everyone's posts, and certainly yours, as you know so much.

I am not able to access this forum from work and I get my dogs out for at least a while each day, so sometimes it just gets too late and I'm too tired. I DO always check in and see what is most recent, but I can't always respond to posts or to many of them. I feel bad about the folks posting who need so much help and often I just can't respond to everyone because I HAVE to try getting to bed at a decent hour.

So don't go worrying about me, CG. I will let you know if you should, OK? And thanks again.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/3/2009 10:14 AM (GMT -7)   
Big hugs hun! I understand that you can't respond to everyone. If I'd be working, I wouldnt be able to do that either.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/3/2009 9:18 PM (GMT -7)   
You're so thoughtful, CG. Thanks for the hugs!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 9/3/2009 10:52 PM (GMT -7)   
+Lyme,

You don't post for sympathy no one does, we post because we know we are not alone and this is the place where you don't have to hold back.

Everyone feels some of your pain and everyone wants to find the right words to comfort you.

Maybe we don't have them, but you know we all care very deeply and wonder what can I say to help, maybe nothing other than just being here to listen and hope tomorrow will be better than today.

Jane

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/5/2009 7:24 AM (GMT -7)   
Thanks, Jane, and CG. You all help a lot. I often don't know what to do when I've gone down to the pits. I've oounted on my daughter so much that it hurts her to see me like that. And I know my boys couldn't handle it, nor could my parents. So this really is a good place to share, even tho I hate being so negative.

That's one thing getting to me about this disease -- all the negativity and irritablity and depression feel so physical, it's hard to work on the attitude, huh?

btw, CG, I will be done for most of the day, so no worries, ok?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/5/2009 7:42 AM (GMT -7)   
Lyme,

You better be okay! I don't want to worry about you while I'm in Florida. I was serious when I said to email me if you ever need to talk. I might not always have the right words, but I do have a good ear for listening. I know how bad this disease can get....emotinally and physically, so please email me anytime.

Hugs!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/5/2009 7:48 AM (GMT -7)   
+lyme- I thought I already replied to this thread, but apparently not.

I agree with nefferdun- I think getting treated for Bart is really important for the emotional problems. I know that I've experienced "emotional" herxes from the bart abx, so they do effect your mood. And you're really not negative at all! But I do agree that it can be hard to work on the attitude. I always feel like a whiner when I talk to my family, but I know that no-one here would ever call anyone a whiner. And your dogs will never call you one either! (I love dogs. I just moved away from home, and so away from my dog, but when I was at home, he really was a huge comfort when I was feeling down)

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 9/6/2009 1:01 AM (GMT -7)   
+lyme,

good to hear back from ya. the past 3 days my anxietys/depression have eased quite a bit and my just god awful crushing joint pain has scaled back, and my evening fevers have dropped to normal after 4 straight weeks of having 99.6-100.5. Tomorrow starts scaling back pain meds to see how i feel not being doped up and go from there. I swear, i didn't think i was gonna get better after the past 4 weeks of being part human, part nonfunctioning pile of organic matter. For 4 weeks my days consisted of being awoken from pain(lucky to get 5 hours) and me running into the bathtub and drugging myself, and then laying there until it was time to work, staying drugged through work, and then coming home to my couch and bathtub drugged until i took my trazodone.

My point being....Thursday...it started to turn for the better. Its been 2-3 weeks since starting my new lineup of antibiotics, and god willing, i hope ive turned a corner or at least ill get a break for a while. you never know when u might just turn for the better :). yesterday and today, i had enough energy to go for a walk and feel the sun and smell the air, do laundry, and clean out my snake cage. I know once im better, ill never take these simple pleasures for granted again.

Consider taking a bit stronger of an antidepressant like wellbutrin. it wont make you not sick, but it will bring back the goal oriented part of your life, so even if ur down for the count, u wont want to give up, u might even have other goals!(mine is to keep my new wonderful g/f happy, and to work on my mustang cobra(or just thinking about it!).)

Just curious..what drug regimens have you been on in the past? What was your western blot?

Hope soon you get on a new regimen or ur current regimen kicks in. Keep us updated.
Vin


History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease/Babesia - June 08 
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme/Babs
Drugs: 6mp 50 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Zithromax,Malarone,Flagyl|PRN Nucynta/Percoset
 
 
 
 
 

Post Edited (Vin) : 9/6/2009 2:06:36 AM (GMT-6)

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