Welcome and thank you for sharing your story. All of our "stories" are so similar, the medical community will EVENTUALLY HAVE TO DEAL WITH US! When I first got sick, I was told it was "all in my head". I was placed on almost every anti-depressant and anti-psychotic medication available.... until I insisted that it was NOT IN MY HEAD... and then about
a week later FINALLY received a positive LD test result... doctors started calling me right and left... I felt like their "hot potato" until I landed in my first Infectious Disease doctors office and was verbally ripped to shreds and told over and over again by a yelling female ID doctor that "WE DON'T HAVE TICKS IN FLORIDA. WE DON'T HAVE LYME DISEASE IN FLORIDA. WHAT, DO YOU THINK IV ANTIBIOTICS ARE FUN??? TAKE ALL YOUR LITTLE NOTES AND CALENDARS AND GO UP NORTH WHERE THEY WILL TREAT ANYONE AND EVERYONE WHO 'THINKS' THEY HAVE LYME DISEASE - BECAUSE YOU DON'T!!!"
I was no longer on the top of anyone doctor's list.. In fact I wondered many times if I was on a secret "black list" kept between local doctors. It took me 4 more months to find a doctor to trat me and he prescribed 200 mg of Doxycycline for 4-6 weeks. I COULDN'T BELIEVE IT. ALL THIS HE11 FOR A BOTTLE OF DOXY????? And that was how my LD journey began, now it's been 9+ years... I've had one true herx and thought I was "cured" until I started to slide back down... and here I am.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT
Theme song" - http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related