How many people exercise

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ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/8/2009 11:53 AM (GMT -7)   
I keep reading how exercise will boost your immune system and also help with the Lymes disease, but I am confused. I was told by so many on the board that exercise is a no no or is that just cardio?
What kind of exercise and how often are you doing it?
Hope to hear back from some of you soon,
Thanks : )

rcenters
Regular Member


Date Joined Oct 2007
Total Posts : 259
   Posted 9/8/2009 3:03 PM (GMT -7)   
Started in June 2009, I walk 3 miles a day, do light dumbbells weights/pushups/crunches twice a week and do some jumping around on a minitrampoline(along with arm movements) every day(some of you might call it a rebounder instead of a minitrampoline, but it's not a high quality thing like a rebounder would be, I'll probably wear it out in a few more months but hey it was only $30). I'm doing this both for direct health benefits as well as weight loss, and once I knock off about 10 more pounds I'm going to start upgrading the walking to jogging and probably increase intensity on the weightlifting too.

Bear in mind, I was not in such bad condition that I was stuck in bed and couldn't start exercising.

I have not repeated any testing, so I don't know if it's working with regard to cd-57 or anything, but I definitely have more energy. I wouldn't say I'm full of energy per se, but I definitely have more. I have more mental energy too, can actually sit and daydream about dumb stuff all day now. Couldn't do that before(or didn't care to, perhaps is a better explanation).

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 9/8/2009 4:39 PM (GMT -7)   
I Have never heard not to execise, I think there are some of us that at times are to sick to exercise. But if you can get up and do it you should. I have areally bad tolerence to heat it brings on my symptoms, so I don't exercise very often like I should.
 
I found swimming to be my thing the water keeps me cool enough. I don't stumble all around when I am done. Since my walking has been so bad and I injured my foot I haven't done anything lately and I know thats not helping either.
 
I think moving around helps you Detox and makes you stronger. Oh no now I have to listen to my own advice and get back in the Pool.
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


rcenters
Regular Member


Date Joined Oct 2007
Total Posts : 259
   Posted 9/8/2009 4:51 PM (GMT -7)   
Burrascano's guidelines say to avoid aerobic exercise is where that comes from...his guidelines say "until stamina improves"...I couldn't possibly interpret when exactly he intends for that to be.

In my own case though(and in my own opinion), it's nearly time to start the jogging(which is, of course, aerobic).

SassygirlNh
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 9/8/2009 5:27 PM (GMT -7)   
I play softball 3 times a week.  But i dont have the fatigue where i have to stay in bed. 
I just feel tired all of the time.

LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 9/9/2009 12:10 AM (GMT -7)   
WOW!!!!

First, I am so impressed with those of you that are able to do so much!!!!

ria123...

Before I became very ill (going on 5 months), I had a daily routine. In addition I was on the go 12+ hours a day with my bussiness and constant travel.

about a year ago, I started having difficulty keeping up with every thing and tired easily. The morning thing became less and less of a thing. You have to understand that I have been doing this and going to a gym for over 25 years.

Worried, I started going to doctors....stop smoking was the advice I got.

I am a smoker and in my mid 40's so I thought it finally caught up with me.

Now that I have been diagnosed with Lyme, fibro and CFS, my LLMD has told me to ABSOLUTELY not quit smoking and NO exercise...not even a little walk.

I have a very large home and even have difficulty getting around my house without wearing out. My doctor even went as far as to tell me to try to contain myself to a couple of areas within my home during the day until I have to climb the stairs to my room for bed.

I cannot believe this is me I'm talking about!

So sorry for the long reply to a simple question.

In addition to doxy, 5 sleeping aids and pain medications, my LLMD has me on the following to boost my immune system and give me energy: I give myself a shot of Globulin 1x a week, a shot containing...B12, AMP, Glutathione, NADH, Thymus, Methyl B12, Magnesium and Lidocaine 1x a week. I also take Inovir (antiviral and immune modulator), MitoNT, Vitamin D (5000 mg), UltraBiototics (supplement), Transfer Factor LymPlus, Omega 3 (10,000 mg), Vitamin C (10,000 mg), I also have powders that I mix together with water 2x a day: Flex Plus, Daily Energy Enfusion and Ribomax M. (you can google these)

I pretty much make my way from my bed down the stairs to my recliner. I have to go up another set of stairs to my kitchen and other stairs to go to my office. I have stairs going either up or down from every room in my house and two sets of staircases that go to the top floor. I guess I do get a little work out...LOL

Hope I've not bored you and that my information helps you some.

Wishing you well!!!!
"If you always do what you've always done; you'll always get what you've always got."

(Advice given to me at the beginning of my career by a five star General)


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/9/2009 6:17 AM (GMT -7)   
Wow that was very inspiring to read that so many of you exercise.
I did try to exercise around 6 months ago but 2 days after I exercised every part of my body ached even my feet hurt. guess it was a herx. If I get that reaction should I still continue to exercise?

LadywLyme, You did not bore me at all. Sounds like you get a work out with all those stairs in your home. : )..
I wish you healthier days. Hang in there you will get better.

rcenters
Regular Member


Date Joined Oct 2007
Total Posts : 259
   Posted 9/9/2009 6:51 AM (GMT -7)   
How intensely were you exercising?

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/9/2009 6:55 AM (GMT -7)   
I did 30 min on the elliptical.
 
Then the other time I walked around 2 miles. out doors.

rcenters
Regular Member


Date Joined Oct 2007
Total Posts : 259
   Posted 9/9/2009 7:09 AM (GMT -7)   
I've never used an elliptical so I'm not sure how intense that can be, though I'd have to guess it was more intense than walking...I'd just start off a mile every day, just walk, don't speed walk either, and try to work up to 2 miles or even 3 if you want to. Also note, I also designed a low-fat, low-sodium diet that makes sure to include fruits and vegetables, and chicken mostly for protein, and I avoid red meat as much as I can, so it's not just exercise I'm doing. I'm not a radical/fanatic anti-red meat person, I'll still have my hamburger every so often or meatloaf for Sunday dinner.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/9/2009 7:25 AM (GMT -7)   
rcenters,, you just made me laugh out loud, because when I was following weight watchers every sunday I would have either meat loaf or meatballs. LOL But you did give me really good advice, the elliptical is very intense cardio but very easy on the joints, thats why I love it. But maybe I can begin to do it less time then what I am use to doing and work my way up. Before I got sick with Lymes which was last August 2008 I was running 4 to 5 miles 3-4 x a week and dancing zumba 2 - 3 times a week plus weight training 1-2x per week. I was following weight watchers and I was down 47 pounds, but since I got Lymes I couldnt follow WW or exercise. I am going to follow your advice and go slow. Please feel free to give me any advice on this that you can. Thanks so much.

rcenters
Regular Member


Date Joined Oct 2007
Total Posts : 259
   Posted 9/9/2009 8:34 AM (GMT -7)   
If you are looking to lose weight even now, then one thing I do to pack on burned calories without working too hard is, in addition to my 3 miles every morning(which takes me about 55 minutes), I also try to do 10 minute sessions throughout the rest of the day, for example, 10 minutes just walking around the yard, or 10 minutes bouncing on the mini-trampoline. What I do on the minitrampoline is, I am using primarily calf movements, but at the same time, I work in 50 jumping jack movements with my arms, then 50 butterfly movements(squeezing the chest muscles) then 50 pushdowns(extending to work triceps), 50 arm curls for biceps, and then 50 movements where I hold my arms up level and pull them back(working the back muscles). This might sound intense, but it's not, I do it slowly and lightly enough that I do not even come close to intensifying breathing like you would expect from jogging. I "endeavor" to do those types of 10 minute sessions 6-7 times throughout the day, but in practice I can only force myself to do them 2-3 times. Which is still enough to keep the weight coming off, but still never manage to do my on-paper plan of 6-7 times a day.

I also calorie count, but I don't follow weight watchers or any commercialized near-scams like that, I went through and researched foods/nutrients in books/internet, picked a bunch of things that I can both tolerate eating and that should provide a good base of nutrients, and divvied it up to eat throughout the day, and here is what I do:

First off,I drink 90% water now. I only indulge in pepsi on Sundays, and I usually allow myself to eat whatever I want on Sunday(or meatloaf, spaghetti, hamburgers, whatever family cooks). While I do drink orange juice and other juices for the nutrients, I measure liquid calories right along with food calories. A typical day will see me do the following: 1) 200 calories of Kashi go lean cereal with 65 calories milk 2) 530 calories hardees biscuit and gravy(this is my daily indulgence to prevent insanity) 3)half cup orange juice 55 calories 4) tuna sandwich 310 calories 5) half cup grapefruit juice 65 calories 6) can of chicken noodle soup 150 calories 7)half cup of apple juice 60 calories 8)smoothie with 45 calories of strawberries, 55 calories yogurt, 85 calories grape juice mixed in 9) dinner is 150 calorie piece of grilled chicken with about 200 calories of collard greens, spinach, broccoli, and mixed corn/carrots/peas/beans and I also chew some raw garlic with this meal(usually I stick it inside a big bite of chicken, raw garlic is hard to eat lol). That's about 1970 calories right there, and by the time I've gotten to the chicken and vegetables its about 7 or 8pm, so if I need anything else I might eat a couple of 45 calorie popsicles. I may also drink a half quart of diluted gatorade(yes, it doesn't taste good diluted, but you get used to it) while I'm walking in the morning, that is an extra 60 calories or so too.

Now, I am an extremely picky eater, I hate most fruits and all vegetables. The vegetables that I've listed above, I basically throw them frozen into boiling water and then try to strain them out at a point in time after they've been melted but before the water starts boiling again(to avoid boiling out nutrients). Since I hate all vegetables I literally have to eat bites of chicken(which I do use barbecue sauce with) along with mouthfuls of the vegetables. You, most likely, have a wider appetite for fruits and vegetables, and could thus eat salads and other things that I would never touch - due to my pickiness the above is pretty much the only healthy things I can eat, otherwise I'd be off to get burgers and fries.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/9/2009 8:59 AM (GMT -7)   
rcenters. Thanks for all the valuable information. Sounds like a good plan. I will incorporate a lot of it into my daily routine.
Thanks for all your help and great advice. : )

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/9/2009 10:19 PM (GMT -7)   
Hi

I have a long answer too, sorry.

One of my first symptoms was tendonitis in my achilles tendon. This meant that for the first 4 months of being sick, I was not very active at all (I was "resting"). Then, when it seemed to get better, I returned to my very active lifestyle (hiking, biking, skiing etc.). However, my symptoms kept returning, forcing me to back off on my activities.

about a year in, I realized that resting wasn't fixing anything, I became very active. I think this is why my symptoms were so mild for so long. I would go to the gym almost every day, from anywhere between an hour and an hour and a half.

Then, in January of this year (1.5 years after getting bit), I developed such terrible shin pain, I had to stop nearly everything. Even swimming hurt. And I developed tendonitis in my arms that made biking impossible as well.

I was able to re-start my activities to a certain extent, but hiking for longer than 2 hours caused me a lot of pain, and I couldn't do anything other than walking and biking.

Around that time, I started getting a lot worse in my other symptoms, and started looking for other causes. By June of this year, walking for just an hour made my joints ache terribly. I got really good and ignoring joint and tendon pain.

I started a treatment a month ago, and I have not been able to exercise nearly as much. At first, I had more pain, and then I just had muscle weakness and fatigue. For a while going up a flight of stairs was about all I could do.

I am just starting to have enough energy to exercise again. I am starting off spending half an hour on the elliptical. I find that if I try to do anything for longer than about 45-60 min, I get really tired, and so I use the elliptical instead of walking because I get more exercise in the same amount of time. I can't go very often (I've gone twice in the last week), but I'm working my way back up.

Many people I talked to who were active at the onset of their treatment didn't get as sick as quickly as others. However, I feel that now that I am in treatment, I should not push myself as hard, as I need to rest, and conserve energy for my body to fight lyme.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/10/2009 9:49 AM (GMT -7)   
Nicky I agree, Listen to what your body is telling you. if you need to rest rest if you can exercise then do it.
Good luck with your recovery.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 9/10/2009 1:45 PM (GMT -7)   
Reading this is making me feel tired!
Most of the time I do not feel too badly and for exercise I ride horses. But that is easy because they do all the work. I was taking a really fun dance class over a year ago before I was diagnosed, and I think that helped me stay healthier with my body heat and sweat killing the little buggers.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/11/2009 4:11 AM (GMT -7)   
Wow, I wish I could do 30 minutes on an eliptical or run 3 miles! I'm lucky to make it to the mailbox and back (about 100 feet from the front door) without hurting, out of breath, and exhausted the rest of the day. I used to do 50 crunches (situps)/day amongst other things (about 30 minutes of resistance exercises) in addition to walking about a mile a day, but I couldn't come close to that now.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/11/2009 1:56 PM (GMT -7)   
Well, when I say 30 min on the elliptical, I mean a pretty wimpy 30 min. I'm still at the point where walking up a flight of stairs leaves me out of breath and exhausted (even more so than the elliptical!)
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