co-infection question

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needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 9/8/2009 6:57 PM (GMT -7)   
I was diagnosed with Lyme almost a year ago (IgeneX Western blot).   I tested neg. for other co-infections using standard lab corp tests.   I show a pretty significant improvement after several months of high dose antibiotics (doxy and biaxin).  However, over the last 3-4 months I have started getting worse.   My platelets are low, I've had occasional night sweats recently (usually relatively minor), and I feel jittery at times.  The pain is also much worse (primarily in my spine).  Should I consider getting co-infection testing repeated by another lab?  If so which tests/lab?  How much would these cost?
 
Thanks for your input
Brad

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/9/2009 6:21 AM (GMT -7)   
Brad I think I would get retested for coinfection through Igenex labs.
I know when I went to my LD he sent all my blood work there and tested for every co infection and it cost me $600.
Good luck to you.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 9/9/2009 8:40 AM (GMT -7)   
Hi Needshelp!
There is - unfortunately - the possibility that the LD was not eradicated from your body & you are having a relapse. OR - you have been re-infected. Neither of those options sound like fun - but I deal with both, myself.

Are you under the care of a LLMD? If so, have you talked with him/her about this?

IMHO - there are & will always will be tests that 'need' to be run, but a clinical dx by a knowledgable LLMD seems to be the most accurate in the end.~
Trav
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 9/9/2009 9:02 AM (GMT -7)   

Traveler,

I'm still seeing an LLMD and have been on high-doses of antibiotics for nearly a year.  I'm surprised that the ups and downs are still so dramatic.  At one point I was close to 'normal' but now things seem to be falling apart quickly.  It is very frustrating. 


RainBaby
Regular Member


Date Joined Feb 2009
Total Posts : 41
   Posted 9/9/2009 1:14 PM (GMT -7)   
My LLMD tested me for Babs, Bart, and Mycoplasma through good labs (Igenex, Specialty Labs, and Clongen, respectively), and all the tests came back negative (well, the Bart was borderline).

However, from clinical symptoms and my clinical narrative (the way the symptoms have responded to changes in abx and changes in other infections), I have CLINICAL DIAGNOSES of Babs and Bart.

You need an LLMD who can make clinical diagnoses of coinfections, since it is so hard to catch the coinfections given how well they hide and how the tests are not sensitive enough.

Even the best labs, like Igenex, only catch 30% of the people who have Babesia (If you have it, there's only a 30% chance you'll come up positive on the test).

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 9/9/2009 2:48 PM (GMT -7)   
I would ask your LLMD about covering you for Lyme and Bart. Did your doctor treat for Lyme cysts and L forms (ie flagyl pulsed in and Azithromycin for L-forms or herblas for cysts...)

Also ask your doc about your immune system. You can not recover unless this is strengthened, no matter how many antibiotics you take. You may want to check your CD57 and vitamin D levels. Use transfer factor and mushrooms... I don't believe we ever get all the bugs with antibiotics- the trick is to treat all forms of Lyme and co-infections and get the bug levels down so that the immune system can take over and keep you healthy and relapse free. My opinion- hope it helps.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 9/10/2009 2:00 PM (GMT -7)   
Most people are co-infected. My previous LLMD told me one lab tests for two strains of BLO and the other lab tests for one strain but there are over 30 strains so the chances of you not testing positive when you are infected is very high. That is why you need a clinical diagnosis based upon symptoms. Night hot flashes without drenching sweats is often BLO. Feeling jittery is another. A good LLMD should check your skin for abnormalities like "stretch marks", peas size brown spots that resemble age or liver marks, small red blood blisters, lack of pigmentation, nodules under the skin that hurt when pressed, swollen glands and swollen areas of the body that appear like edema but do not dent. I experience the same get better, get worse scenarios. One study said BLO is even more common than Bb.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 9/10/2009 2:48 PM (GMT -7)   

Hi Brad.  I am sorry you are feeling crummy.  I think it is possible your symptoms could be from Babesiosis and/or Bartonella.  I recommend getting tested for the co-infections at IgeneX.

 

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