Do you have this?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 9/8/2009 7:42 PM (GMT -7)   
Hi all-wondering if anyone here has had issues with constant inflammation of the pancreas. I have had it since Feb. My dad died of Pancancer a yr ago--thankfully my scans have been clear. I cant help but think this is tied to the stabbing nerve pains, muscle twitching, joint cracking--all over my body, and the random numbness and buzzing that started a yr back. I went on lyme meds for about 2 months off and then went off as I was not convinced I had it (had a couple pos numbers but that was it).
 
??
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 9/9/2009 9:09 AM (GMT -7)   
Hi King,
Have you been to a LLMD yet?

How long do you think you might have had a TBI - without any tx? The longer a person goes un- or under-txed, the longer it takes to rid the body of it.

So far I have had to have my appendix & my GB removed because of them being infected & then becoming diseased & infected. I know that I'm far from being alone with this.

I am a firm believer that there is absolutely nothing off limits to the TBI's once they get into our bodies.
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 9/9/2009 9:21 AM (GMT -7)   
I did go to an LLMD and she suspected lyme due to labs and symptoms--however I was only pos on a couple (thinik 32 and 34 if I remember properly), so I wasnt convinced I had it. I never got a rash and live in the city too. I was on meds for about 2 months
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 9/9/2009 9:53 AM (GMT -7)   
Personally, I didn't test pos. for any TBI's until after a full yr on stong abx. Now, well, now I test pos. for 2 - & have sxs of most. Kind of feels like we go backwards a ways before any progress is made!!

I never did have the bulls' eye rash - but less than 1/2 of those who do have LD ever get that specific rash.

Being in the city doesn't mean that you can't get LD - it gets transferred from ANY biting insect. If it can bite an animal - it can carry TBI's to humans.

Since LD is now "the Great Imitator" - not my words, but those of docs & researchers who work with LD patients - It doesn't always like to 'show all of it's cards' all at once a lot of times. That's what makes it so hard to dx & treat. It's as individual as the person who has it.

What is recommended by 'those who know', is that tx continue for 2 months after all sx have been resolved. If you have already reached the stage of 'chronic', then it's quite possible to have sx resurface. =(

Do you have any clue as to when you might have gotten infected? As for me, now knowing that I test pos for RMSF - I was infected before the age of 6 or 7. It also explains why my health has always kept the docs 'going back to the books' - as they always tell me.
~Trav
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 9/9/2009 10:23 AM (GMT -7)   
I have no clue. I have had odd stuff go on for a couple yrs--in 07 it started with gerd that would not go away. In May I did get these little red bumps on my thighs-4 of them, looked like flea bites. I got sick after, dr put me on antibotics as I was paranoid it was MRSA or something (though it really was small bumps). In June all hell broke loose- within two wks I started to get the following-stabbing/burning nerve type of pains mainly in odd parts of my hands, ankles, feet...., extreme joint cracking all over, muscle twitching all over (thousands per day), a feeling as though my leg was vibrating. I had numerous tests-MRI's, EMG, labs-all clear. Then I started getting detns and lines in all my nails, and random numbness in my right hand. I went to an LLMD, got on meds in Nov for 2 months. Then in Feb the pancreas issues started up, though the other symptoms have died down a lot (though still there, especially the muscle twitching).
 
I have had scans of my pancreas and they have been fine so far (thank God)...I just dont know what to think
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 9/10/2009 2:34 AM (GMT -7)   
Hi king,

Sorry for your misery. Re-consider the lyme and other possible concurrent infections. Find a good llmd and get a clinical diagnosis and do whatever tests are necessary to get you on track with treatment. The sooner the better.

Best wishes, bablymers mom

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 9/10/2009 7:25 AM (GMT -7)   
Hi King,
Bablymers mom gave some excellent advice!

With the exception of the pancreas, those are all things that can be associated with Lyme & other TBI's.

Lyme is NOT something to hope you don't have - it's best to get to someone who is truly qualified to evaluate you.

Please let us know how things go~
Trav
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, November 19, 2017 3:41 AM (GMT -7)
There are a total of 2,895,298 posts in 317,781 threads.
View Active Threads


Who's Online
This forum has 157385 registered members. Please welcome our newest member, Will74.
207 Guest(s), 3 Registered Member(s) are currently online.  Details
George_, Gemlin, Jaybee&GG


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.