Alone and Scared
, I am very sorry that you are alone and scared. And I am so very sorry that you have been so sick for such a long time. This is all so unfair! I think you will find this forum to be a life saver, please come and ask questions as much as you can.
Also, make sure to go thru the Newbie's section. The more you are with us, the less alone and afraid you will feel. You will learn a lot about yourself and your disease.
Your 'false positive' really depends on what test they gave you. In all my searches on false positives, I did not find info that supported that this is any kind of problem. I don't know enough about the Elisa, but it is possible that this test may give false positives -- that is why a positive Elisa is generally followed by a Western Blot.
As far as Western Blots, from everything I found, false positives are extremely unlikely, to unheard of.
Do you know what test it was? From here on out, make sure to request copies of all lab results -- it's helpful if your Dr will note that you are to get copies on his Rx before you even go to the lab. (not sure that all docs will)
We cannot tell you for sure that you have lyme, but I think no one will ever be able to tell you that you do not have it. As Ttlittlestar said, you really need to find a Dr who is knowledgeable and treats lyme.
Also, if you've got any cash, getting some blood work from Igenex would be a good idea. (when/if you see an LLMD, they will probably tell you that) This lab specializes in tick born diseases and their tests are more senstive than general labs'.
I can't tell what your feeling on Lyme is at this point, but I don't think that I, personally, would get into IV abx unless I believed very strongly that I have it. (I'm referring to you, not me).
Your symptoms sure do sound like Lyme, but I think you need a professional diagnosis, which is NOT outside the realm of possibility! You have been very sick for such a long time, you really do need a Dr who can help you and who you believe in, because I think you've got a long road ahead of you. Still, w/ proper treatment, maybe you will experience some immediate relief!
I believe you will find a veritable wealth of information here. I was at first so overwhelmed, I was in despair, but gradually, you will feel more and more confident in your searches and your feelings.
We will all be thinking of you and pulling for you! And since I don't have much time now, I am including everyone on this forum --- I am pulling for everyone! We ARE going to bust this thing wide open and defeat it!