rifampin anyone?

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hopefulgrl
New Member


Date Joined May 2009
Total Posts : 10
   Posted 9/14/2009 10:17 AM (GMT -7)   
Hi all,

I've just been diagnosed as being once exposed to rocky mountain spotted fever so i was put on 300mg per day of doxy not sure if thats enough. Now my LLMD wants to add rifampin 300mg 2 times a day for a clinical diagnosis of bartonella.

I'm just wondering how other's experiences were on this drug. How long did you take it for? Did it help resolve neuro problems (mine are neuro and eyes) and did you have any side effects.

As well did anyone take this combo with doxy? IF so how high was your dose?

Thanks for all the helpful information it's nice to know we're not alone in this crazy battle.

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 9/19/2009 7:39 PM (GMT -7)   
This works well for Bart. You will herx from the Rifamipicin and my herx was mostly emotional so go slow. I advise starting with 300 mg/day for 4-5 days. Take it late in the day. Good luck and get support if you need it emotionally- this was the worst symptom of Bart for me.
Grew up with Lyme? TB aged 12 so did 2 yrs antibiotics as a kid. Weak immune system lifelong until self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Claforan, IM Bicillin, oral Azithromycin, and pulsed Flagy, with herbs, acpuncture, homeopathics and amalgam removal.


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 9/19/2009 7:40 PM (GMT -7)   
i took rifampin with no side effects, took it for a month and quit it..

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 9/19/2009 7:43 PM (GMT -7)   
James- Why'd you quit? What dose did you use/ Could the marks on your stomach be Bart?
Grew up with Lyme? TB aged 12 so did 2 yrs antibiotics as a kid. Weak immune system lifelong until self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Claforan, IM Bicillin, oral Azithromycin, and pulsed Flagy, with herbs, acpuncture, homeopathics and amalgam removal.


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 9/19/2009 7:53 PM (GMT -7)   
pcpc, i quit because i was tired of ABX!! i felt ok, now i feel crappy.. so i started zithro since i have a bottle left, i have no idea about the marks on my stomach being bart..i have symptoms of bart, lyme, babs still.. i don't know which one to treat still.. i have a bottle of clindymacin and zithro still.. i figured zithro attacks most of the lyme..

its confusing on what to do...

saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 9/22/2009 12:10 PM (GMT -7)   
I could not tolerate Rifampin. I tried to take small doses but that didn't help. Rifampin made me hyper and stressed out. However there are some ABX that others have trouble with that I tolerate just fine.

I have been on Biaxin and Spectracef for about ten months now. I can't remember all the ABX Iv'e taken. In November I will have been getting treatment from a LLMD for three years now. I am feeling pretty good (knock wood).


I am also presently taking Plaquenil, Celebrex, Neurontin and some things to help me sleep.

saxmar

RainBaby
Regular Member


Date Joined Feb 2009
Total Posts : 41
   Posted 9/23/2009 1:02 PM (GMT -7)   
I take Rifampin 300mg 2x a day with minocycline, originally 100mg 2x a day but raised to 200mg 2x a day (I herxed more on the higher mino dose).

Yes, lots of herxing, tiredness, and pain inside what seemed to be my bone marrow.

But great improvement in my neuro symptoms. My subcutaneous nodules went away for a while, but they are back. Not sure what's up with that.

But yeah, I've had more success with Rifampin for Bartonella than with Biaxin (couldn't tolerate) or azithromycin.
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