Help with dealing with the emotional side of Lyme-who can I talk to, and what can I do?

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Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/15/2009 11:25 PM (GMT -7)   
So this is going to be a long and not-so happy post. Basically, I'm miserable, and don't know what to do about it.

Although I am starting to feel better psychically (well, not so much better as just not feeling worse anymore), I'm having a far worse time emotionally. I already did a post on crazy mood swings, and I'm pretty sure I'm in danger of becoming depressed again (if I'm not already).

My sister recently indicated that she was tired/annoyed of hearing about my problems with lyme disease- she said "I know you have lyme disease. Something is always wrong- do you have to tell me about it all the time?" My closest friend at school doesn't care in the least- she still tells people it comes from spiders, and and basically forgets/ignores it all the time, or even makes fun of me. I have one friend willing to talk to me about it, but he is in a totally different city, and to be honest, I'm wondering if it is fair to him? Dealing with someone else's problems can be very draining, and I feel guilty about dragging him into my mess.

The other problem I'm having is that the rest of my friends don't get it at all. They get annoyed when I forget things, or back out on doing things at night (I can't handle doing much at night). And it's making me pull away from them, because I have trouble relating to it. Right now, I have to plan nearly everything I do around my meds and my symptoms, just in order to survive school. But the more I pull away, the more isolated I feel, and the more unhappy I become.

I've considered going to talk to a counselor (we get 10 free sessions through the university), but I don't know how to talk to them without mentioning lyme, and I'm terrified as being labeled as "crazy" if I mention it. The other option is a peer support center, but I'm worried I'll know the person, and then it'll just be awkward. (It's a slim chance, but still...)

I think, if I do things right, I can do this without anti-depressants. I know I want to do it without them if I can- mostly because I like to feel "in control" of myself, and I worry that medication will take that control away, at least in terms of my emotions. I also know several people who have had horrible experiences with anti-depressants, and so I'm kind of scared of them. Also, I have developed a near phobia of Dr.'s, and I don't know if I would be able to go to a Dr (even my LLMD) to ask for them.

Also- and this is embarrassing to admit- I have a "thing" about talking about depression. Basically, my family has the "we just don't talk about it" attitude. I know it's nothing to be ashamed off- one of my closest friends is bi-polar, and I never once thought less of her for it- but I feel embarrassed nonetheless. And I feel guilty- there are far sicker people who aren't depressed. What's so bad about my life?

I know this is a long post, and it's kind of a "downer" and I'm sorry, but I just feel really lost right now. I'll try to post a happier, positive post when I can. I don't know who I can/should talk to, and I don't want to go on drugs, but at the same time, I wonder if that's just a stupid attitude to have.

Nicky

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/16/2009 12:52 AM (GMT -7)   
Nicky,

Big Huge Hugs to you! I don't know if you like hugs, but I'm giving you one anyway. We all need one every now and then.

The emotional side of this disease is horrible. Maybe you should try to talk to someone. At least you'll be able to get it off of your chest. I never used to believe in therapist but do now. They can sometimes show you different ways of handling things that we may not know.

I have a supplement I take when I get emotional. It has valarian root, magnesium and skullcap in it. It works like an anti-depressant but only lasts about 4 hours. I don't feel like a zombie on it either. Not saying all anti-depressants do that because Lexapro really helped me out for two years, but some of them do. The one I take is called Muscle Calm if you want to look it up. You cannot take it with anti-depressants or nerve pills. I find that it helps.

Anyway, I hope you feel better soon. I'm sorry you have to deal with friends like that. Maybe give that friend that lives out of town a call. It helps to talk to others that understand or just listen.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/16/2009 4:06 AM (GMT -7)   
Keep in mind also that we can herx emotionally as well as physically, which can be very stressful on caregivers, friends, and family - as well as on us! It is not easy to admit one is depressed - so you've gone a big step of the way to recovery from depression just saying the word and admitting it is a possibility.

Supplementing with theraputic amounts of Vitamin D3, B-Complex vitamins, and essential fatty acids (omega-3, 6, & 9) can help balance brain chemistry and thus help in the battle against depression and other emotional/mental issues. Also, certain foods can promote imbalanced neurotransmitters for some people - especially dairy, wheat/gluten, sugar, artificial food additives, preservatives, and other foods one may be allergic or sensitive to. Carbohydrates tend to increase the "feel good" neurotransmitters in the brain, hence why we sometimes crave sugary foods when we feel down. Unfortunately, giving in to the cravings can set up an addiction cycle - crave carbs, eat carbs, crave more carbs, eat more, etc. - which won't solve your initial problem of feeling down.

There are lyme literate counselors and psychologists out there...perhaps you could find one through this group (you might want to post what state you live in and ask if anyone knows of a "lyme friendly" or lyme literate counselor in your area).

Good luck,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/16/2009 9:24 AM (GMT -7)   
Hi Nicky,
I am sooo very sorry you are going through such a rough time. CG is right - we all need a hug of understanding once in a while.

I went through pretty much the same thing & still do from time to time - only I'm not in school. The only way I made it through was to have a Lymie-buddy. Someone to really open up to that has or had has to go through this same thing. HW provides a lot of support, but for me, I needed some one-on-one time as well.

LD can be so very devastating to one's life - and even without getting into how to handle the symptoms, it's just plain hard to get through it all when a person is surrounded by those who just don't (or won't) understand how devastating it can be.

I have 'a thing' about talking about depression with anyone! I've been told that was the only thing wrong with me for so many yrs, I rarely admit that's what is going on anymore. With that being said though, I am currently taking a

anti-depressant & I don't think I could make it right now without it - another thing I won't talk about usually. Although, I can't help myself when a fellow Lymie cries out for help.

Seriously, when facing issues such as you stated - how can we NOT be depressed?? A lot of us have fought for many years, with many drs in order to even have the fact that we DO have LD - when your friends kind of 'turn on you' it is hard - been there done that!!

Please, please Nicky - do what you need to do to take care of yourself. Those who won't understand will just keep you from doing what you need to do to heal yourself.

My heart really goes out to you - hang in there. This is from a post I made some time ago; www.butyoudontlooksick.com [url] On the left side, scroll down until you see "the spoon theory" . 'Click' on that and read on my friends! I pray that it will help to explain to those that you want to understand how we have to approach each and every day.

Please feel free to email me. should you want to. Just, please help this Lymie ~ and use your HW user name, or mention HW!! Otherwise I will be confused for days!!
Trav rolleyes smhair
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

Post Edited (Traveler) : 9/16/2009 10:36:32 AM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/16/2009 12:17 PM (GMT -7)   
Traveler,

I just wanted to mention how kind hearted you are. You always give everything you have. This world needs more people like you.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 9/16/2009 12:41 PM (GMT -7)   
Nicky,

Hope that you are able to find someone that you can trust to talk to soon. It sounds like you've got a lot of stress going on too right now! Adding another hug!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/16/2009 1:05 PM (GMT -7)   
Awwwwwww, shucks, CG!!!

Actually I know what I "get to" deal with & it ain't no fun going it alone!
Thanks anyway.. =) =)

Of course my offer of email ing me anytime goes out to everyone - not just a select few. Althoug I feel I MUST warn you - I do get a little goofy!
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/16/2009 1:40 PM (GMT -7)   
We are all goofy with this disease especially when it causes brain fog! We'll all be goofy together. Too bad we can't all meet up. We could hang out and listen to each other moan and groan, lol. At least we would understand each other.


Nicky:- How are you doing?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/16/2009 3:47 PM (GMT -7)   
Oh Lordy!!!
Wouldn't THAT be a sight!!!! =) =)
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/16/2009 4:42 PM (GMT -7)   
NICKY D, I am really feeling for you right now. The first thing that popped into my head is that you need to do WHATEVER it takes to help your situation right now. Go see the counselor and talk about LD and the isolation you are feeling. This is all real and your world. You need to talk with someone. Family members and friends are only human. They have their own situations. If you have access to a counselor, then go. If you need medications to help with the depression, take it. This could all really help you. What you are doing now is not working. Know what I mean?? I send good vibes your way and you are not alone in this. love, amey

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4306
   Posted 9/16/2009 5:50 PM (GMT -7)   
Hi Nicky,
 
I understand so well what you are feeling as I never forgot my dark days when I was really sick.  I was totally isolated (my family didn't want to hear the word lyme) and my friends never got it.  I had never felt such lonely feelings in my life..   No one understood and it took all my strength to face a new day.
 
My biggest support actually came from my dogs during that time, yes, unconditonal love.  My dogs sensed what I was going through and would lick my face constantly and put their paws around my neck. 
 
When I found a lyme forum posting helped me much, even if it was just venting.    I also used to type my feelings on Microsoft Word, for some reason writing my feelings really helped me, wrote a couple of horrible poems too. 
 
My heart goes out to you and even when people would tell me to hang in there, there were times I didn't think I was going to make it.  But I did and you will too!
 
We are here for you and you are not alone.. 
And I'm going to send you a Big Hug too!!  So there!   yeah
 
Hugs and more hugs,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/16/2009 6:23 PM (GMT -7)   
Hi everyone,

Thank you for all the advice and support- Traveler especially. Massive hugs all around (I LOVE hugs CJ!). Hearing what you have to say helps me clear my head a little, and it helps to know that other people have had/do have similar problems, and have found ways to make it through them.

Although I agree with traveler in that I think I need to find someone I can talk to one-on-one, just "talking" about things here did help a bit, so that is good. And I have a phone call (hopefully) lined up with my friend tonight.

And stutterbug- I completely understand that dealing with my mood swings can be stressful on my family. That is why I think I need to find someone to talk to who isn't a friend or family- that way I don't have to worry about leaning on them so much I drive them away. The fact that I drove my sister to that point is, I feel, more of a poor reflection on myself than on her.

But i might print out that "spoon theory" traveller. RD posted the link a while ago, but I didn't realize you wrote it! It's really powerful. I just have to find a way to bring it up so it doesn't feel like I'm trying to guilt-trip the other person.

I haven't yet decided what I'm going Co do, but I know I need to do something. So I'll talk to my friend and consider my options, and decide on a course of action. Because I'm in canada, we have no lyme-literate counselors or psychologists.

I just feel like Lyme has made me totally lose who I am. I a completely different person from the person who I was two years ago, and I no longer have any idea what is "normal" for me- emotionally, mentally or physically. And I worry that I'm never going to be able to get the "old" me back- or that I won't know when I do.

So thanks again everyone. I'll be saying prayers for all of you as well.

Nicky

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 9/16/2009 6:51 PM (GMT -7)   
Nicky,
Just wanted to let you know I was thinking of you. I think this disease is quite lonely. I feel as you do that I don't even remember the old me. I swore at the begining of this journey I wouldn't "become" this disease. Lot easier said than done. Support system isn't the greatest or do they just not understand? I try to do things that make me feel better. Play with my dogs(like them more than most people),listen to music, take a warm bath...watch a movie. Notice these things don't really involve people? Sometimes people just bug me and I find I can't deal. Maybe take some time just for you. Get a massage or facial. Take care of you. Block the others out. I have learned to cope. Getting used to the new me is probably the hardest part. I hope you have better days ahead. And personally counselors sometimes try to connect your problems to your childhood. They don't get Lyme either. Maybe not all of them but that was my experience. I'd rather spend my money at the spa! Keep your chin up...there will be better days ahead for you.

gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 9/17/2009 6:16 AM (GMT -7)   

I agree with all that 'stutterbug' advises [above].

I have recently started taking a - iron and mineral supplement - I live in UK - over here it is called 'Spa-Tone' - its just a small sachet each day - I take with a 'fizzy' vit.C drink - it definately gives me an energy boost which in-turn lifts my mood.  Maybe you could find equivalent and try it.

Best Wishes.

 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/17/2009 6:33 AM (GMT -7)   
Hi Nicky,
Thank you for your kind words and of course I wish you only health & peace!!!
Buuuuuuuuuttt - just to be sure to clarify - I didn't write 'the spoon theory', but boy-oh-boy(!) I've been ever so happy to share it with anyone & everyone that will stand still long enough!!!!
I was soooo happy to read that you thought you had a friend 'lined up' to talk with - and you are so very correct when you said that just talking here helps!!
I, myself, don't do real well with talking to anyone about my health face-to-face, so health forums are my thing (yessss, that's why HW can't seem to get rid of me!! **giggle!**)

Hang in there - we are all here whenever you need us!!!
Trav =)
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/17/2009 7:16 AM (GMT -7)   

Oh Nicky, I am so very sorry. I am really limited on time right now, but I must respond to your post.  I, too, know exactly how you are feeling, so please try to hold on and understand this is part of this wretched disease.

I, too believe that the depression is the worst part of this disease.  It prevents us from being able to use our mind to build up our immune system and  help cure the disease.

I have also learned that when we are in the depths of our depression, all the things that are hurting us or have hurt us eat at us and bring us down-- like the way others view and treat us and the isolation.  Because at times of a little relief from the depression, we're able to see and understand these things more clearly and they don't hurt quite as bad.

I'm sorry, I don't know how to express all this. But I want to tell you I understand -- I have been there on and off for years(I seem to be experiencing a little improvement right now) and it is horrible, unbearable, and terrifying.  I know that it is the disease because I have been on anti-depressants for years, and they have helped me. Yet they don't even touch me when I'm in the throws of the Lyme depression.

It's like it attacks and takes a grip on you.  At these times, nothing that I know of helps. And it is also very painful, physically.

I don't know why our families and friends do not understand. It seems they want to ignore it and they don't want to believe it.  If they are healthy, they don't understand such a 'negative attitude' and they don't want to be around it.

Nicky, I know I haven't offered much help, except to say you are far from alone.  And I am positive that there are tons of people out there suffering from depression that dont even know they have this disease.

Right now, I feel pretty sure that I went thru what Razzle (was you, wasn't it?) called an 'emotional herx'.  Several weeks into Amox (after several weeks of doxy), when I didn't feel any improvement yet, I became a total emotional disaster. I was terrified because I couldn't get a grip or lift myself out of it.

Every day for at least 2 week, I felt a horrible desperation.  It slammed me every afternoon and went I got home, the 'S' word would not leave my mind, even tho I know I won't go there. It's like it came to me, it was not me who thought it up. I can't describe how I felt, but I think you know.

Even my daughter, who has been my closest ally and the only person who knows how sick I have felt, didn't want to hear it.  She got angry and said 'Mom, you have to get out of this. You have to stop this. You can't do this to yourself anymore. Go see a therapist or whatever, but you are making yourself sicker.'

Yes, the worst part is losing yourself. Even when first treating for depression years ago, I was so strong and such a positive person.

Nicky, I'm still slipping and sliding a little, but it seemed that all of a sudden I got some relief.  And I felt slightly less tired, so I think it was some herxing. If you are receiving some treatment, I hope that is what you are experiencing.

I don't know what will help you. You definitely need to be here. It is possible that an anti-depressand may help you. I understand if you don't want to do this, but keep in mind that they do not cause you to lose control. They are nothing like a narcotic. Just make sure to stay close to the prescribing Dr in case it is not the right one for you.

Nicky, again, I'm so sorry. I know it all feels totally black and hopeless.  But it really isn't. It WILL get better. PLEASE try to see this as 'temporary', because it is.

You have TONS of good people pulling for you, so we know you will make it! Do all that you can to hang on and recognize this for what it is. YOU are not defective, it is the Lyme that makes you believe otherwise.

 

 

 

 

 

  

 

 


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/17/2009 8:09 AM (GMT -7)   
I'm sorry, but I wanted to add this -- because it's a problem for me and I'm betting it is for others too.

As for our family, friends and co-workers and how they respond to us -- I often think others believe we are using our disease as an 'excuse'. An excuse for making mistakes, an excuse for our negative attitude, an excuse for not feeling like doing anything, etc etc etc. And some believe we are just trying to get attention and sympathy, etc. As if that's what we want! Sheesh!

I really believe this plays a part in how others are treating us.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

Post Edited (+Lyme) : 9/17/2009 9:17:45 AM (GMT-6)


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/17/2009 11:04 AM (GMT -7)   
I had a talk with my pshrink today. She was upset that I missed my last appt. BECAUSE I DIDN'T FEEL WELL (believe me, I'll be charged anyway). She told me to get into physical rehab and start doing something everyday.... but not to over do it, etc. etc. etc. Almost nine years of this SAME DISCUSSION. I barly responded to her. I'm sick, I hurt, I'm exhausted, and I just did a 3 week odyssy of he11 with Oxycodone. And, since she recently had knee replacement surgery.... evry ache and pain of mine is filtered through her.... "When I was having my surgery...blah. blah, blah", or "After my surgery, I needed rehab...blah, blah, blah".

I've been off all abx's and all pain meds. for almost a month now. I have went straight down hill. I even cancelled a trip to Indy to visit my parents this week (Only M through F, 5 days!) I see my pain mngmt. dr. and my LLDr. (both) next Wednesday.

So, I don't know what to tell you. And I don't know what to tell my pshrink... but I can empathize with you even though I have no real solutions.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/17/2009 5:26 PM (GMT -7)   
Deejavu- I was trying to write my response when you posted, so I didn't see what you wrote. I have a dog too, but he lives at home (and I'm at school in a different city). I'm glad your dog makes you feel better- I love mine to pieces too (and I know for certain there's at least one other person here who as dogs they spoil rotten!)

And +Lyme, thank you for that very thoughtful post! You definitely had some good points. And it is nice to know I'm not alone in this.

Jelaine- that is one of the reasons I'm scared of going to counselor with medical training. I don't know if I could handle dealing with that from the person who was supposed to be helping me. Have you considered going to see someone who is more of a counselor, and less of a shrink? It sounds like what you need is someone who can help you deal with feeling sick- not someone who will try to tell you what to do about your health, but someone who will listen? Is that right?

As for me, my friend broke up with his girlfriend of three years last night, so no phone call. I got me re-test results, and they had become even more negative than my original test- so my Mom phoned to tell me lyme didn't really same to make sense any more, and maybe I just felt worse on antibiotics because I was "supposed" to feel that way...and my grandfather- who I'm trying to get tested for lyme, since he had the bulls eye rash and every symptom in the book- phoned to say their doctor said the whole thing was a scam, and my aunt (who is a lab technician) phoned to say there is no reason why I should be sending blood work to the states, and that suggesting it to my grandparents was self-centered and I was taking advantage of them. When it rains, it pours I guess?

But on the brighter side, I'm going to get a haircut tomorrow. It's at a beauty school, so it's really cheap, but it's for a really high priced salon, so the students are really good, and very friendly. So I guess I'll just have to make that my happy point to look forward too.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/17/2009 8:54 PM (GMT -7)   
Yep, Nicky, a good haircut can bring you up, even if it doesn't go deep enough. Know what? Just the fact that you are going to go do this is an excellent sign.

Nickie, Dejavu, and Jelaine -- I sure sympathize w/ you about the shrinks. Are you all talking about psychiatrists or psychologists? I have a psychia who does nothing but see me twice a year and all he does is prescribe my anti-depressants and xanax.

I have asked him for psychotherapy, to hypnotise me and to test me for Lyme. He will not do any of these. He said that he understands that Lyme may have caused my most recent symptoms to worsen. But he says he is there to prescribe meds and nothing more. I just get the idea that he doesn't know enough about it.

I went to a psychologist for therapy. This was long before I realized I had lyme. I went to her because I wanted to try to find out what the heck was wrong w/ me. I went in there w/ the complaints of depression and anxiety.

She did not listen to me. She made me describe what would be my 'happy place' and did not get it that I did not have one, which was the reason I was there! When she told me to ask my psychiatrist to increase my meds, I told her that I did not want to increase my meds. I wanted to find out what was wrong and work towards getting off of meds. She then told me I could never get off of meds, I would need them for the rest of my life. This was NOT a satisfactory reply!

IMO, regular therapists are just like the rest of the population -- there are some who are very good and there are some that are worthless. It is a crying shame that we sometimes get stuck w/ a worthless! I also believe that they have all been taught the same psychobabble in school. It is meaningless and useless. (going to a 'happy place' when you are in the throws of a deep depression. PULEEZE)

Bottom line is that neither profession is learning what they should, and doing what they should. For example, learning more about Lyme, co-infections, and the most successful treatments SHOULD be a part of their studies, plus their own current research!

Yes, I believe that both of these professions are, by definition, 'negligent'.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/17/2009 9:12 PM (GMT -7)   
I became a cynic (sp?) at a very early age when dear ole mom thought I should see one of them to help me when my dad left. BAD idea! He was one of "those" weirdos.

I really feel for those of you who have reached out to only be hurt more.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 9/17/2009 11:31 PM (GMT -7)   
Know what you mean Nicky, people get sick and tired of being around and listening to sick people.
It happens to all us Lymies.

I've noticed that when I talk about my overwhelming fatigue I get replies like...I know what you mean sometimes I get so tired I can't stay awake...They really have no idea what Lyme Fatigue is like it's such a subjective thing as most Lyme symptons are. You are very sick and often don't look sick. You have to have Lyme Disease to understand it.

Come here and vent all you want...everyone knows and understands exactly what your going through say whatever you want/feel and know your not alone.

HW & it's members helped me more than my GP they also know a LOT more than he will ever know.
I doubled the doxy dose he prescribed because many members said 100mg twice a day was not enough I should double it, I did and felt better almost overnight.
I do have to say I was in late first stage so had a good chance of a full recovery, but I still credit my recovery to the members advice.

Your in good hands here, lots of love and compassion...expert advice too.

As for therapy I would certainly talk about Lyme. I think it would help and you will leave feeling a little better that someone is there to listen to you.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/17/2009 11:56 PM (GMT -7)   
McJane: Its nice to know that the members here helped you. I'm so glad you're feeling better and did it the "right" way!


Nicky: SENDING YOU LOTS MORE HUGS!!!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 9/18/2009 11:48 AM (GMT -7)   
Nick

check your email :)

your in my prayers
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 9/18/2009 5:55 PM (GMT -7)   
Oh Nicky! Do not ever apologize for being a "downer." You feel how you feel and don't ever try to cover that up. I am relating to your post so closely right now that it is scary. People don't understand this. And I just came to the conclusion myself that people want to be around bubbly happy never any problem type personalities. But, at the same time, people like hanging out with evil people who are two-faced and bitter. So, really, my conclusion just confused me even more:)
I have lost all of my friends. Except for maybe 1 or 2 who I just never get to talk to. They are so busy with their lives that i dont know if they don't care about me or if they are just too busy. I try not to think about it, but it is super hard to be home in my empty house that i cannot afford ALL day with no one to talk to. I am depressed. I was diagnosed with depression when I was 15 and have been medicated for at least 10 years. I am 30 now. Truth be told, I have been one at least 15 different types of anti-depressants. None of them actually worked. Some, did seem to take hold of my life and my mind wasn't mind anymore. Some made me not openly "sad" but I still slept all day, etc, so I was still depressed. One last year had me make 2 suicide attempts, which is not me either. But, I am on one now that i have been on since march and it really helps me.
Even on the ones that didn't really "work" helped me. All but the one that made me attempt suicide. But, I have chronic depression, so it may not even be relevant.
(I am so sorry. This disease has attacked my brain, so I ramble A LOT now).
As far as medication goes, talk to your doctor or a counselor (make sure you feel comfortable with them) and ask them what you should do. Tell them what you just told us about not wanting to be on medication. You may feel better if you see a therapist or a counselor and end up not needing medication at all. Or, you may need medication just for the time being and will be able to go off of it later after you get a handle on things.
You will get through this. It is going to be hard and I want you to know that you are not alone. If you are anything like me, you feel very alone right now. But, you will get through this and it will make you a stronger person. As far as your "friends" go....they really aren't real friends if they aren't there for you. That certainly is not going to make your situation ANY easier whatsoever, but know that it is true. Many times in your life you will find that people you care greatly for that are your "friends" really are not. Sadly, it never gets any easier. Oh, I wish it did!
I don't know who to tell you to talk to because I am not you. But, I do know that you need to talk to someone! I dont know if you are religious, but your pastor/preacher/etc would be able to help. If not, find a counselor and try that route. I didn't want to go to any kind of therapy either. But, I found a counselor that I Just love and have been seeing her since March. I am in no way fixed, but she is really helping me with all the other areas of my life that are in pieces. This is the new thing that I now need help with!
Good luck and God Bless!
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