Anyone do Methylcobalamin (Vitamin B12) Injections?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/18/2009 6:30 PM (GMT -7)   
My new LLMD just switched me to this and I already feel better from the very first injection. Placebo effect maybe? I hope not because my mind feels so much clearer and my energy level went up a bit. It seems like Methylcobalamin (Vitamin B12), is the best for us Lymies and the most potent too. The cyanocobalamin B-12 was not helping me at all. I still felt pretty fatigued after the injection and didn't feel much of a change after being on it for over two months. My new doctor has me taking 1cc everyday for two weeks, then 1cc on Mondays, Wednesdays and Fridays.

Is anyone else taking this?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/18/2009 10:46 PM (GMT -7)   
I was on it for a while. Found it to work best for me; tried cyano-B12 and hydroxo-B12 and neither worked ok for me. I think one reason the methyl-B12 works so well is that the methylation cycle in many with Lyme is suppressed or low. This means that they need to intake more methyl- than a "normal/healthy" person to meet their metabolic needs. There is a methyl version of Folic Acid that can be very helpful also.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


cleo springs
Regular Member


Date Joined Aug 2009
Total Posts : 76
   Posted 9/19/2009 11:18 AM (GMT -7)   
I didn't know there were more than one kind of VitB injections. I get one, but I don't know which kind, and I never can tell a significant difference. I need to ask about the one that you all are talking about and see if that's what I'm getting. Thanks for the info!

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/19/2009 12:46 PM (GMT -7)   
My naturopath recommended them to help with the tingling feelings I get in my extremeties. She said the methylcobalim type of B vitamin was the best- but she used a very high dose. I can't really give you more info, because me LLMD has a bvitamin that comes in pill and powder form, so I didn't do the injections.

But honestly- who cares if it is a placebo effect! If it makes you feel better, that is all that matters. I hope it keeps working for you!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/20/2009 5:25 PM (GMT -7)   
Lyme demyelinates nerves. The body cannot restore the myelin sheath without Vitamin B12.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 9/22/2009 12:01 PM (GMT -7)   
I did Cyanocobalamin injections daily for about 6 months. It really helped my energy level especially early in my treatment. I still keep some around for bad fatigue days.

saxmar

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/22/2009 5:15 PM (GMT -7)   
They did nothing for me and I got to the point where I just couldn't give myself the shot each day.... it creeped me out and it hurt like he11!

Glad it's worked for others though!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 9/22/2009 5:52 PM (GMT -7)   
I didn't know there was a difference either. I gave myself B12 shots for awhile but didn't notice a difference and quit. I had a hard time stabbing myself too - I can give shots to the animals but just about fainted trying to give them to myself. So I just barely put it under the skin.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/22/2009 5:57 PM (GMT -7)   
Hey nefferdun,

I know what you mean! It does hurt! I wonder which one you were taking? It pretty much has to be Intra Muscular(inside the muscle) to get any benefit from it. Well, at least that's what I was told.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 9/23/2009 2:45 PM (GMT -7)   
Yeah it hurts no matter what. Shortly after I gave myself my first B12 shot I noticed my urine was pink. I called the LLMD in a panic. It turns out that is how you know for sure the B12 is in your system.

saxmar

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/23/2009 5:51 PM (GMT -7)   
Saxmar,

That happened to me too. I thought I was starting my cycle, lol. The cyanocobalamin never turned my urine any color. I wonder if I needed more?

Did anyone feel like they had too much energy? Like caffeine is going through your veins?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


paulajj
New Member


Date Joined May 2011
Total Posts : 3
   Posted 11/22/2011 5:02 PM (GMT -7)   
I am going to be starting Methyl B-12 injections in January. I am a little nervous about giving myself an injection each day (?), not sure if I can or if I can get my husband to do it. Is it really painful? Is it better in the arm or thigh? My Dr states that she has had great success with other Lyme patients on treating the neurological and nervous system/fatigue symptoms. Was wondering how this works? Do you work up to a certain dose? Is it expensive? What is the best way to get it?

Apple-a-Day
Regular Member


Date Joined Oct 2011
Total Posts : 38
   Posted 11/25/2011 10:53 AM (GMT -7)   
When my health crashed 4 years ago (extreme fatigue, extreme brain fog, numbness and tingling in various parts of my scull, balance problems), my family doctor prescribed me weekly B-12 injections. They helped, but only for the first 2-3 days after the injection.

After the first month my B-12 blood levels were already high enough, so my doctor told me to get B-12 shots only every other week. Yet I still felt very sick and B-12 was the only thing that kept me functioning at least on the minimum level.
So I started taking sublingual B-12 lozenges (2500 mcg twice a day). It is Cyanocobalamin, but it works for me. It helped me to pull through for the last 4 years.

Now that I am finally getting treatment for Lyme I lowered B-12 to one lozenge a day for most of the days.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 12:09 PM (GMT -7)
There are a total of 2,906,164 posts in 318,926 threads.
View Active Threads


Who's Online
This forum has 158266 registered members. Please welcome our newest member, GeorgeCastanza.
311 Guest(s), 8 Registered Member(s) are currently online.  Details
farmer boy, Rick1310, bummedinsocal, Maverick6981, Mark FW, PA_grandma, CassandraLee, GeorgeCastanza