Thanks for the welcome, gang. BTW, I am Igenex IgG+ for Lyme and babesia, and likely bartonella (determined by a lab in Arizona my Lyme doctor uses). Just found out today from my neurologist that I also have "small fiber peripheral neuropathy" that he believes was caused by a combination of Lyme and EBV (I had a terrible bout with mononucleosis in 1997, which also marked the onset of the widespread chronic soft tissue pain I have today). He said it is as if my body is unintentionally attacking my central nervous system by trying to fight some sort of underlying infection. He mentioned steroids as an affordable treatment initially, but IGIV has produced the best results. Not keen on giving my body more medication on top of Synthroid, Cymbalta, Wellbutrin, Ritalin, Mepron, Azithromycin, Bactrim, and Ambien.
Dr. F told me last year that my treatment would be complicated by the presence of EBV (my EBV titer was over 4000, 40X what is considered borderline "high"). He also said Lyme is an incredibly smart organism, and can find a way to bury and mask itself deep in your immune system while "feasting" off of the host (me). He believes the Lyme was lying "dormant" in my body (I was asymptomatic for years, or at least I thought I was), but made my immune system vulnerable to EBV, which was the triggering mechanism for the Lyme (and chronic muscle and joint pain). The pieces of the puzzle are finally coming together, but the resulting picture is not a pretty one. But I know I am not alone, and at 41, I am not about to throw in the towel just yet.