Post first ABX - hurting and scared

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lifedancer
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 9/25/2009 9:43 AM (GMT -7)   
Well, I completed 28 days of doxy, and I've seen the ID MD...(maybe this weekend I will post that humorous story!)... and...
 
I'm just soooooo disappointed that I don't feel more improvement! Since I got my NLLMD to double my RX 1/2 way through; I was hoping that would do the trick. I have read here that doxy can increase symptoms temporarily so I didn't worry too much about how I felt (pretty bad) while I was on it. (I know so many of you have been off and on abx for years, I don't mean to be a whiner...)
 
I just wanted to believe that I would be one of those folks the NLLMD's talk about who just take their abx and go back to normal! I'm wondering are there really people who are that fortunate? Why do some people get better fairly rapidly with abx and some do not?
 
Night before last I made the mistake of drinking a rather large glass of red wine (first in 30 days) and the next morning I felt like I had drank a case...throwing up bile, unbelievable headache. Along with the daily body aches and joint pain that are becoming the new normal. So I think it's time for me to look for a WA state LLMD or nautropath who has worked with lyme - anybody got suggestions???
 
I go back to see Dr. "You are A Healthy Person and You'd Had More Than The Standard Dosage, bla bla" (The IDMD) Monday. I really want to stand up to him, not because I think I'm going to change his mind, but for my own self-esteem.
 
I'm starting to have a hard time getting out of bed some mornings, and it's taking all the self discipline I have to go to work - I'm fortunate to only work part time out of the home so I rest on the days that I'm home. I believe in my body's ability to heal, but in this moment I'm hurting and scared.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/25/2009 10:20 AM (GMT -7)   
I'm sorry your hurting and I know you are scared. I was so afraid when I first got Lymes disease. I have been in treatment for 1 yr with ups and downs, but one thing I noticed is the downs side becomes a little less each time. If I were you i would contact a good LLD in your area and get all the right blood test also test for co-infections and take it from there. For herxing try drinking water with lemon it helps , alkalizing the body is necessary to combat the acidic condition created by the infection. Eating lots of breads, meats, and other acidic foods make the condition worse. Vegetables help, as do minerals also. Lemon water is one of the most powerful substances for alkalizing. So powerful that if you take too much, it can throw you into a full blown alkalizing herx reaction so moderation is key.
An additional benefit of drinking lemon water is that it is tasty, cheap, pleasant, and completely non-invasive.
So, when you are feeling a herx reaction coming on - or when you are just feeling toxic from the daily grind of Lyme disease - reach for that glass of lemon water, whether it be carbonated seltzer or just regular tap (preferably filtered) water. You will get well again keep fighting for that.
All the best,
Maria

Agmaar
Regular Member


Date Joined Jan 2009
Total Posts : 376
   Posted 9/25/2009 10:59 AM (GMT -7)   
We are fortunate to have two very good LLMDs in the general Seattle area.  Dr names aren't posted on the forum.
 
Something that might help would be to do a search on something like Seattle CFS and Fibro.  There are support resources for CFS, Fibro and related conditions.
 
Dr R and Dr M are both very good.  I know a couple of people who see Dr R and they have improved a lot.  One person on this board also goes there.  I see Dr. M and have received very good care. 
 
I think there are also a couple of Naturopaths, but I don't know anyone who has seen them.
 
I've probably missed your other posts - how long have you had Lyme?
Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/25/2009 11:21 AM (GMT -7)   
ria, I'm not much of a fan of lemon water. I guess I could try.  I don't suppose a lemonade can be substituted, even if it's  made w/ real lemon and some sugar (or substitute) added?
 
Lifedancer, I am very sorry -- I know how you feel about getting out of bed to work. Most mornings it takes every ounce of will that I have to get myself up and into the shower.  I sympathize w/ you. It doesn't leave us much more willpower for the other stuff we have to do, does it?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/25/2009 12:02 PM (GMT -7)   
+Lyme I would drink piss if it made me feel better LOL
I don't think that you can add sugar to the lemon water. Sorry : (

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/25/2009 12:25 PM (GMT -7)   
OH, alright, then Ria. I put lemons on my grocery list.....
Yeah, I guess that beats the heck out of the nasty stuff you named... Thanks!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/25/2009 12:31 PM (GMT -7)   
LOLOL Your Welcome +Lyme hope it helps : )

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/25/2009 5:12 PM (GMT -7)   
lifedancer,

Did you bring a copy of the ILADS site that I posted about dosages in to your doctor? You should have stayed on antibiotics for no less than 6 weeks. It amazes me that these doctor still give 28 days. Have you ever read the book, "Cure Unknown?" You should get it. You will be amazed at how long this has been going on when there is PROOF that patients did not get better on 28 days of antibiotics. In fact, MOST of them got worse. That's why longer antibiotic therapy is needed until symptoms resolve.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 9/26/2009 7:03:14 PM (GMT-6)


lifedancer
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 9/26/2009 11:35 AM (GMT -7)   
OK, first of all OMG The Great Lemon Water vs. Piss Debate, LOL, ROTF, WLWCOOMN (w/ lemon water coming out of my nose, obviously...)

Thanks +Lyme and ria123 - and I drank some (lemon water, that is, not pee) and it did help.

CajunGrl - Yep, I used the ILADs report with my NLLMD and she gave me another rx, but only enough for double my dosage for an additional 2 weeks. So I had in total 2 weeks at 200 mg/day and 2 weeks at 400 mg/day. I swear I could go totally nuts wondering: Was it enough? Am I just herxing? What should I do next? Soooooooo....

I'm sure this is in the book you recommend, but can you tell me what happens usually if one is off abx and then starts again? Do you start all over again? I think the chances are minimal that either of my current Docs will give me anymore abx, but I'm just wondering...will I be starting "all over" again on abx with a LLMD?

Thanks Agmaar for the info. If I can't find the LLMD's in my area the way you suggested I will add my email to my profile. And I had a positive WB on 8/19/09 - 2 out of 3 bands - I probably got it in late June early July 2009.

I feel better today everyone, BTW. I made it through a great high school football game last night. my first...as a fan, of course : ) Yelling at the plays: a great outlet for lyme aggression LOL!!! I am going to the spa today for some detox...i will bring my lemon Lymie water : )
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