Oh, CajunGrl, I am so sorry to hear about your sadness, disappointment and being left out of the festival. You are not a 'whiner' -- the feelings of being left out, missing fun, and isolation are certainly understandable, and this is NOT FAIR.
First -- couldn't someone in your family take your daughter for you? Wouldn't that make you feel just a tad better? Have you asked anyone to do this? Seems to me that if no one is offering,knowing how ill you are, that's a bit selfish.
CG, how long have you been sick? I cannot even imagine how long many people here have been ill! What a nightmare!
Surely, SURELY, part of this problem is the fact that eveyone's body and disease reacts differently to abx and other meds. And we already know that this bacteria can be very resistent to many abx.
I am no Doc, but am of the opinion that if you are not improving w/ a certain treatment, say, within months, that you probably need a different treatment. I do stand to be corrected on this, but this seems to make sense as far as abx are concerned. Most infections respond relatively quickly to adequate doses of abx.
When you said, ' I feel like that girl that used to laugh and crack jokes was never me. I am now a grumpy, depressed shell of myself', I totally relate, even tho I am nowhere as ill as you are. But have experienced enough to know that your situation and illness are unbearable.
I am glad you have a new Dr and you seem to have faith in him. Impossible as it seems to nearly everyone here, this disease has GOT to be beatable. It's a freaking bacteria, and tho everyone responds to various meds differently, there have GOT to be protocols settled upon that are effective for at least most people.
WE are the guinea pigs, the soldiers and the truth seekers. We MUST keep educating our Drs and ourselves.
We have got to realize that we are amongst the very ranks sick people who are going to make a difference. We are ALL fighters and will be amongst those who find the cure.
CG, there is a protocol that will cure you --- there must be. I know it's taking too long to find it and I know it will be very difficult to finally learn what will cure you. Still, there is not one drop of doubt in me that you WILL get better! This stinking bacteria, along w/ it's nasty co-infections WILL be finally defeated. Please remember that you are one highly important soldier in this search.
And Lyme in MD, it will be verrrry interesting to note a final, complete recovery in those you know who are cavalier and claim to be cured, or to later hear them complaining of their chronic illness..... And your dedication to strength is greatly admirable!
Still, I am sorry for everyone involved in this fight, whether they be seriously ill or gaining some relief. I sincerely believe that if this disease did not attack our minds as it has, it would be a much simpler infection to treat.
Prayers, prayers, and more prayers. Esp for CajunGrl tonite!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause?
CD57= 60, so we're in pretty good shape.
Post Edited (+Lyme) : 9/26/2009 11:00:56 PM (GMT-6)